Our child Sebastian, ago 10, was diagnosed with Type 1 diabetes almost two years ago. We have been trying to make the best of it ever since. I doubt is if this is an original story. Probably not, but all the same I want to share it with you.
I decided to write today because of problem we had at school. The main idea is what can parents do to teach teachers how to help and improve the life of a diabetic kid at school. Sebastian told us this morning, during breakfast, that he didn't want to go to school today because in one of his classes today they will prepare bonbon or candies with biscuits, dulce de leche (a kind of jam made with milk and sugar). He was afraid we will get a reprimand because he was not taking the materials required. But in order to help, I (his mother) went to school to talk to the vice-director. They decided to send him and a fellow of him, Eliana, who is a celiac, to the library to read a book. In the end, this is a way of discrimination, isn't it?
We all know how difficult is to manage kid with diabetes and mainly the diet of a kid with diabetes. I don't think it is a good idea to cook candies in a class at elementary school, 5th grade, where you have a diabetic and a celiac kids. You won't probably consider this an original story, but today I feel I need to share this with people that will surely understand my feelings.
Sebastian is our older kid, he is ten, then Delfina who is 6 and Felipe who is 18 months. Sebastian is a patient at Hospital "J.P. Garrahan," the biggest high complexity pediatric hospital here in Argentina.
Alicia receives e-mail at SAARI@rect.uner.edu.ar.
Original posting: 24 June 98
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