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  Back to Friends for Life Anaheim 2018 FFL Anaheim 2018 Faculty and Staff

Conference Faculty

 

Christel Marchand Aprigliano was diagnosed in 1983 with type 1 diabetes and spent her early years wishing it would simply "go away." She now devotes her efforts to many diabetes advocacy and peer support initiatives as the CEO of Diabetes Patient Advocacy Coalition (DPAC), a non-profit dedicated to amplifying the diabetes voice on federal and state policies; Founder of The Diabetes Collective, Inc., which produces The DiabetesUnConference; a member of Florida's Diabetes Advisory Council, and as a consultant for healthcare companies. You can find her thoughts on life with diabetes on her popular personal blog, www.theperfectd.com.



 

Diagnosed at age eight, Sam Billetdeaux has always been determined not to let diabetes get in the way of his ambitions. While those ambitions have changed over the years, the determination hasnā€™t. Sam, now 27, lives in Brooklyn with his girlfriend and enjoys the proximity of many CWD friends for life. He enjoys biking with friends, going to the dog park, and seeking out the best pizza/ramen/coffee/brunch in New York! Sam is a graduate of the University of Michigan and the Institute of Culinary Education.



 

Bruce Buckingham, MD, is a Professor of Pediatric Endocrinology at Stanford Medical Center. His research interests have focused on continuous glucose monitoring in children. He is Principal Investigator at Stanford for DirecNet, an NIH sponsored multicenter study group which evaluates continuous glucose sensors in children. His current work focuses on the use of continuous glucose sensors in real-time, and the development of a closed-loop. These efforts are being funded by the JDRF and NIH and are currently focused on preventing nocturnal hypoglycemia and rapidly restoring metabolic control at the onset of diabetes.



 

Edward Damiano, PhD, is Professor of Biomedical Engineering at Boston University. His educational training is in the areas of biomedical and mechanical engineering and applied mathematics. Over the years, his lab has been engaged in basic scientific research that combine aspects of fluid dynamics, solid mechanics, and intravital microscopy to study the biomechanics of the inner ear and blood flow in the microcirculation. In addition to his basic science research, he has also committed himself to building a bionic pancreas for type 1 diabetes. Ever since his 17-year-old son, David, was diagnosed with type 1 diabetes at 11 months of age, he has set his sights on creating and integrating blood-glucose control technologies with a vision of building a bihormonal (insulin and glucagon) bionic pancreas that David could take to college. He and his engineering team at BU began conducting experiments testing an early version of their bionic pancreas running on a laptop computer in diabetic swine in 2005 and then progressed with their clinical collaborators at the Massachusetts General Hospital through in-patient trials in adults and adolescents with T1D from 2008ā€“2012. From 2013ā€“2016, his team at BU and clinical collaborators conducted seven outpatient clinical trials in adults and children with type 1 diabetes testing a mobile version of their bionic pancreas, which ran on an iPhone. With $2.5MM in donations from over 1,000 gifts from the T1D community, his engineering team at BU along with their contract manufacturers, have recently built the first fully integrated biohormonal bionic pancreas that does not rely upon smartphone technology. They call their device the iLet, in homage to the pancreatic islets of Langerhans. They recently received FDA approval to begin clinical trials testing the iLet in the outpatient setting. Their goal is to begin clinical testing of the iLet in the middle of 2017 and to conduct the final pivotal trial testing the insulin-only configuration of the iLet in the first half of 2018. He recently co-founded Beta Bionics, Inc., a Massachusetts Public Benefit Corporation, for the purpose of commercializing the iLet for people living with type 1 diabetes.



 

Leigh Davis Fickling, MEd, MS, JD, is the Executive Director of the Disability Management System at Duke University. With over 19 years of experience in Higher Education Administration, Leigh has served in a variety of executive leadership roles including Dean of Students and Dean of Campus Life. Leigh's area of expertise is disability law and the implementation of reasonable accommodations in the classroom and the workplace. Leigh and her husband Jimmy are the proud parents to six year old twins, Ava and Davis. Ava was diagnosed with type 1 diabetes at the age of three in 2013. With Ava's diagnosis and the need for accommodations in elementary school, Leigh's work life and home life have merged.



 

Korey K. Hood, PhD, is Professor of Pediatrics at Stanford University where he directs NIH-funded research projects and provides clinical care aimed at promoting health and quality of life outcomes in youth with diabetes and their families. Dr. Hood actively investigates the human factors associated with the uptake of diabetes technology and works with Dr. Bruce Buckingham on his team's artificial pancreas project. Dr. Hood also serves on national committees for the American Diabetes Association and is on editorial boards for Diabetes Care and the Journal of Pediatric Psychology. Dr. Hood is the author of Type 1 Teens: A Guide to Managing Your Life with Diabetes and a recent book entitled Teens With Diabetes: A Clinician's Guide (with authors Michael Harris, PhD and Jill Weissberg-Benchell, PhD, CDE). His research, clinical care, and service are fueled by his personal experience with type 1 diabetes. He was diagnosed as a young adult and has spent more than 15 years managing type 1 diabetes. He is passionate about helping children and teens with diabetes, and their families, make diabetes a part of their lives while not letting it run their lives.



 

Aaron Kowalski, PhD, was appointed JDRF's first Chief Mission officer in December 2014 and serves as a key link between JDRF and the broad diabetes community. Dr. Kowalski combines his professional experience as a scientist with his personal experience of living with type 1 diabetes (T1D) for over 30 years to help guide and champion JDRF's programs focused on creating a world without T1D. Dr. Kowalski is an internationally recognized expert in the area of diabetes technologies and has been a leader of JDRF's Artificial Pancreas Research Project, a multi-million dollar initiative that began in 2005 to accelerate the progress toward automated insulin-delivery systems. He has authored numerous articles on T1D research and was a coauthor of the landmark study in The New England Journal of Medicine that revealed the effectiveness of continuous glucose monitors in T1D management. Dr. Kowalski has traveled and spoken globally about diabetes research progress, and is known for his ability to translate science into easily understandable concepts. Dr. Kowalski has presented at many national and international scientific conferences, including the American Diabetes Association Annual Scientific Sessions, and was the keynote speaker at the 2009 Diabetes Technology Society Meeting. He has been a voice for diabetes research in the popular media, appearing on The Martha Stewart Show, dLife, Fox Business, and NPR, among others. He is often quoted in the print media, including The New York Times, The Wall Street Journal, USA Today, and People magazine. Dr. Kowalski is a member of the JDRF PEAK Program's expert panel and often speaks about the importance of exercise and diet in better diabetes control. While living with T1D, he has completed 17 marathons. Online, he often tweets (@aaronjkowalski) about exercise and diabetes and how all people with T1D can live their lives without limits. He earned his doctorate in molecular genetics from Rutgers University.



 

Diana M. Naranjo, PhD, is Assistant Professor of Psychiatry at Lucile Packard Childrenā€™s Hospital Stanford. As a trained pediatric and adult psychologist working in behavioral medicine, Dr. Naranjo focuses on the psychosocial needs of patients and families with diabetes. Together with the team, she aims to understand barriers and facilitators to care, what developmental demands are important as adolescentā€™s transition to adulthood, and how to best provide services that engage young adults and their families. Furthermore, as a Latino-American and fluent in Spanish, much of her clinical work focuses on bridging the health-care gap for underserved ethnic minority patients with type 1 diabetes.



 

Marguerite Olson, MS, LMFT, CDVC, DCC, is a Licensed Marriage and Family Therapist. Her niece was diagnosed with type 1 diabetes 1989 and she has helped with childrenā€™s programs and events through CHOC and PADRE since that time, as well as helping to organize diabetes education conferences for healthcare professionals and writing grants for the several diabetes programs. Sheā€™s worked as a therapist in elementary and high schools, shelters and non-profit organizations, she specialized in Domestic Violence and is a Distance Credentialed Counselor currently seeing clients online through TalkSpace.



 

R. Stewart Perry grew up in Lexington, Kentucky. Since 1983 he has been the co-owner of Perry & Perry State Farm Insurance, one of the largest State Farm Insurance agencies in the state of Kentucky and is a Diabetes Consultant and Advocate. Stewartā€™s family has been dramatically affected by diabetes. His son has type 1 diabetes, both parents, and sister have all had diabetes during their lifetime. He has lost an uncle, grandfather and great grandmother to complications of diabetes. Stewart was diagnosed with type 2 diabetes in 1990. Since that time, he has been actively involved in the American Diabetes Association. Stewart was the Chairman of the National Board of Directors and Chair of the National Advocacy Committee for five years, He was Chair Bluegrass Chapter for a number of years and helped organize many of the fundraising events still in existence. He served as the Kentucky Affiliate Board of Vice-Chair and was Chair-Elect when it became a part of the Southern Region where he served as the Chair of the Southern Region. He also is a former member of the National Board of Directors. He is the State of Kentucky State Advocacy Chair for ADA. Stewart is a member of the Kentucky Diabetes Network and a founding member of the Fayette County Diabetes Collation. Stewart was appointed by two different Governors of Kentucky to the GET FIT KY Board and The Diabetes Research Trust Fund Board where he currently still serves. Stewart is one of the founders of the National Diabetes Volunteer Leadership Council and currently serves as an officer of that organization. Where he has been instrumental in passing Diabetes Action Plan legislation in 18 states over the past four years.



 

Gary Scheiner, MS, CDE, is owner and Clinical Director of Integrated Diabetes Services, a practice located just outside of Philadelphia specializing in intensive insulin therapy and advanced education for children and adults. He and his staff provide consultations throughout the world via phone and the internet. Gary is a Masters-level exercise physiologist. He has been a Certified Diabetes Educator for 19 years, and served as the 2014 Diabetes Educator of the Year. He has had type 1 diabetes for 30 years and makes personal use of insulin pump therapy and CGM. Gary has written dozens of articles for diabetes trade publications and six books, including the popular Think Like A Pancreas - A Practical Guide to Managing Diabetes With Insulin. He lectures nationally and internationally for people with diabetes as well as professionals in the healthcare industry. In addition to serving on the faculty of Children With Diabetes and the Board of Directors for JDRF, Gary volunteers for the American Diabetes Association, Diabetes Sisters, and Setebaid Diabetes Camps. Gary has been happily married for 25 years and has four wonderful kids. A fitness fanatic, he enjoys playing basketball, running, cycling and cheering on his Philadelphia sports teams.



 

Kristen Seiz, MS, RD, was diagnosed with type 1 diabetes at the age of nine. Managing this untamable disease initiated a career in healthcare for her. She earned her Masters degree in Dietetics at Dā€™Youville College in Buffalo, NY. Kristenā€™s first CWD conference was in 2011. She fell in love with the people and relationships she formed. In 2015, Kristen became the dietitian for the conferences and has loved it ever since. Between menu planning, carbohydrate counting and allergy accommodations, she is looking forward to tasting all the food, working with the kids, seeing old friends and making many more!



 

Heather Speer, MPH, CCRC, CDE, is a CWD mom and CDE who has worked tirelessly for the last 20 years with thousands of families who have children with type 1 diabetes. She has served as coordinator of the PADRE Foundation's Fashion Show, Golf Tournament, Teen Surf and Snowboard Camps and Family Social events. She has developed education and support programs for kids with diabetes and their families. Heather instituted an emergency kit program for all newly diagnosed children at Children's Hospital Orange County when her daughter Stephanie was diagnosed with type 1 diabetes at age three in 1990. Heather joined the CWD Ask the Diabetes Team in 1996. She lives with her husband Steve in Newport Beach, California and continues to work with children and families at CHOC. At Friends for Life, Heather is part of the Grandparents' Faculty.



 

Adam Town, BSN, RN, is a Registered Nurse who graduated with a Bachelors of Science in nursing from the University of Cincinnati. Adam is a husband to Marissa, who has had type 1 diabetes since she was two, and father to Connor and Everly. He has always enjoyed being a mentor and role model for children and loves to help families, caregivers and significant others of people with diabetes at Friends for Life conferences.



 

Jamie R. Wood, MD, is an Associate Professor of Pediatrics at Case Western Reserve University School of Medicine. She is the Medical Director of the Diabetes Program and the Mary Blossom Lee Chair in Pediatric Diabetes at Rainbow Babies & Childrenā€™s Hospital in Cleveland, Ohio. She is a pediatric endocrinologist that specializes in the clinical care of youth with type 1 diabetes. Dr. Wood is involved in many clinical research projects that focus on clinical outcomes, emerging therapies, and transition to college and adult endocrinology. One of her favorite places to be is diabetes camp. At Rainbow Babies and Children's Hospital she directs support groups, family retreats, College Prep Events, and diabetes education classes. Dr. Wood loves working with and caring for youth and families that live with type 1 diabetes -- her goal is to work as part of the team that manages diabetes so that the child, adolescent, or young adult can do anything they set their mind to.



CWD Staff

 

Jeff Hitchcock is the Founder, President, creator, editor, and webmaster of Children with Diabetes®. After earning a degree in computational mathematics in 1981, Jeff worked in high tech and traveled the world, meeting Brenda, who would become his wife, in Africa. He worked in defense related industries until 1995, when he started a small Internet company and launched Children with Diabetes®. He subsequently worked at LEXIS-NEXIS and Pearson plc on Internet initiatives, and now works full time bringing Children with Diabetes® to you.



 

A finicky connoisseur of hotel meeting space, cappuccino, and kid-friendly cheese and fruit platters, Laura Billetdeaux is CWD's VP of Education and Programs. Since 2000, Laura has organized every single Friends for LifeĀ® conference, always keeping in mind the true purpose of Children with DiabetesĀ® ā€” education and support of families with type 1, and always keeping in mind why it all works ā€“ the efforts of so many dedicated individuals. Laura lives in Manchester, Michigan with her husband Neal. They are parents of Sam and Carolyn who both serve as youth faculty at Children with DiabetesĀ® conferences as time allows.



 

Brenda Hitchcock is mom to Marissa (dxā€™d at 24 months), Kathryn, and Tim. Sheā€™s worked side by side with her husband Jeff on Children with Diabetes® since it began in 1995. Brenda brings a momā€™s perspective to diabetes care, is editor of the ā€œAsk the Diabetes Teamā€ section of the Children with Diabetes® website, helps to manage the Children with Diabetes® Forums, and helps out in countless ways at Friends for Life® conferences.



 

Chad Kyllo lives in the great white north of British Columbia, Canada. He was diagnosed with type 1 diabetes at the age of two and celiac at age seven. He has attended Camp Elphinstone in Gibsons, BC, since the age of six including leadership training, and he returned as a "Midnight Rambler" working with the medical staff doing the midnight and 3 a.m. blood glucose checks of the campers. Chad has attended many CWD conferences with his first one in 2002. He has helped at conferences working with children, as part of the Road Crew in the exhibit hall, and helping to keep the presentations running smoothly. To Chad, diabetes is a challenge he faces every day, but no more challenging than putting the right sock on the right foot. "Start where you are, use what you have, do what you can."



 

Scott Kyllo lives in British Columbia, Canada. He has two adult children, Alyssa and Chad. Their path along the diabetes road started in 1996 when his son, Chad, then age two, was diagnosed with type 1 diabetes when they were residing in Bahrain in the Middle East. The World Wide Web had just arrived in Bahrain and it brought to the Kylloā€™s the safety of the Children with DiabetesĀ® family. Two years later, when life was becoming somewhat comfortable and routine, Alyssa, then age 7, was also diagnosed with type 1 diabetes. Chad was also diagnosed with celiac disease in 2001. The family attended their first Friends For LifeĀ® conference in 2002. Getting to meet the CWDers in person was like Christmas in July! Scott is a Chief Information Officer by day and an Aircraft Engineer by night maintaining a Piper Cherokee and a Mooney. These skills and his ā€œMacGyverā€ qualities keep him running at the Friends For LifeĀ® conferences as its Information Technology and Audio/Visual support person. He is a strong advocate of Friends For LifeĀ® conferences and believes anyone with a connection to diabetes should attend at least one... although warns that the conferences are much like potato chipsā€”itā€™s hard to stop at just one!



 

Julia Mattingly is mom to 21 year old Hannah and 19 year old Ethan, who was diagnosed with type 1 diabetes at age 10 months and started pumping when he was three. Julia, Ed, and the kids have been to every Friends for LifeĀ® conference and most of the regionals as well. Julia coordinates registration at each conference, and you can always find her when you need a smile and a ā€œHi Yā€™All!ā€ Julia loves coordinating registration and being able to meet and talk to everyone who walks in the door. Her best Friends for LifeĀ® memory is from 2000 when she met all of her CWD email moms in Orlando for the first time. She also loves to see the smiles on her childrenā€™s faces when they re-connect with their CWD friends each summer.



 

Kristen Seiz, MS, RD, was diagnosed with type 1 diabetes at the age of nine. Managing this untamable disease initiated a career in healthcare for her. She earned her Masters degree in Dietetics at Dā€™Youville College in Buffalo, NY. Kristenā€™s first CWD conference was in 2011. She fell in love with the people and relationships she formed. In 2015, Kristen became the dietitian for the conferences and has loved it ever since. Between menu planning, carbohydrate counting and allergy accommodations, she is looking forward to tasting all the food, working with the kids, seeing old friends and making many more!



 

Joanne Stroud, MHA, FACHE, is first and foremost a CWD Mom. Her son Ben was diagnosed in 1998 at the age of 10 and Children with DiabetesĀ® quickly became their lifeline. She attended her first Friends for LifeĀ® conference in 2003 and instantly became hooked, telling Laura sheā€™d do anything (within reason of course!) she could to assist Children with DiabetesĀ®. Both Ben and his brother James are now ā€˜giving backā€™ as Friends for LifeĀ® staff. When not hanging with her FFLs, Joanne is a Training Specialist for Kinnser Software. She and Jim, a CRNA, have one other son, Kyle who lives in Portland, with his wife Sarah.





  Denotes faculty or staff with diabetes




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Last Updated: Friday December 01, 2017 16:27:01
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