Our son Kurt was diagnosed with diabetes at 5 weeks of age. He had started running a fever and it would not go away. The pediatrician put Kurt in the hospital where he stayed a full day before they knew what was wrong. Finally, they called Ochsner's Hospital in New Orleans and flew Kurt by helicopter to New Orleans. That had to be the scariest day of our lives.
When we got to New Orleans, the doctor told us that Kurt was very close to being in a diabetic coma and if he made it through the night he should be okay. Kurt had ketoacidosis and his blood sugar was 1354 [75.2 mmol/l] when Ochsner's took over. We spent 12 days in the hospital. When Kurt got out of the pediatric intensive care unit, we had to learn to do blood tests, give him his shots, check for ketones, along with everything else in his normal daily routine.
Well, we made it home safely and all went well medically, but emotionally, that was a different story. My heart broke when I had to give him his first shot. My tiny baby, who I had prayed for the whole time I was pregnant, was never going to be the same. We only pray now the he stays as healthy as possible.
Kurt is doing great. He has had some developmental delays. We still are uncertain if the diabetes caused them or not. Kurt is now 4 1/2 years old and has just started walking in the past year. We are so proud of him. He never complains about doing his blood tests, he would rather not get a shot, and when we go to the doctor and they take blood for tests, he hardly ever cries. His A1c tests have all been between 7.5 and 8%. Kurt is a very lovable, friendly, caring child. He started public school when he turned three and receives physical, occupational and speech therapies.
I am working with Kurt's doctor to get a support group going in the Shreveport area. If any of you are from around there, please contact me if you are interested. I would love to talk with anyone about their child and want to gain any information I can.
Anne receives e-mail at firstname.lastname@example.org.
Original posting: 24 Jan 98
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