Stayce Beck, PhD, MPH, is the Branch Chief for the Diabetes Diagnostic Devices Branch at the Food and Drug Administration (FDA) where she leads a team that reviews new diabetes devices prior to sale in the U.S. and Previously, Stayce was the team lead for the Artificial Pancreas project. Prior to joining the Center for Devices and Radiological Health in 2010, Stayce was a scientific reviewer and researcher in the Division of Monoclonal Antibodies in the Center for Drug Evaluation and Safety (CDER). She is passionate about running, hiking and triathlon and spends her free time being active outdoors.
Edward Damiano, PhD, is Professor of Biomedical Engineering at Boston University. His educational training is in the areas of biomedical and mechanical engineering and applied mathematics. Over the years, his lab has been engaged in basic scientific research that combine aspects of fluid dynamics, solid mechanics, and intravital microscopy to study the biomechanics of the inner ear and blood flow in the microcirculation. In addition to his basic science research, he has also committed himself to building a bionic pancreas for type 1 diabetes. Ever since his 17-year-old son, David, was diagnosed with type 1 diabetes at 11 months of age, he has set his sights on creating and integrating blood-glucose control technologies with a vision of building a bihormonal (insulin and glucagon) bionic pancreas that David could take to college. He and his engineering team at BU began conducting experiments testing an early version of their bionic pancreas running on a laptop computer in diabetic swine in 2005 and then progressed with their clinical collaborators at the Massachusetts General Hospital through in-patient trials in adults and adolescents with T1D from 2008â€“2012. From 2013â€“2016, he and his engineering team at BU and clinical collaborators have now completed six outpatient clinical trials in adults and children with type 1 diabetes testing a mobile version of their bionic pancreas, which ran on an iPhone. With $2.5MM in donations from over 1,000 gifts from the T1D community, his engineering team at BU along with their contract manufacturers, have recently built the first fully integrated biohormonal bionic pancreas that does not rely upon smartphone technology. They call their device the iLet, in homage to the pancreatic islets of Langerhans. They recently received FDA approval to begin clinical trails testing the iLet in the outpatient setting. Their goal is to begin the final pivotal trial testing the iLet in the first half of 2017. He recently co-founded Beta Bionics, Inc., a Massachusetts Public Benefit Corporation, for the purpose of commercializing the iLet for people living with type 1 diabetes.
Andrew Deutscher is a Speaker and Vice President of Business Development at The Energy Project, a company that helps individuals and organizations fuel energy, engagement, focus and productivity by harnessing the science of high performance. His recent book, typecast: Amazing People Overcoming the Chronic Disease of Type 1 Diabetes, is inspired by his youngest boy who was diagnosed with the disease in 2009 at the age of 2. In addition to serving on multiple committees for the American Diabetes Association and JDRF, he volunteers for outreach and advocacy efforts impacting both newly diagnosed patients as well as government funding to advance diabetes prevention and treatment. His experience speaking on the topic of sustainable high performance in major corporations worldwide, has enabled him to frame diabetes care in an empowering way. Andrew graduated from Syracuse University, with a BS in Public Relations and Marketing. He lives in Atlanta with his wife and two sons.
Bennet Dunlap, MSHC, is passionate advocate for better diabetes care. He is the father of four, two of whom live with type 1 diabetes. Like millions of Americans Bennet tries to be successful with type 2 diabetes himself. He has created a variety of social media projects including the advocacy campaign StripSafely, DrinkingWithDiabetes a resource for families sending type 1 students to college and his blog, Your Diabetes May Vary. Bennet is an integral member of the Spare a Rose / Save a Child community supporting the IDF's Life for a Child program. He is a respected participant in industry social media summits. Bennet has given patient perspectives in public testimony before the FDA's Endocrine and Metabolic Drug Committee on diabetes medication. Recently, he was a patient reviewer for PCORI. With a degree in finance from Lehigh University, Bennet pursued a career in commercial banking. Following the diagnosis of his children with type 1, his passion for advocacy grew and he earned a masters in health communications from Boston University to better serve the diabetes community. Bennet is currently a consultant helping to advance diabetes care and patient engagement.
Korey K. Hood, PhD, is Professor of Pediatrics at Stanford University where he directs NIH-funded research projects and provides clinical care aimed at promoting health and quality of life outcomes in youth with diabetes and their families. Dr. Hood actively investigates the human factors associated with the uptake of diabetes technology and works with Dr. Bruce Buckingham on his team's artificial pancreas project. Dr. Hood also serves on national committees for the American Diabetes Association and is on editorial boards for Diabetes Care and the Journal of Pediatric Psychology. Dr. Hood is the author of Type 1 Teens: A Guide to Managing Your Life with Diabetes and a recent book entitled Teens With Diabetes: A Clinician's Guide (with authors Michael Harris, PhD and Jill Weissberg-Benchell, PhD, CDE). His research, clinical care, and service are fueled by his personal experience with type 1 diabetes. He was diagnosed as a young adult and has spent more than 14 years managing type 1 diabetes. He is passionate about helping children and teens with diabetes, and their families, make diabetes a part of their lives while not letting it run their lives.
Christel Marchand Aprigliano was diagnosed in 1983 with type 1 diabetes and spent her early years wishing it would simply "go away." She now devotes her efforts to many diabetes advocacy and peer support initiatives as the VP of Diabetes Patient Advocacy Coalition (DPAC), a non-profit dedicated to amplifying the diabetes voice on federal and state policies; CEO of The Diabetes Collective, Inc., which produces The DiabetesUnConference; a member of Florida's Diabetes Advisory Council, and a consultant for healthcare companies. You can find her thoughts on life with diabetes on her popular personal blog, www.theperfectd.com.
Molly McElwee Malloy, RN, CDE, is the Head of Patient Engagement and Director of Marketing at TypeZero Technologies, LLC, where she works on the inControl artificial pancreas device. She was formerly a Diabetes Educator at the University of Virginia's Diabetes Education Management Program (DEMP), and a Research Coordinator / Diabetes Educator at the Center for Diabetes Technology for artificial pancreas trials. Molly was diagnosed with Type 1 diabetes in 1998.
Kenneth Moritsugu, MD, MPH, FACPM, Chairman of the Board of Children with DiabetesÂ®, is a retired Rear Admiral with the U.S. Public Health Service, who has twice been the Surgeon General of the United States. After a 37 year career in public service in uniform, he was the Vice President of Global Strategic Affairs for Diabetes; and WorldWide Chairman of the Johnson & Johnson Diabetes Institutes, a global network of educational facilities focused on providing health providers the knowledge, skills, and tools to help them better serve people with diabetes. He retired from Johnson and Johnson in 2013, and has been the President and Chief Executive Officer of First Samurai Consulting, LLC, a firm specializing in health policy and programs, bridging the public and private sectors. In addition to being the Chair of T-1 Today, doing business as Children with DiabetesÂ®, he is a member of the board of the American Association of Diabetes Educators, the Diabetes Hands Foundation, the Physician Assistant Foundation, and the National Council of Asian and Pacific Islander Physicians. He has been a member of the board of the National Kidney Foundation, the American Diabetes Association Research Foundation, and the American Dietetic Association, among several others. He is a member of the Board of Regents of the Uniformed Services University of the Health Sciences, Americaâ€™s health university; and Vice Chair of the Deanâ€™s Council for the George Washington University Milken School of Public Health. He has had type 1 diabetes (LADA) for 15 years, and has been closely associated with and supportive of Children with DiabetesÂ® for over a dozen years, in faculty and leadership roles. This past November, he was the JDRFâ€™s Hope Gala Honoree at its black tie event in Washington, DC. His older daughter, Erika Moritsugu is an Assistant Secretary in the US Department of Housing and Urban Development; his younger daughter, Emily, is in middle school in the Japanese Immersion program in Fairfax County; and his wife, Lisa Kory, is an appointed Commissioner for the Fairfax County Commission on Organ Donation and Transplantation. He and his family reside in Great Falls, Virginia.
Diana M. Naranjo, PhD, is Assistant Professor of Psychiatry at Stanford, Lucile Packard Children's Hospital. As a trained pediatric and adult psychologist working in behavioral medicine, Dr. Naranjo focuses on the psychosocial needs of patients and families with diabetes. Together with the team, she aims to understand barriers and facilitators to care, what developmental demands are important as adolescent's transition to adulthood, and how to best provide services that engage young adults and their families. Furthermore, as a Latino-American and fluent in Spanish, much of her clinical work focuses on bridging the health-care gap for underserved ethnic minority patients with type 1 diabetes.
Gary A. Puckrein, PhD, is President and Chief Executive Officer of the National Minority Quality Forum. Dr. Puckrein also serves as Executive Director of the Alliance of Minority Medical Associations, a collaborative effort of the Asian and Pacific Physicians' Association, the Association of American Indian Physicians, and the National Medical Association. In 1998 he founded the Forum's predecessor program (the National Minority Health Month Foundation) to help communities and policy makers eliminate the disproportionate burden of premature death and preventable illness in special populations through the use of evidence-based, data-driven initiatives. Dr. Puckrein has built the Forum's capacity to house vital statistics and other information -- including demographic, environmental, claims, prescription, laboratory, hospital, and clinic data -- in a centralized data warehouse. Dr. Puckrein has also led the development of the Forum's health indexes and atlases to measure and forecast health status in small geographic areas, evaluate the impact of specific interventions, monitor changes in health outcomes, and provide information and analysis regarding the health of ethnic and racial minorities. Dr. Puckrein published two successful magazines: American Visions and Minority Health Today. Dr. Puckrein was awarded his doctorate from Brown University, graduating Phi Beta Kappa.
Henry Rodriguez, MD, is a highly regarded pediatric diabetologist and collaborative type 1 diabetes clinical researcher who led the Indiana University (IU) DPT-1 Regional Recruitment Center and served as the highly successful IU TrialNet Clinical Center's Clinical Director for 10 years. He joined the University of South Florida College of Medicine in 2010 as a Professor of Pediatrics and Clinical Director of the USF Diabetes Center. He has led expansion of clinical, educational, and clinical research activities at USF including the launch of the USF T1D Exchange Clinical Center, establishment of the USF TrialNet Clinical Center, and partnering with industry in investigating novel therapies in type 1 and pediatric type 2 diabetes. Dr. Rodriguez is the Protocol Chair for the NIH-funded TrialNet Pathway to Prevention Study and serves on numerous TrialNet committees. He is co-chair of the ADA Safe at School Working Group, co-chair of the Diabetes Advocacy Alliance and has been a longstanding volunteer with JDRF and a staunch supporter of diabetes camps. He has also been the member of working groups addressing insulin pump therapy in children and the transition of young adults from pediatric to adult diabetes care providers. His clinical and research foci are the improvement of lives impacted by diabetes while pursing prevention and a cure.
Harold Sanco, CPT, is a former National Aerobic Champion and two time bronze medalist at the National Step Challenge Competition. He has been voted Washington, DC's "Best Instructor" by Washingtonian Magazine and the Washington Post. With more than 20 years of experience in youth physical education and coaching, he is an internationally acclaimed instructor and trainer who teaches across the United States, Canada and 15 countries for some of the top fitness conferences in the world. His popular "Urban Funk" class has been featured in People, Allure and W magazines. He is AFAA certified and a Master Trainer for Lebert Training Systems. Currently he serves as the Director of Group Fitness for the award-winning Results Gym in Washington, DC and the Director of Fitness for two National Youth groups "Children with Diabetes" and "Workout4Kids."
Gary Scheiner, MS, CDE, is owner and Clinical Director of Integrated Diabetes Services, a practice located just outside of Philadelphia specializing in intensive insulin therapy and advanced education for children and adults. He and his staff provide consultations throughout the world via phone and the internet. Gary is a Masters-level exercise physiologist. He has been a Certified Diabetes Educator for 19 years, and served as the 2014 Diabetes Educator of the Year. He has had type 1 diabetes for 30 years and makes personal use of insulin pump therapy and CGM. Gary has written dozens of articles for diabetes trade publications and six books, including the popular Think Like A Pancreas - A Practical Guide to Managing Diabetes With Insulin. He lectures nationally and internationally for people with diabetes as well as professionals in the healthcare industry. In addition to serving on the faculty of Children With Diabetes and the Board of Directors for JDRF, Gary volunteers for the American Diabetes Association, Diabetes Sisters, and Setebaid Diabetes Camps. Gary has been happily married for 25 years and has four wonderful kids. A fitness fanatic, he enjoys playing basketball, running, cycling and cheering on his Philadelphia sports teams.
Kerri Sparling has been living with type 1 diabetes for over 28 years, diagnosed in 1986. She manages her diabetes and lives her life by the mantra "Diabetes doesn't define me, but it helps explain me." Kerri is a passionate advocate for all-things diabetes. She is the creator and author of Six Until Me, one of the first and most widely-read diabetes patient blogs, reaching a global audience of patients, caregivers, and industry. Outside of her blog, Kerri's work can be found at diaTribe, Animas, and in diabetes outreach like JDRF's Countdown magazine, in addition to her extensive diabetes YouTube channel. Well-versed in social media and its influence on patients, Kerri presents regularly at conferences and works full-time as a writer and consultant. Her first book, Balancing Diabetes (Spry Publishing), was published in 2014. Kerri and her husband, Chris, live in Rhode Island, USA with their daughter.
Crystal Crismond Woodward is the Director of the American Diabetes Association (ADA)'s Safe at School initiative based at its Home Office in Alexandria, Virginia. Crystal is considered a national authority on the rights of students with diabetes and has spoken at conferences and forums throughout the United States and internationally on how to effectively advocate on behalf of students with diabetes, training hundreds of parent advocates, attorneys, and health care professionals. A parent of a child with diabetes, Crystal began her advocacy as a volunteer for ADA when she successfully led the effort to pass the first state diabetes school legislation in the country providing comprehensive coverage for students with diabetes in Virginia and has since worked tirelessly to pass Safe at School legislation in 30 states including the District of Columbia. Crystal is a contributor to many diabetes publications, is a member of the Virginia Diabetes Council and serves on a number of other diabetes and youth advisory boards and committees.
Jeff Hitchcock is the creator, editor, webmaster and president of Children with Diabetes. After earning a degree in computational mathematics in 1981, Jeff worked in high tech and traveled the world, meeting Brenda, who would become his wife, in Africa. He worked in defense related industries until 1995, when he started a small Internet company and launched Children with Diabetes. He subsequently worked at LEXIS-NEXIS and Pearson plc on Internet initiatives, and now works full time bringing Children with Diabetes to you.
A finicky connoisseur of hotel meeting space, cappuccino, and kid-friendly cheese and fruit platters, Laura Billetdeaux is CWD's VP of Education and Programs. Since 2000, Laura has organized every single CWD conference, always keeping in mind the true purpose of CWD - education and support of families with type 1, and always keeping in mind why it all works â€“ the efforts of so many dedicated individuals. Laura lives in Manchester, Michigan with husband Neal, who graciously and energetically assists with the conference teen programs. They are parents of Sam and Carolyn who both serve as youth faculty at CWD conferences as time allows.
Jim Vail was diagnosed with type 1 diabetes in 1986 at age 19 while he was a sophomore at the State University of New York at Fredonia. Jim graduated with a degree in Media Communications and was a producer for CNBC Business news in Washington, D.C., for 9 years all the while wrestling with the unpredictability of short and intermediate acting insulin. After finally going on a pump in October of 2001 and 'getting his life back,' Jim began volunteering at CWD in the teen program where he quickly became one of the Program Coordinators. He's worn, tested or personally used virtually every product represented in the Exhibit Hall. Jim serves as the Director of Development and Communications for CWD.
Natalie Bellini, BSN, RN, CDE, has had type 1 diabetes since she was a young child. Within a year of finishing nursing school, she started to care for people with diabetes, focusing first on diabetes in pregnancy then pediatrics and insulin requiring adults. She has worked on the medical side of camps for children and teens in Maryland, Delaware and Pennsylvania. She has spoken nationally and internationally as an expert in both working with teens and their parents with diabetes as well as infusion set choice, usage and maintenance. Her fundamental goal when developing the teenage curriculum for Children with Diabetes conferences is that each and every teen that attends finds a passion in life and pursues it. She is currently attending university part time in order to become a Family Nurse Practitioner. Natalie works at Novo Nordisk and is mom to Erin.
Brenda Hitchcock is mom to Marissa (dx'd at 24 months), Kathryn, and Tim. She's worked side by side with her husband Jeff on Children with Diabetes since it began in 1995. Brenda brings a mom's perspective to diabetes care, is editor of the "Ask the Diabetes Team" section of the CWD web site, helps to manage the CWD Forums, and helps out in countless ways at CWD's conferences.
Scott Kyllo lives in British Columbia, Canada. He has two adult children, Alyssa and Chad. Their path along the diabetes road started in 1996 when his son, Chad, then age 2 was diagnosed with type 1 diabetes when they were residing in Bahrain in the Middle East. The World Wide Web had just arrived in Bahrain and it brought to the Kyllo's the safety of the CWD family. Two years later, when life was becoming somewhat comfortable and routine, Alyssa, then age 7, was also diagnosed with type 1 diabetes. Chad was also diagnosed with celiac disease in 2001. The family attended their first Friends For Life conference in 2002. Getting to meet the CWDers in person was like Christmas in July! Scott is a Chief Information Officer by day and an Aircraft Engineer by night maintaining a Piper Cherokee and a Mooney. These skills and his "Macgyver" qualities keep him running at the CWD conferences as our Information Technology and Audio Visual support person. He is a strong advocate of CWD conferences and believes anyone with a connection to diabetes should attend at least one ... although warns that the conferences are much like potato chips ... it's hard to stop at just one!
Julia Mattingly is mom to 20 year old Hannah and 18 year old Ethan, who was diagnosed with type 1 diabetes at age 10 months and started pumping when he was 3. Julia, Ed, and the kids have been to every Friends for Life conference and most of the regionals as well. Julia coordinates registration at each conference, and you can always find her when you need a smile and a "Hi Y'All!" Julia loves coordinating registration and being able to meet and talk to everyone who walks in the door. Her best CWD memory is from 2000 when she met all of her CWD email moms in Orlando for the first time. She also loves to see the smiles on her children's faces when they re-connect with their CWD friends each summer.
Matthew Point, MS, is a higher education professional. He currently serves as the Director of Residence Life & Housing at Moore College of Art & Design in Center City, Philadelphia. Matt holds a Master's degree in Higher Education Administration & College Student Development. As part of his role on campus, he manages special accommodations for housing and dining plans for students with disabilities or dietary restriction and is responsible for all on-campus emergency management. Matt began attending CWD events two years ago to support his partner, who has type 1 diabetes. Matt's favorite parts of attending CWD events are getting to see all of the new technology, as well as reuniting with Type 1 and "Type 3" friends.
Kristen Seiz, MS, RD, CLC, was diagnosed with type 1 diabetes at the age of nine. Inspired at a young age by her diabetes, she pursued a career to become a dietitian and studied for her Masters degree at D'Youville College in Buffalo, NY. She lives and works in Buffalo as a Nutritionist at a Catholic Charities WIC Office. Upon attending her first CWD Conference in 2011, she fell in love with the people and relationships she formed and was determined to become a part of it. She is looking forward to working with the kids, seeing old friends and meeting many more!
Jim Stroud, CRNA, MSNA, is first and foremost a servant of his wife, Joanne. He is also Dad to Ben, diagnosed at age 10 in 1998. Jim was thrilled to coach the CWD Western Hemisphere Soccer Team on its tour of Italy in 2004. When not doing whatever Joanne, Jeff, Laura, and everyone else listed above tell him to do, Jim gives anesthesia and is an adjunct professor of Nurse Anesthesia in San Diego, California.
Joanne Stroud, MHA, FACHE, is first and foremost a CWD Mom. Her son Ben was diagnosed in 1998 at the age of ten and CWD quickly became their lifeline. She attended her first conference in 2003 and instantly became hooked, telling Laura she'd do anything (within reason of course!) she could to assist CWD. Both Ben and his brother James are now 'giving back' as CWD staff. When not hanging with her FFLs, Joanne is a Training Specialist for Kinnser Software. She and Jim, a CRNA, have one other son, Kyle who lives in Portland, with his wife Sarah.
Chris Tull became involved with CWD shortly after his son's diagnosis in 2002. He has served as a Legislative Chair for his local JDRF chapter and has been involved with Teen Program and security matters for CWD since his first conference. His son, Trevor, moved through the CWD teen program and is now a successful adult managing his own diabetes. Chris credits CWD with helping his son and his family better manage and live with his diagnosis. Chris is a police sergeant in Virginia Beach and a former Marine.
Trevor Tull was diagnosed in 2002 when he was 13 years old. He has been attending FFL and regional conferences on and off for most of that time since. He currently works for TTX in Norfolk, Virginia, working on his Journeyman license with the railroad company. Trevor lives a very active lifestyle taking every opportunity to snowboard, ride his motorbikes, play ice hockey, and stay elbow-deep in grease working on trucks and cars! Trevor developed life-long friendships through Friends for Life conferences as well as honing his diabetes management skills through the CWD Teen Program. Since becoming an adult he has tried to give back by helping with Elementary Staff, Sports Central, and now CWD staff.
Friends for Life Falls Church 2016 Conference and Expo Introduction - Registration - Sponsors Faculty and Staff - Youth Staff - Nightscout Faculty Program - Youth Program - Hotel Floor Plan - Childcare Form Recent Conference Reports: UK 2015 - Canada 2015 - Anaheim 2015 - Orlando 2015
Last Updated: Monday March 14, 2016 12:13:13
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