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  Back to Friends for Life 2010 Conference Friends for Life 2010 Focus Groups

Wednesday, June 30, 2010
Program for Everyone

CWD is pleased to announce a day of Focus Groups at the Friends for Life conference. Focus groups will be held on Wednesday, June 30, 2010.

What is a Focus Group?
A focus group is a small gathering of people with the purpose of discussing one particular topic or "focus." In our case, the focus groups will range from 10 to 50 people each, and may discuss a new product in development, a product already on the market (and the company wants feedback), a particular method of diabetes management, or it may focus on a specific age group (e.g.., how do teens feel about pumping or blood glucose testing?). Some sessions are clearly associated with one product or company, while others are led anonymously. All focus groups have been reviewed by Children with Diabetes.

What is the Schedule?
Focus groups will be held at 9:00 a.m., 11:00 a.m., 1:00 p.m., and 3:00 p.m. They will last 90 minutes each.

How do I sign up?
You must currently be registered for the conference to sign up for a focus group. Any member of your family may participate. Children are welcome to participate in focus groups specifically for children, or specifically for families. You may participate in more than one focus group. Please use our Online Focus Group Signup Form to sign up. Each person in a family must register separately -- you cannot sign up a whole family on one form.

Participation is on a first-come, first-served basis. Once a group is full, we will so indicate on this webpage.

9:00 a.m. - 10:30 a.m. - Focus Groups and Receptions

 

Help Design the Future of Insulin Pumps!
Company: Anonymous
Location: Crystal A
Time: 9:00 am - 10:30 am
Open to: Parents of children who are currently using traditional insulin pumps with tubing
Audience Size : Maximum 10 participants

Here is your opportunity to give feedback on insulin pump features that are important to you, what you or your child like/dislike about the current pump options on the market, and what features you would like to see in the future.
This focus group is full

 

Finding Your Voice Online
Presenters: Kerri Sparling and Amy Tenderich
Location: Crystal B
Time: 9:00 a.m. - 10:30 a.m.
Open to: Everyone interested in the world of diabetes blogging
Audience Size: Maximum 50 participants

Join well-known diabetes bloggers Kerri Sparling (SixUntilMe) and Amy Tenderich (DiabetesMine) for a discussion of the world of diabetes blogging. Here's your chance to learn from two of the best known diabetes bloggers how to get started, how to find your voice, and how to make a difference.

 

How Can Your Family Be Part of the Cure?
Organization: Diabetes Research Institute Foundation
Location: Crystal C
Time: 9:00 a.m. - 10:30 a.m.
Open to: Everyone
Audience Size: Maximum 50 participants

We all want to find a cure for diabetes, but how can you and your family get involved? Do you feel you can make a difference? Have you ever felt your efforts are not appreciated? Do you feel like you’re a small fish in a big pond? Join the Diabetes Research Institute Foundation to provide your input on being involved, becoming empowered and taking the search for a cure into your own hands.

 

Be a Marketing Manager for the Day
Company: Novo Nordisk
Location: Crystal D
Time: 9:00 a.m. - 10:30 a.m.
Open to: Kids with type 1 and at least one parent
Audience Size: Maximum 50 participants

Are you creative? This is your chance to show everyone your best ideas! Come and design a kit to help other kids learn how to live with diabetes. What was most helpful for you when you first got diabetes? What kinds of items do you wish you had? Join this interactive session to help us learn what’s most important to you and other kids and families with diabetes.

 

The Greatest Fear of Diabetes: Hypoglycemia!
Company: Dex4
Location: Crystal E
Time: 9:00 a.m. - 10:30 a.m.
Open to: Parents and adults
Audience Size: Maximum 40 participants

Attention Parents and Adults! In a recent CWD survey, an overwhelming 40% responded that the hardest part of managing diabetes is hypoglycemia - or the fear of going low. We invite you to come tell Dex4 more so we can better understand how we can help you and your child prepare, prevent and care for hypoglycemia.

 

Inventors Only!
Company: Abbott Diabetes Care
Location: Crystal F
Time: 9:00 a.m. - 10:30 a.m.
Open to: Kids 10 and older with type 1 diabetes, accompanied by one or two parents
Audience Size: Maximum 50 participants

In small teams, comprised of both kids and parents, identify and explore the everyday challenges that both kids and their parents face dealing with diabetes. Then brainstorm and develop ideas to make managing diabetes easier.

 

Game Concepts: Your Input!
Company: sanofi-aventis
Location: Crystal M
Time: 9:00 a.m. - 10:30 a.m.
Open to: Kids ages 10-15 with type 1 diabetes, along with a parent
Audience Size: 10 kids with 10 parents

Kids and their parents provide key input in the development of games. This interactive groups offers a format for you to share your great ideas and provide feedback on games currently under development.
This focus group is full

 

What does CWD mean to you?
Company: Children with Diabetes
Location: Crystal N
Time: 9:00 a.m. - 10:30 a.m.
Open to: Parents
Audience Size: Maximum 10 participants

Help us understand what CWD means to you today and how we can make it better.

 

Kris Freeman
Company: Eli Lilly & Company
Location: Crystal G1
Time: 9:00 a.m. - 10:30 a.m.
Open to: Everyone

Come meet Olympian and 13-time national champion cross-country skier Kris Freeman and hear about his inspiring personal journey with type 1 diabetes.

 

Caregivers' Camp - Session I
Location: Canary 3/4
Time: 9:00 a.m. - Noon
Open to: Grandparents and other caregivers

This session is intended to give occasional caregivers a good comfort level with the tools and strategies for managing type 1 diabetes.



11:00 a.m. - 12:30 p.m. - Focus Groups and Receptions

 

Today's Technology in Yesterday's Insulin Pumps
Company: Tandem Diabetes
Location: Crystal A
Time: 11:00 a.m. - 12:30 p.m.
Open to: Teen pumpers ages 15-18
Audience Size: Maximum 12 participants

Our focus group/interview sessions are structured to discuss specific insulin pump aspects, features, training and accessories perceived benefits with current pumps and the potential enhancements for future devices.

 

Starting a Support Group at Home
Presenter: Jodie Heflin
Location: Crystal B
Time: 11:00 a.m. - 12:30 p.m.
Open to: Parents of kids with type 1 (families are welcome)
Audience Size: Maximum 50 participants

Interested in learning what it takes to start and run a local support group? Join CWD mom Jodie Heflin to learn about her Cincinnati area group, Families Living with Diabetes. This is a great opportunity to learn how to start a group or to add new activities and ideas to your current group.

 

Discover a Cool Way To Use Your Numbers
Company: Roche
Location: Crystal C
Time: 11:00 a.m. - 12:30 p.m.
Open to: Kids with type 1 diabetes and at least one parent
Audience Size: Maximum 50 participants

As a caregiver or young child or teen with type 1 diabetes, you already know how important and valuable regular blood sugar checks can be in helping you treat diabetes. But what you might not know is that there’s a cool way for you to use your numbers that can help you stay in a safe range as you go about your daily activities.
This focus group is full

 

Diabetes, iPods, and Facebook
Company: AgaMatrix (WaveSense)
Location: Crystal D
Time: 11:00 a.m. - 12:30 p.m.
Open to: Teens, parents, and adults with type 1 diabetes
Audience Size: Maximum 50 participants

This focus group is an opportunity for you to tell us how you would use social networks and cell phones to manage your diabetes. Would you like to have a meter built into a Droid? Control your pump with an iPhone? Share results with your doctor online? Come discuss how new technology could change diabetes. If you have an iPhone or iPod touch download the "WaveSense Diabetes Manager" from the app store to see what we are talking about!

 

Getting Started on Checking Blood Sugars: Beginning your Journey with OneTouch
Company: LifeScan
Location: Crystal E
Time: 11:00 a.m. - 12:30 p.m.
Open to: Parents of newly diagnosed kids
Audience Size: Maximum 10 participants

To better understand how OneTouch can assist and support those new to checking blood sugars, this focus group will concentrate on the perceptions, questions, and concerns held by parents of newly-diagnosed children.

 

Shaping the Future of Insulin Pump and Continuous Glucose Monitoring Therapy
Company: Medtronic Diabetes
Location: Crystal F
Time: 11:00 a.m. - 12:30 p.m.
Open to: Kids who pump and their parents
Audience Size: Maximum 50 participants

When you think about how you manage diabetes today, what are the one or two things that would make your life easier? At Medtronic, our focus is closing the loop with an artificial pancreas and each product we develop brings us one step closer. But, it's important that we don't lose sight of how we can make your life better today. Come tell us what you need.

 

Discussion of a CGM System Designed for the Pediatric Population
Company: DexCom
Location: Crystal M
Time: 11:00 a.m. - 12:30 p.m.
Open to: Parents of kids with type 1 diabetes
Audience Size: Maximum 50 participants

This session will explore the needs and preferences for a continuous glucose monitoring system designed for the pediatric patient.

 

What does CWD mean to you?
Company: Children with Diabetes
Location: Crystal N
Time: 11:00 a.m. - 12:30 p.m.
Open to: Teens with type 1
Audience Size: Maximum 10 participants

Help us understand what CWD means to you today and how we can make it better.

 

Charlie Kimball Reception
Company: Novo Nordisk
Location: Canary 1/2
Time: 11:00 a.m. - 12:30 p.m.
Open to: Everyone

Come hear how the Indy Lights racecar driver Charlie Kimball doesn't let diabetes slow him down.



1:00 p.m. - 2:30 p.m. - Focus Groups and Receptions

 

Today's Technology in Yesterday's Insulin Pumps
Company: Tandem Diabetes
Location: Crystal A
Time: 1:00 p.m. - 2:30 p.m.
Open to: Kids under 14 who pump with at least one parent
Audience Size: Maximum 12 kids plus parents

Our focus group/interview sessions are structured to discuss specific insulin pump aspects, features, training and accessories perceived benefits with current pumps and the potential enhancements for future devices.
This focus group is full

 

Co-Design New Ways to Deliver Diabetes Education
Company: University of South Florida
Location: Crystal B
Time: 1:00 p.m. - 2:30 p.m.
Open to: Teens, Young Adults, Families of Teens
Audience Size: Maximum 50 participants

Bringing Science Home wants to know what would make living with diabetes better for you and your family. Come co-design new ways to deliver diabetes education and new ways to teach health professionals about what people touched by diabetes really need.

 

Share Your Thoughts with FDA
Company: FDA
Location: Crystal C
Time: 1:00 p.m. - 2:30 p.m.
Open to: Parents of kids with type 1; adults with type 1
Audience Size: Maximum 50 participants

FDA follows processes for approving products and for monitoring their safety and effectiveness after you begin to use them. What are your thoughts about those processes? How would you like them changed? Come and share your thoughts and suggestions with Arleen from the FDA.

 

Diabetes On-The-Go: Choices to Fit Your Lifestyle
Company: Novo Nordisk
Location: Crystal D
Time: 1:00 p.m. - 2:30 p.m.
Open to: Kids with type 1 and at least one parent
Audience Size: Maximum 50 participants

Whether you're a pumper or on a pen, we want to hear from you! What do you like about your current device? What are your challenges? Come to this interactive discussion and share what’s most important to you.

 

Does Checking Blood Sugars Need to be So Painful?
Company: LifeScan
Location: Crystal E
Time: 1:00 p.m. - 2:30 p.m.
Open to: Kids with type 1 and at least one parent
Audience Size: Maximum 20 participants

This focus group will concentrate on the topic of checking blood sugars to better understand how children and parents feel about the process and their preferences in selecting a lancing device. Additionally, there will be a focus on decision-making as it relates to selecting or discontinuing use of a lancing device.


This focus group is full

 

Getting Back to Life!
Company: Lilly
Location: Crystal F
Time: 1:00 p.m. - 2:30 p.m.
Open to: Families with type 1 diabetes
Audience Size: Maximum 50 participants

Learning to manage type 1 diabetes itself after diagnosis is one thing, but learning how to get back into life (school, soccer practice, parties, etc.) can bring on its own set of challenges. Come join an open discussion and share with others how your family got plugged back into the real world once type 1 diabetes came into the picture. Your participation and input will be used to help better support families of kids with type 1 diabetes in the future.

 

The Artificial Pancreas Project
Company: Animas/JDRF
Location: Crystal M
Time: 1:00 p.m. - 2:30 p.m.
Open to: Families living with type 1 for at least six months
Audience Size: Maximum 50 participants

Work on the Animas-JDRF artificial pancreas program has begun and feedback from the intended users is needed. Here's your chance to offer feedback on your would expect the artificial pancreas to look and feel like as well as providing input into the user-device interface.
This focus group is full

 

Caregivers' Camp - Session II
Location: Canary 3/4
Time: 2:00 - 4:00 p.m.
Open to: Grandparents and other caregivers

This session is intended to give occasional caregivers a good comfort level with the tools and strategies for managing type 1 diabetes.



3:00 p.m. - 4:30 p.m. - Focus Groups and Receptions

 

MDI: Take the Pain Out
Company: Unomedical and Patton Medical Devices
Location: Crystal A
Time: 3:00 p.m. - 4:30 p.m.
Open to: Parents of kids on MDI and adults on MDI (not for kids)
Audience Size: Maximum 15 participants

Does your child feel like a pin cushion from taking multiple daily injections? Are you struggling to get your child to take his or her insulin because of the pain associated with each injection? As a parent of a child living with diabetes you experience firsthand the struggle of multiple daily insulin injection therapy. Please join our focus group to learn about a simple device that eliminates the need to puncture the skin with each injection. In this session, we will show you the product, explain its benefits and seek your feedback. Please join us and let us know what you think!
This focus group is full

 

Share Your Thoughts with FDA
Company: FDA
Location: Crystal C
Time: 3:00 p.m. - 4:30 p.m.
Open to: Parents of kids with type 1; adults with type 1
Audience Size: Maximum 50 participants

FDA follows processes for approving products and for monitoring their safety and effectiveness after you begin to use them. What are your thoughts about those processes? How would you like them changed? Come and share your thoughts and suggestions with Arleen from the FDA.

 

New Infusion Set Hands-on Experience
Company: Disetronic / Roche
Location: Crystal D
Time: 3:00 p.m. - 4:30 p.m.
Open to: Pumpers who use a luer-lock pump
Audience Size: Maximum 15 participants

Roche Insulin Delivery Systems Inc, a global leader in diabetes care, is offering a unique opportunity to test a new infusion set concept. This hands-on experience will allow you to experience the latest developments in infusion set design and review materials associated with this new product. Insulin pump wearers using a universal luer-lock are encouraged to join this exciting focus group.

 

The Artificial Pancreas Project
Company: Animas/JDRF
Location: Crystal M
Time: 3:00 p.m. - 4:30 p.m.
Open to: Families living with type 1 for at least six months
Audience Size: Maximum 50 participants

Work on the Animas-JDRF artificial pancreas program has begun and feedback from the intended users is needed. Here's your chance to offer feedback on your would expect the artificial pancreas to look and feel like as well as providing input into the user-device interface.
This focus group is full

 

First Timers Reception
Company: Sanofi Aventis
Location: Crystal G
Time: 3:00 p.m. - 4:30 p.m.
Open to: Families new to Friends for Life

My, there are a lot of people at this conference! This is a little scary! How will we ever meet anyone? Come to the First-Timers Reception, sponsored by Sanofi-Aventis, to meet Jeff Hitchcock and Laura Billetdeaux and hundreds of other family members who are new to CWD conferences. Learn about 'the flow' of the conference, how meal and snack times work, what to do about getting your children to childcare and sessions, and what to do at the park on Saturday. This is very casual and social. Snacks and beverages will be served. If you are new to CWD conferences, please don't miss this! If you are a CWD Teen (first timers and veterans), please come to the Teen Reception (same time) in Crystal J.

 

Teen Reception
Company: Children with Diabetes
Location: Crystal J
Time: 3:00 p.m. - 4:30 p.m.
Open to: All teens, including first timers

All teens, first timers and veterans, with or without diabetes, should come to the Teen Reception. You'll meet the Teen Faculty Leaders and Staff, review the schedule for Thursday and Friday, and learn what is expected of you — especially important so you can enjoy Friday’s Day at EPCOT!



Photo Grand Opening Ceremony
6:00 to 9:00 pm in Exhibit Hall - Cypress Ballroom 2 and 3
Sponsored by Roche Diagnostics
Photo

  Friends for Life 2010 Conference and Expo  
  Introduction - Program Overview - Exhibitors - Sponsors  
  Faculty - Youth Faculty - Grandparents Faculty - CWD Staff  
  Schedule: Parents & Adults - Youth - Focus Groups - Focus Groups Signup  
  Registration - FAQs  
  FFL Reports from 2009 - 2008 - 2007 - 2006 - 2005 - 2004 - 2003 - 2002 - 2001  



                 
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Last Updated: Saturday May 01, 2010 12:22:04
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