CWD News
TeamCWD’s Magical Miles: WDW Marathon Weekend Recap
Long before sunrise at Walt Disney World and wrapped in mylar, TeamCWD braved the uncharacteristically cold Florida temperatures to make our mark at the Walt Disney World Marathon Weekend. With 100 runners donned in TeamCWD shirts and swag and spectators ready with smiley signs, we all came together with one mission in mind: Care Today, Cure Tomorrow. It was an unforgettable weekend and we are so proud of every member of TeamCWD for the work they put in both in training and fundraising. Wednesday afternoon we gathered at the entrance of ESPN’s Wide World of Sports for a group meet-up […]
Read MoreDoes Type 1 Diabetes Impact Fertility?
Growing up with type 1 diabetes, I heard a lot from my healthcare team about the risks of getting pregnant. I was told that if I did not have an A1C less than 6%, there were many risks to the fetus and that I was more likely to have a miscarriage. When I talk to my diabetes peers who can get pregnant, they say they heard similar messaging. What was and remains unclear, however, was whether living with diabetes decreased your ability to conceive. While this topic hasn’t been widely addressed, many women I know have shared a common feeling—that […]
Read MoreWe Can Do Hard Things
In December 2024, I took my first completely solo trip. I have always been weary of traveling alone. First, I’m a whopping 5-foot-1-inch-tall woman, which causes me to feel vulnerable. Secondly, I worry about having a low where I need someone else’s help. These have held me back from certain things and I decided I am in a place in my life where I needed to overcome this fear. Fear of hypoglycemia I have always been lucky (knock on wood) when it comes to challenging lows and had someone close by to assist or just sit with me to quell […]
Read MoreDiabetes Without the Drama: How We Lightened the Load of Managing Our Health
As teenagers with diabetes, we can often feel the overwhelming challenge of trying to balance school, work, and academics, our friendships and relationships, sports and mental health all while staying on top of health routines and constant monitoring of our diabetes. Every person with diabetes has their own diagnosis story and eventually, we all get to the point where we experience burnout. Having diabetes can feel lonely, but in reality, there are people just like you experiencing the same feelings about their own diabetes. Creating healthy habits can be demanding, but when you have a support network built around you […]
Read MoreATTD Asia Recap: CWD Roars in Singapore
Ni Hao! The Children with Diabetes team just returned from our most epic travel adventure yet…Singapore, the Lion City, and the 1st Asian Conference on Innovative Therapies for Diabetes Management (ATTD-Asia). We traveled halfway around the globe to meet with clinicians, diabetes care providers, researchers, industry partners, and people with diabetes who all share the common mission of facilitating the care of people with diabetes at the fastest possible pace. So, grab your bowl of ramen soup and join us as we recap our amazing experience in Asia! The Children with Diabetes team traveled from the East Coast of the […]
Read MoreA Series of Unfortunate Pump Events
The International Society for Pediatric and Adolescent Diabetes (ISPAD) recommends using automated insulin delivery (AID) systems as the standard of care. These systems have consistently been shown to help people with diabetes achieve their glucose goals. However, no system is perfect, and each has its own challenges. Here are some common issues that arise with diabetes technologies. The weakest link: the infusion set Getting insulin into the body adequately is still the crux of any AID system or insulin pump. Many things can go wrong, from scar tissue to adhesive issues, kinked cannulas to unidentifiable absorption issues. In the DERMIS […]
Read MoreDIY Automated Insulin Delivery Systems: iAPS
Now that many commercially available automated insulin delivery (AID) systems are available worldwide, is there still a desire for open-source AID (OS-AID) systems? The short answer is yes, but what does that entail? I interviewed Dr. Rayhan Lal, a dual-trained adult and pediatric endocrinologist at Stanford University and a PWD, to understand what is available. Some background A couple of months ago, Dr. Lal suggested I start a GLP1 agonist to help reduce my lifetime renal and cardiovascular risks and slow down carb absorption. However, he was worried about starting one while using the iLet due to the inability to […]
Read MoreCWD Helps embecta Ring the Nasdaq Closing Bell
The Children with Diabetes team was honored to join our friends at embecta on November 7, 2024, as we kicked off National Diabetes Awareness Month in New York City. embecta’s vision is a life unlimited by diabetes. As a Nasdaq-listed company, embecta was given the opportunity to ring the closing bell at Nasdaq and invited several diabetes nonprofit and advocacy organizations to join in the fun! Did you know that over 400,000 people visit Times Square each day? Everyone at the event shared the vision of improving the lives of the global diabetes community and working in partnership to make […]
Read MoreSpooktacular Strategies: Celebrating Halloween with Type 1 Diabetes
When I was growing up with diabetes, the available insulins made it very difficult to incorporate sweets into the typical “diabetes diet.” I took two shots a day of NPH and Regular insulins—NPH is considered an intermediate-acting insulin, and Regular is short-acting. NPH comes in a vial, is cloudy, and requires mixing to try and make it more consistent. The Regular would cover breakfast and dinner, while the NPH would act as the basal. What is nice about this system is that you only have to take two shots a day. It’s simple and affordable. However, due to the peak […]
Read MoreGLP-1s for Type 1s
GLP-1 agonists are often called “the miracle drug” for diabetes and weight management. These medications have many benefits, including cardiovascular and renal protection, blood pressure reduction, and improvements in glucose levels. I’ve been taking the GLP-1 + GIP combination medication, tirzepatide, for the last six weeks and have learned a lot. Here are some key takeaways that may help you navigate using this medication with type 1 diabetes. Benefits for T1D There are both long and short-term benefits to using this class of medications for PWD, which often outweigh the challenges. Here are some of them, but the use of […]
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