The Conference Faculty
Marc H. Blatstein has had Type 1 diabetes since age 10 and he is now 51 years young. Marc has spent the last 16 years traveling the U.S. and Israel teaching the Can Do attitude of winning with diabetes. He is the past president of the Juvenile Diabetes Research Foundation in Philadelphia, and serves on the State of Pennsylvania Diabetes Control Panel. Marc has been a follower of progressive diabetes and other therapies as long as he can remember. He has worn an insulin pump for the past 9 years and has followed alternative medicine since the mid 1980's. Marc is president of a 25 year old Alternative Medicine non profit foundation. His hobby is Taekwon Do. He competed in an international TaeKwon Do tournament last November in Mar Del Plata, Argentina and took 3rd place against men 10 years his junior. Marc not only speaks about "Winning and the Can Do's of Diabetes," he lives it!
Stuart Brink, M.D. is a board certified pediatric endocrinologist and an Associate Clinical Professor of Pediatrics at Tufts School of Medicine in Boston, Massachusetts. Dr. Brink is the current Educational Chair for the International Society for Pediatric and Adolescent Diabetes (ISPAD). He lectures and writes internationally and nationally about tight control, insulin analogs, insulin pumps, inhaled insulin, and all other aspects of diabetes treatment, camping, and psychosocial issues.
Crystal C. Jackson is a Paralegal/Legal Advocate of the American Diabetes Association's National Office in Alexandria, Virginia. Crystal is one of the Association's valuable resources on civil rights and anti-discrimination laws as they apply to individuals with diabetes. She advocates for individuals who face discrimination by their school or employer because of their diabetes. Crystal is also the parent of a child with diabetes and was instrumental in the successful passage of school diabetes care legislation in Virginia and a procurer of an agreement between the Office of Civil Rights (U.S. Department of Education) and her daughter's school district that resulted in improved standards for the care of students with diabetes by public school systems. Crystal is a panel member of the National Diabetes Education Program School Initiative and the Virginia Diabetes Council. She is also the Health Chair for Hunt District Virginia PTA.
Kathy Jensen, R.D., C.D.E. is Founder of the Diabetes Wellness Network International, Inc., and President of Nutritional InPut, LLC. She is a Registered Dietitian and Certified Diabetes Educator. Her goal in creating the new Managing Diabetic Hypoglycemia video was to provide accurate, available and affordable diabetes education for families whose lives are touched by diabetes. Being the mother of two boys, ages 16 and 12, gives her a practical, down-to-earth approach to implementing the practice of good diabetes management. Her oldest son was diagnosed with Type 1 diabetes in August, 1999 and her sister has been diabetic for 10 years.
Lois Jovanovic, M.D. is Director and Chief Scientific Officer at the Sansum Medical Research Institute, Santa Barbara, California. Currently she leads research in the field of diabetes and pregnancy, and Islet Cell Transplantation for the treatment of diabetes. Her work in the field of diabetes and pregnancy has become the mainstay of therapy for all diabetic pregnant women. Because of her research, diabetic women now have the same chances as a non-diabetic woman to have a healthy infant. Her contributions to the literature in the field of diabetes include 126 primary articles, 203 reviews and 20 books. She is engaged in a vigorous attempt to utilize islet cell transplantation to improve the lives of persons with diabetes.
Francine Kaufman, M.D., Head, Division of Endocrinology and Metabolism, Children's Hospital, Los Angeles, and Professor of Pediatrics, University of Southern California Medical School. Dr. Kaufman is the President-Elect of the National American Diabetes Association and has authored over 100 articles on diabetes and abnormalities of sugar metabolism in children and youth. She has been an NIH-funded investigator since 1980, and has investigated many aspects of diabetes, including diabetes prevention. Dr. Kaufman has a trademark on the Insulin Dosage Slide Scale and recently authored and evaluated a CD-ROM teaching/game module for young children with diabetes.
Norma Sue Kenyon, Ph.D., is an Associate Professor of Medicine, Microbiology and Immunology at the University of Miami School of Medicine. Dr. Kenyon is also the Associate Director of Research and Program Development, Director of Pre-Clinical Islet Transplantation and Co-Director of the Cell Transplant Center at the Diabetes Research Institute. She is the first recipient of the Martin Kleiman Investigator Award. Dr. Kenyon's specialty is transplant immunology. The sudden and dramatic onset of type 1 diabetes in her 14-month-old daughter prompted her return to the DRI in 1994. Dr. Kenyon's primary area of research centers around the delineation of islet cell transplant protocols which lead to long-term acceptance of donor islets, with the ultimate goal of defining strategies to achieve a state of donor specific tolerance. She is a member of the American Diabetes Association, the International Pancreas and Islet Transplant Association, the American Society of Hematology, and the Cell Transplant Society.
Cynthia Penaranda, R.D., C.D.E. is a Registered Dietitian and Certified Diabetic Educator currently working for the Community Education Program at Sun Health, Inc. in Sun City, Arizona. With Master's degrees in adult education and nutrition, Cindy has been a dietitian for nine years and has worked in both hospital dietetics and long-term care. In her current position with community education, Cindy provides diabetic counseling, coordinates two diabetic support groups and has recently begun working as an insulin-pump trainer. Earlier, she served as a Peace Corps Volunteer in Chile.
William Quick, M.D., F.A.C.P., F.A.C.E., C.D.E. is Associate Director for Pharmacovigilance, Aventis Pharmaceuticals, Bridgewater, NJ, with responsibility for drug safety for their insulins and other diabetes products. Dr. Quick serves as Medical Director of Children with Diabetes and Diabetes123. A nationally-recognized expert in diabetes education, Dr. Quick is a past president of the American Association of Diabetes Educators and has been involved with computers since he purchased his first Apple II in 1979. He has been a specialist in diabetes care and endocrinology for over 25 years.
Richard Rubin, Ph.D., C.D.E., Psychologist, Private Practice, Baltimore, and Associate Professor in Medicine and Pediatrics, Johns Hopkins School of Medicine, Baltimore, Maryland. Author of Psyching Out Diabetes and Sweet Kids, Dr. Rubin is a sought after speaker for both professionals and people living with diabetes. He speaks with authority and warmth on the human side of diabetes.
Barb Schreiner, R.N., M.N., C.D.E. is a clinical nurse specialist and the associate director of the Diabetes and Endocrine Care Center at Texas Children's Hospital in Houston. She has worked with children and families with type 1 diabetes for over 25 years and is a popular speaker on issues related to children with diabetes. Barb loves finding new ways to teach families about diabetes and its care. She has 20 years experience working with diabetes camps, support groups, and family retreats. Her interactions with children and parents are fact-based and whimsical, interactive and touching.
Stephanie Schwartz, R.N., M.P.H., C.D.E., Clinical Nurse Specialist, Diabetes123, Hillsborough, New Jersey. A specialist in diabetes care and education for many years, Ms. Schwartz is the Associate Editor of Children with Diabetes, and coordinates the publication of questions sent to the Diabetes Team for Diabetes123 and Children with Diabetes. She has been an officer and member of the Board of Directors of the American Association of Diabetes Educators and has been a member of the Committee on Education Program Recognition of the American Diabetes Association.
John Walsh, P.A., C.D.E. is a Physician Assistant and Diabetes Clinical Specialist who has provided clinical care to thousands of people with diabetes. John is well-known for his best-selling books on type 1 diabetes, Pumping Insulin: Everything You Need For Success With An Insulin Pump (3rd Edition) and Stop The Rollercoaster. An insulin pump wearer for 18 years, John has started and followed over 400 people on pumps. He is a popular presenter on a wide variety of diabetes topics and has been a frequent guest on radio and TV programs. His interests include identifying and providing clinical care for patients at risk of developing diabetes complications, stabilizing and reversing those complications, and enhancing blood sugar control through innovative methods.
Hope Warshaw, M.M.Sc, R.D., C.D.E., currently applies more than twenty years of nutrition counseling in her work as a diabetes and nutrition consultant, media spokesperson, freelance writer and diabetes educator. Hope has gained credibility and become widely recognized through her consumer and professional publications and volunteer professional activities. Hope has written numerous best-selling books, including Diabetes Meal Planning Made Easy and The American Diabetes Association Guide to Healthy Restaurant Eating.
Parent Discussion Facilitators and Presenters
Sonia Cooper, Colorado. "I currently serve as President of the CWD Foundation. My sister was diagnosed with type 1 diabetes 20 years ago, and my son was diagnosed at 20 months old. He uses an insulin pump and a Glucowatch biographer. We are thankful for our team at the Barbara Davis Center led by his doctor, H.Peter Chase, M.D. Our other two children have actively participated in prevention trials. I feel very fortunate to have been involved with Children With Diabetes since it was a very new web site and to have the great privelege of knowing the family that created this website, the Hitchcocks. I enjoy volunteering for the Children With Diabetes Foundation. I also volunteer for the JDRF and serve on their research Lay Review Committee where I have the opportunity to review the latest and best diabetes research and have the opportunity to meet the very best researchers in the field."
Sandra J. Hollenberg is, first and foremost, a Grandma! When her grandson Malcolm was diagnosed with type 1 five years ago she became a passionate and inspiring advocate for all children with diabetes and dedicated herself to demystifying diabetes for children. She has written the popular "My Own Type 1 Diabetes Book" and recently opened her own website www.grandmasandy.com where her new book "My Own Book About Pumping" and educational games are available for free downloading. Her latest endeavor is hosting a monthly online chat at the Diabetes Station. "Grams and Gramps" is a forum for and about grandparents of children with diabetes.
Tom Karlya has been in the diabetes battle since 1992 when his daughter, Kaitlyn, was diagnosed at the age of 29 months. He presently is the Senior Development Director for the Diabetes Research Institute from the University of Miami Medical Center and handles the northeast part of the US with his office out of Manhattan. He also is an actor who appeared at the Kennedy Center, Washington DC in Summer of the 17th Doll, and for 12 years he was part of the New York Company of Tony 'n Tina's Wedding. He has been on Current Affair; Access Hollywood; Entertainment Tonight and virtually every other television magazine show. On Television he has also appeared in NYPD Blue; Spin City; The Bill Cosby Show, Unsolved Mysteries; America's Most Wanted; Law & Order and numerous commercials. He has just finished his first novel entitled Code 13, but they don't Fall Down and is currently working on a feature film about a child with diabetes. He is from Long Island where he lives with his wife, Jill and their three children; Bobby age 5, Kaitlyn age 10 and T.J. Age 13.
Rita Martin-Crowley and Dan Crowley, New York. I am an attorney in New York, and my husband, Dan, works for a large corporation in the city. We have two daughters, Colleen (8) and Claire (12). In my spare time, I am President of the Mothers' Club at my daughters' school. Colleen was diagnosed with diabetes in October 1997 and has been on an insulin pump since May 2000. For a year, we coped with diabetes on our own, then we found the Children With Diabetes website. The information, sharing, love, support, and friendship has meant the world to our family. The fact that Colleen is now a 'pump girl' is a direct result of the information we received from the Children With Diabetes website. Our family was thrilled to attend Orlando 2000 and last year's 2001 conference in Disney World, and finally meet our web family in person!
Kari Rosenfeld, Oregon. Take it from a Mom who has "been down the road" with diabetes -- literally! Kari and Clare (National Youth Advocate 2000 for the ADA) have traveled over 100,000 miles sharing with kids how to take good care of their health and empowering them to get involved in finding a cure for diabetes. From raising an "over-achiever" to "making our family fair" with siblings, Kari has practical experience and down-to-earth and sometimes humorous tips on family life with diabetes.
Alicia Toledano Shekter and Lee Shekter, Rhode Island. Alicia is an Assistant Professor at Brown University in Providence, which we call home. Lee is a scientist at a pharmaceutical company who uses computers to design new drugs. We have two wonderful boys: Dylan (2) and Jacob (4). Jacob was diagnosed in March 2000, 2 months after his second birthday. We have found the CWD web site to be a great resource. We all had a great time at the past two CWD conferences, and we learned a lot, too - from the speakers, and from the other children and parents that we have met. We are looking forward to seeing everyone at this year's conference in Pasadena.
Barbara Singer is the Director of Administration for the Diabetes Research Institute Foundation. She and her husband were one of the five founding families of the DRIF many years ago. They started the organization six months after their two-year-old daughter, Debbie, was diagnosed with diabetes, and they continue their work in honor and memory of her life. They have two other children, one of whom developed type 1 diabetes at the age of 25. Barbara claims that the pride and joy of her life are her five "practically perfect" grandchildren.
Ellen Ullman is married to Jeffry and has two children, Zachary and Sasha. They live in Florida. Ellen works as an intellectual property paralegal. Her website is KidsRPumping.Com. Zachary was diagnosed with type 1 diabetes when he was 15 months old. Ellen's most important goal in life is to see diabetes cured. She strenuously believes it is up to the parents of children with diabetes to lead the fight and wants every parent at this conference to know that they can make a difference and help achieve that goal.
2002 Conference and Expo 2002 Conference - Highlights - Faculty
Thursday - Friday - Social Events
Sponsors - Exhibitors - Registration
Map of Attendees
Report from 2001 - Report from 2000
Last Updated: Monday December 16, 2002 09:25:08
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