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CWD News

Diabetes Art and Poetry

Our community is filled with people who are telling their stories – athletes, musicians, singers, and poets alike. This week, we’re shining a spotlight on some poetry and prose from our CWD community, like this poem:  I Got Diabetes. Read more from our creative community and if you have a poem in your pocket that you’d like to share, we’d love to hear from you.  

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Diabetes Studies Recruiting Now

Looking to participate in a clinical trial to help move the needle on diabetes research?  Here are some trials that are currently looking for participants: A new clinical trial, funded by JDRF, has been established to explore the combination of insulin, an SGLT inhibitor called dapagliflozin and approved for use in adults with T1D and the GLP-1 receptor semaglutide in adults with T1D. A clinical trial at the Jacobs School of Medicine and Biomedical Sciences at UB is seeking patients aged 18-65 with type 1 diabetes for a study regarding supplemental therapies. A team from Ohio University seeks parents of children […]

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Baqsimi Now in Pharmacies

The FDA approval of nasal glucagon has been a very exciting development for our CWD family, and folks in our community are starting to integrate this new option into their care plan. We were interested in hearing about insurance coverage, access, and usability, so we asked our Facebook friends about roadblocks and success stories. Most of the feedback was centered around insurance coverage, and while there were several initial denials, it seemed like the majority of respondents were approved (some after appealing the denial): “We got a two pack, no problem. Our insurance is Tricare, and we have a supplement. […]

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Recapping FFL 2019

Want to re-live a little Friends for Life magic? You can, because our official conference report is now available. From photos to session recaps, you can look back at the best of our 20th anniversary and then start making your plans to join us in 2020.  

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Join the Circle of Friends

Did you know that one of the CWD Board members is offering up a $25,000 matching gift to support this organization? Our goal is to provide world-class education and information to the diabetes community, and with your help, we can make Friends for Life a reality for more families living with diabetes. Because of Friends for Life, we’re able to connect with one another. We find ways to learn and grow with diabetes along for the ride. We restore our hope. We renew our strength. Even in the moments when we’re not together in person, the green bracelets and orange […]

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Friends for Life make vacations magic

“Most folks head home from a Disney vacation with some classic goodies: pins (of course!), mouse ears and maybe even a new ‘Lion King’ plushie. But the bag of swag for a recent group of more than 2,000 vacationers had much more. Those vacationers went home with Disney treats, along with new friends, some great education, a feeling of belonging and best of all: firsthand knowledge that they can live well despite a diagnosis of Type 1 diabetes in the family.” — from Friends for Life make vacations magic by Moira McCarthy CWD Mom and diabetes advocate Moira McCarthy wrote […]

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Baqsimi Nasal Powder Glucagon Approved by FDA

A new option for treating severe hypoglycemia has been approved by the FDA – Baqsimi nasal powder glucagon, from Eli Lilly and Company. According to the press release, “Baqsimi, which is a powder administered into the nose, will come in a single-use dispenser that can be given to someone suffering from a severe hypoglycemic episode. Baqsimi increases blood sugar levels in the body by stimulating the liver to release stored glucose into the bloodstream. It has the opposite effect of insulin, which lowers blood sugar levels.” Nasal glucagon may be a useful therapy for people who have struggled with the […]

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From Email to FFL

Did you know that Friends for Life started with one, simple email from a CWD mom? Twenty years ago, Laura Billetdeaux sent out an email with a quick query:  “Our family has a vacation planned the first week in June in Disney World. Would anyone like to come with us?”  And when 550 people showed up, they realized they were on to something. Over the last twenty years, Children with Diabetes has been celebrating and educating through our Friends for Life conferences, and on our 20th anniversary, Laura looks back back at the email that started it all …

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#FFLOrlando19

Looking to keep up with the latest from our 20th (!) Friends for Life conference next week? Follow the official hashtag #FFLOrlando19 on Twitter, Facebook, and Instagram for as-they-happen stories from FFL.

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It Happened at FFL …

“In that one moment, I knew this was where I belonged.” Julia shares a story from her first Friends for Life conference, where she found her first “diabetes moms,” and why this moment was such a game-changer for her. So many moments like this happen during the magical week that is Friends for Life. Whether you’re attending for the first time or back for your 20th conference, it’s a week that continues to inspire throughout the year. And we want to hear your stories from FFL!  Visit our new CWD Story Library to read more from your fellow Fiffles, and […]

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