From Ra'anana, Israel:
My brother, sister, and I all were born with nesidioblastosis. What is the percentage of people in the world who have nesidioblastosis?
The incidence of nesidioblastosis is about 1:50,000 live births, which means that the likelihood of three siblings in one family being affected is very small indeed and suggests some unusual pathology. The condition is now more usually referred to as PHHI or Persistent Hyperinsulinemic Hypoglycemia of Infancy, and there are two subtypes, one in which there is a diffuse hyperplasia of the insulin-producing cells and a second in which this hyperplasia is limited to a discrete area. Treatment is normally with Diazoxide, Octreotide or Calcium channel blockers or by surgery.
Original posting 26 May 2003
Posted to Nesidioblastosis
Last Updated: Tuesday April 06, 2010 15:09:46
This Internet site provides information of a general nature and is designed for educational purposes only. If you have any concerns about your own health or the health of your child, you should always consult with a physician or other health care professional.
This site is published by T-1 Today, Inc. (d/b/a Children with Diabetes), a 501c3 not-for-profit organization, which is responsible for its contents. Our mission is to provide education and support to families living with type 1 diabetes.
© Children with Diabetes, Inc. 1995-2018. Comments and Feedback.