Children with Diabetes®
Friends for Life®
Falls Church 2019
October 4-6, 2019
Fairview Park Marriott
Falls Church, Virginia
Slider
Falls Church 2019 Logo
icon-circle-smiley-face
Children with Diabetes presents
Friends for Life® Falls Church 2019

Join our group of world-renowned clinicians, researchers, physicians, adults, children, and families with diabetes to learn the most current information in diabetes care and support. Attend educational sessions and get cutting-edge diabetes management ideas. Participate in discussion groups, share your story, and help motivate and support others who walk in similar shoes. Watch toddlers and teens, college students and professionals, young parents and grandparents, new and practiced diabetes clinicians make new and lifelong friendships. This is a conference you'll never forget!

icon-conf-register
Join Us

We're excited to have you!

icon-conf-speakers-at-a-glance
Speakers at a Glance

Meet our world-renowned clinicians, researchers, physicians and community members.

icon-conf-conference-at-a-glance
Conference at a Glance

Learn more about our educational sessions, including cutting-edge care, management ideas, and community support.

icon-conf-photo-gallery
Photo Gallery

Catch a glimpse of past conferences

THANK YOU TO OUR GENEROUS SPONSORS

icon-circle-smiley-face

Registering for the Conference

Every conference participant needs to register for the conference

Pricing information is online on our Registration Page. Note that pricing information is on a per person basis.
Registering for the conference is a separate process from making hotel reservations – please make sure that you do both. *
*Registering for the hotel only registers you for a hotel room and registering for the conference only registers you for the conference itself.

img-reg-3-photos-left

Registration includes:

All sessions for adults and children ages 6-17, Kiddie Kove for children ages 5 and under
Friday evening reception
Saturday breakfast, lunch, and morning/afternoon beverage and snack breaks
Sunday breakfast, lunch, and morning/afternoon beverage and snack breaks
One t-shirt per person

img-reg-3-photos-right

Cancellation Policy: Cancellations prior to September 20, 2019 will be refunded minus a $25 per person processing fee. Beginning September 20, 2019, no refunds are available.

The weekend program is designed to offer a variety of educational sessions all day Saturday and Sunday. Following sessions, late afternoon and into the evening, there will be free time. During some sessions, there will be a choice of speakers. The program will end late afternoon on Sunday.

advertisement

Conference Venue

The Falls Church Marriott Fairview Park is now accepting reservations for Friends for Life Falls Church 2019. Rooms are $115/night + tax. You may reserve a room by calling 703-849-9400 or by using Marriott's online reservation system.

Please make sure to state that you are with the Children with Diabetes Friends for Life Falls Church 2019 conference. Subject to availability of group rate rooms, you may reserve guest rooms at these rates for three days prior to and following the conference. Check-in is 3:00 p.m. and check-out is 11:00 a.m. Complimentary parking is available.

Note that there is a conference registration fee per family and that reserving a room does not register you for the conference. Rates vary according to the date of registration.

Note:
Cut off for hotel reservations within the Friends for Life conference group is September 10, 2019.

Cancellation policy:
Cancellations prior to September 20, 2019 will be refunded minus a $25 per person processing fee. Beginning September 20, 2019, no refunds are available.

Exhibits & Screenings at Friends for Life®

Friends for Life® Conferences offer valuable opportunities to try products and participate in research screenings.

icon-circle-smiley-face

Should I Attend?

CWD has invited some of the top experts in the research and clinical care to share their ideas with you. In addition to the scheduled presentations, the conference faculty will be available during meals and breaks for more personalized discussion. Our faculty are very approachable - don't be shy about asking questions! This is a time to discuss anything on your mind relating to diabetes management. It's a great opportunity to network, share ideas, and interact with CWD's most wonderful and caring professionals!

avatar-p-01

"At FFL, we’re talking about what our lives are like outside of diabetes, about the life we build that includes diabetes, not built around diabetes."

Kerri Sparling
PWD since 1986
LeighFickling2016TR


"Thank you Jeff Hitchcock and Laura Billetdeaux for helping me to recharge. This weekend. These Friends for Life. This is what diabetes is all about."

Leigh Fickling
CWD Mom
TomKarlya2016TR

"Other entities may certainly offer some of that in the guise of events and camps, but when it comes to the entire family unit, few do it as well and as completely as Children with Diabetes and their Friends for Life conference."

Tom Karlya
CWD Dad
Why Friends for Life matters ...

"How can you not feel good about managing diabetes when you’re in that environment, soaking in the newest research, getting the chance to see cutting-edge technology up close, and connecting with new friends and old who just get it?"

icon-circle-smiley-face

Is this just for children and their families?

Friends for Life® began when Laura Billetdeaux asked CWD families if they wanted to vacation together. That annual gathering turned into the conference it is today, and includes T1 adults, grandparents teens, tweens and toddlers, and siblings.

But Friends for Life is not just for children. Friends for Life brings together all kinds of people impacted by diabetes, providing support and education for children, adults, caregivers, spouses, and friends. There's no limit to our community, or the inspiration you'll find there.

Thinking about attending? There's something for everyone, from the newly diagnosed family to the folks who have been living with diabetes for decades.

img-category-fai

Families & Individuals

with type 1 diabetes including toddlers, tweens, teens, and young adults, including siblings

img-category-at1s

Adult T1s

and their significant others, children, and friends

img-category-gaoc

Grandparents and Other Caregivers

who are supporting their family members with type 1 diabetes

FFL Orlando 2018 sisters

Siblings

who, even though they don't have diabetes, they still live with diabetes

SeanOserFFL2016TR

Health Care Professionals

who work with type 1 diabetes (CEUs are not offered)

I'm a T1 and a Friend for Life

" Sometimes, when days are kind of rough, I’ll put on a green bracelet to remind myself that I am not alone. "

icon-circle-smiley-face

Conference Schedule at a Glance

Day 1

FRIDAY, OCTOBER 4 - 6:00 PM - 9:00 PM

Registration and Reception / Exhibits Open
Registration Opens at 6:00 — Exhibits and Food Open at 7:00

Day 2

SATURDAY, OCTOBER 5 - 8:00 AM - 5:00 PM

Buffet breakfast, numerous presentations, buffet lunch & refreshment breaks throughout the day. Youth events all day. Dinner on your own. 

Day 3

SUNDAY, OCTOBER 6 - 9:00 AM - 4:00 PM

Buffet breakfast, numerous presentations, buffet lunch & refreshment breaks throughout the day. Youth events all day. 

advertisement
icon-conf-speakers-at-a-glance

Faculty, Experts & Youth Staff

CWD has invited some of the top experts in the diabetes community to share their experience and wisdom with you. In addition to the scheduled presentations, the conference faculty will be available during meals and breaks for more personalized discussion. Our faculty are very approachable - don't be shy about asking questions! This is a time to discuss anything on your mind relating to diabetes management. It's a great opportunity to network, share ideas, and interact with CWD's most wonderful and caring professionals!

FACULTY

Faculty
Arthur Ainsberg is a writer and a Wall Street executive. A veteran of the financial services industry, Mr. Ainsberg has served in senior management and consulting roles at Oppenheimer, Odyssey Partners, and Morgan Stanley. Mr. Ainsberg is also a scholar on the Endurance, the early 20th century expedition to Antarctica by Sir Ernest Shackleton. In 2008, he published his first book, Shackleton: Leadership Lessons from Antarctica, which highlights the most important leadership lessons to be learned from Shackleton’s story. Mr. Ainsberg speaks and lectures frequently on the lessons of Shackleton’s nearly 17 months at sea, including nearly 15 months stranded on an ice island. Mr. Ainsberg has experienced his own medical challenges, having been diagnosed in 1975 at the age of twenty-eight with Hodgkin’s Disease. At the time of his diagnosis, doctors had only recently developed a method of treatment that could cure the disease. His interest in medicine, born from personal experience, combined with his love of history, set him on the path to writing his book: BREAKTHROUGH: Elizabeth Hughes, the Discovery of Insulin, and the Making of a Medical Miracle, which St. Martin’s Press published in September 2010. Mr. Ainsberg continues to work in the financial sector. He is currently a member of the Board of Directors of Medley Capital Corp. and AG Mortgage Investment Trust. In 2009, Mr. Ainsberg was named the Chief Operating Officer for the Lehman Brothers Inc., In Liquidation Bankruptcy, which represents the largest and most complex bankruptcy in American history. A widely recognized securities expert witness, Mr. Ainsberg has testified in a number of securities fraud cases on issues involving due diligence, regulatory compliance, suitability, valuation, and securities damages. Mr. Ainsberg received his BBA and MBA degrees in accounting and finance, respectively, from Baruch College and was a member of its Board of Trustees from 1995-2011. An avid traveler, Mr. Ainsberg has visited all fifty states and seventy-four countries on seven continents. He has also visited every baseball stadium and presidential museum in America. He currently resides in New York City, where he was born, educated, and has spent his entire career.
Faculty, Young Adult Program Staff

Diagnosed at age eight, Sam Billetdeaux has always been determined not to let diabetes get in the way of his ambitions. While those ambitions have changed over the years, the determination hasn’t. Sam lives in Brooklyn with his girlfriend Grace – who leads the Tween program – and enjoys the proximity of many CWD friends for life. He enjoys running, going to the dog park, and seeking out the best pizza/ramen/coffee/brunch in New York! Sam is a graduate of the University of Michigan and the Institute of Culinary Education.

Faculty, Tween Program Staff

Amanda Borges is a Miami, Florida native who moved to New York in 2011 to attend New York University’s Film and Television Production program. Since Graduating in 2015, she now works at NBCUniversal’s Bravo Network, and lives in Brooklyn with her husband Ben Stroud, who was diagnosed with T1 Diabetes in 1998. Amanda works with the Tween Staff, and will be assisting with the Docu-Diabetes project.

Faculty

An award-winning registered dietitian, certified diabetes educator, and chair of the Diabetes Care and Education Practice Group of the Academy of Nutrition and Dietetics, Constance Brown-Riggs, MSEd, RD, CDE, CDN, is the author of the Diabetes Guide to Enjoying Foods of the World and The African American Guide to Living Well With Diabetes, which received the Favorably Reviewed designation from the American Association of Diabetes Educators. Learn more about her work at www.constancebrownriggs.com and follow her on Twitter and Instagram @eatingsoulfully and FB @LivingWellWithDiabetes.

Faculty

Edward Damiano, PhD, is Professor of Biomedical Engineering at Boston University (BU) and President & CEO of Beta Bionics. His educational training is in the areas of biomedical and mechanical engineering as well as applied mathematics. Over the years, his lab at BU, and at the University of Illinois before that, has been engaged in basic scientific research that combines aspects of fluid dynamics, solid mechanics, and intravital microscopy to study the biomechanics of the inner ear and blood flow in the microcirculation. In addition to his basic science research, he has also committed himself to building a bionic pancreas for type 1 diabetes (T1D). Ever since his 20-year-old son, David, was diagnosed with T1D in infancy, he has set his sights on creating and integrating autonomous, intelligent systems for automatically regulating blood glucose levels in diabetes and with a vision of building a bihormonal (insulin and glucagon) bionic pancreas that David could have in college. He and his engineering team at BU began conducting experiments testing an early prototype of their bionic pancreas running on a laptop computer in diabetic swine in 2005 and then progressed with their clinical collaborators at the Massachusetts General Hospital through in-patient trials in adults and adolescents with T1D from 2008–2012. From 2013–2018, his team at BU and clinical collaborators conducted over a dozen home-use clinical trials in adults and children with diabetes (and other chronic conditions of glycemic dysregulation) testing a mobile version of their bionic pancreas, which ran on an iPhone and wirelessly controlled one or two insulin pumps. With nearly $2.5 million in donations from over 1,000 gifts from the T1D community in 2014 and 2015, his engineering team at BU, along with their contract manufacturers, began building the first fully integrated bihormonal bionic pancreas that does not rely upon smartphone technology. They called their device the iLet, in homage to the pancreatic islets of Langerhans. At the end of 2015, the iLet and associated technology was licensed to Beta Bionics, Inc., a Massachusetts Public Benefit Corporation that plans to commercialize the bionic pancreas for people with diabetes and other disorders of glycemic dysregulation. The first home-use clinical trial of the iLet was conducted in adults and children with T1D between May and October 2018. Three additional home-use clinical trials testing the iLet have been conducted in 2019. In collaboration with Damiano’s lab at BU, and 16 clinical sites across the US, Beta Bionics plans to begin final clinical (Phase 3) trials testing the iLet in 2020 and seek FDA approval of the device for commercial distribution in the US in late 2020.

Faculty, Young Adult Program Staff

Collector of Orange and Green Wristbands, Leigh Fickling is the Executive Director of the Disability Management System at Duke University and Health System. With over 20 years of higher education administration experience, Leigh is an expert in college and workplace accommodations for individuals with disabilities. As a former solo legal practitioner, Leigh’s law firm specialized in education law, disability law, and family law. Leigh is the mom to twins, Ava (green band) and Davis (orange band), and can most often be found in the FFL hallways shouting, “SLOW DOWN!” Leigh feels that FFL is the number one most important tool in her diabetes tool kit and can’t imagine trying to dia-beat-this without the strong support from her friends for life. FFL Conferences are the highlight of the year for the Fickling family and they can’t wait to welcome new and returning families into their circle of friends! #greenandorangeforlife

Board of Directors, DTeam, Faculty, Occasional Experts, Treasurer

George Huntley is the Chief Operating Officer and Chief Financial Officer of Theoris Group, Inc., a professional services and software company based in Indianapolis, Indiana, with offices throughout the US and Europe. He has been living with type 1 diabetes since 1983 and has been an active volunteer in the fight against diabetes since 1986. George has held many leadership roles with the American Diabetes Association including Chair of the National Board of Directors. George is a founding member and current officer of the National Diabetes Volunteer Leadership Council, a 501c3 organization dedicated to patient advocacy to improve the quality of life for people living with diabetes. George also serves on the board of Children with Diabetes.

Faculty

Maureen Monaghan, PhD, CDE, is an Assistant Professor of Psychology and Behavioral Health at Children’s National Health System and George Washington University School of Medicine in Washington, DC. A licensed clinical psychologist and a certified diabetes educator, Dr. Monaghan has worked for over a decade providing behavioral health care as part of the Child and Adolescent Diabetes Program at Children’s National. Her clinical and research work focuses on helping youth with diabetes and their parents adjust and adapt to new settings and manage their daily medical regimen, while also promoting optimal quality of life. Dr. Monaghan is particularly interested in working with adolescents and young adults and their diabetes care providers to facilitate a smooth transition from pediatric to adult diabetes care.

Faculty, Physician

Sean M. Oser, MD, MPH, was diagnosed with type 1 diabetes just before starting college. Through medical school, graduate school, and residency, as well as through marriage, parenthood, and his professional career, he has learned to make diabetes work at each step along the way. His daughter was diagnosed with type 1 diabetes at age seven and, since then, he and his wife, Tamara Oser, MD, have discovered Children with Diabetes and other parent and family groups. CWD and its programs have motivated him to join the diabetes online community as well, where he blogs less frequently than he would like to at t1works.blogspot.com. He is currently Associate Professor of Family and Community Medicine at Penn State University College of Medicine and Associate Chief Medical Officer at Penn State Hershey. As medical director of Penn State Hershey’s Camp Hill primary care practice, he led that site to the National Committee for Quality Assurance’s highest level of recognition as a Patient Centered Medical Home, providing patient-centered, team-based, comprehensive care. He has also helped lead Penn State Hershey’s successful efforts to develop and implement their fully functional electronic health record and to help harness the power of technology in providing high quality, longitudinal care and enhanced communication with patients. Dr. Oser also is active in diabetes research, examining the role of social media in peer-to-peer support.

Faculty

Tamara Oser, MD, is Associate Professor of Family and Community Medicine at Pennsylvania State University College of Medicine and Residency Research Director for Penn State Hershey Family and Community Medicine. She is active in clinical practice, teaching both medical students and residents, and in medical education research. One of her major areas of focus is the patient doctor relationship. She has ranked in the ninety-ninth percentile nationwide for patient satisfaction and was recently named to the Best Doctors® in America. Dr. Oser is a Physician Scientist whose research focuses on supporting newly diagnosed T1D families, T1D peer-to-peer support through social media, exercise in Adults with T1D, and the unique experience of raising a child with both T1D and autism. She is wife to Sean Oser, MD, who has lived with type 1 diabetes for over 25 years, and is mom to twins Courtney and Jessica (age 16). Jessica was diagnosed with type 1 diabetes at age seven. She has seen firsthand that although there are challenges, diabetes is also her husband’s and daughter’s greatest strength. She blogs her family’s life with type 1 diabetes at t1family.blogspot.com.

Board of Directors, Faculty

R. Stewart Perry grew up in Lexington, Kentucky. Since 1983 he has been the co-owner of Perry & Perry State Farm Insurance, one of the largest State Farm Insurance agencies in the state of Kentucky and is a Diabetes Consultant and Advocate. Stewart’s family has been dramatically affected by diabetes. His son has type 1 diabetes, both parents, and sister have all had diabetes during their lifetime. He has lost an uncle, grandfather and great grandmother to complications of diabetes. Stewart was diagnosed with type 2 diabetes in 1990. Since that time, he has been actively involved in the American Diabetes Association. Stewart was the Chairman of the National Board of Directors and Chair of the National Advocacy Committee for five years, He was Chair Bluegrass Chapter for a number of years and helped organize many of the fundraising events still in existence. He served as the Kentucky Affiliate Board of Vice-Chair and was Chair-Elect when it became a part of the Southern Region where he served as the Chair of the Southern Region. He also is a former member of the National Board of Directors. He is the State of Kentucky State Advocacy Chair for ADA. Stewart is a member of the Kentucky Diabetes Network and a founding member of the Fayette County Diabetes Collation. Stewart was appointed by two different Governors of Kentucky to the GET FIT KY Board and The Diabetes Research Trust Fund Board where he currently still serves. Stewart is one of the founders of the National Diabetes Volunteer Leadership Council and currently serves as an officer of that organization, where he has been instrumental in passing Diabetes Action Plan legislation in 18 states over the past four years. Stewart serves on the board of Children with Diabetes.

Faculty, Young Adult Program Staff

Matthew Point, MS, is a Development Manager for the Eastern PA Chapter of JDRF International. Prior to joining JDRF International, Matt worked in higher education administration and, he holds a Bachelor’s in Spanish and a Master’s in Higher Education. As part of his role on campus, he managed special accommodations for housing and dining plans for students with disabilities or dietary restrictions, and he was also responsible for all on-campus emergency management. Matt began attending CWD events in 2013 to support his partner, Brian, who has type 1 diabetes. Matt looks forward to attending every conference, specifically to see all of his “type 3” friends (significant others of people with type 1) and to learn about new technology.

Faculty

Toni Pollin, MS, PhD, CGC, is a human geneticist, board certified genetic counselor, and leader of a PhD/MS graduate program in Human Genetics at the University of Maryland Baltimore. She educates graduate, medical, and genetic counseling students as well as practicing providers about the genetics of diabetes and other common, complex diseases. She has authored or co-authored over 100 publications, and her current research program consists of three main areas: (1) using analytical tools to identify genes and genetic variants involved in susceptibility and response to treatment and preventive intervention for type 2 diabetes and related traits in the Amish, the Diabetes Prevention Program (DPP) and Treatment Options for Type 2 Diabetes in Adolescents and Youth (TODAY) Study; (2) elucidating the function of apolipoprotein C-III and cardioprotective and metabolic effects of its deficiency through deep phenotyping of carriers of the first known null mutation in the APOC3 gene which she discovered in 2008; and (3) integration of genomic medicine into health care, particularly with respect to monogenic diabetes. In this latter area, she led the Personalized Diabetes Medicine Program (PDMP), an NHGRI-funded IGNITE (Implementing Genomics in Practice) Network Project designed to develop, disseminate and evaluate a sustainable approach to the detecting, genomically diagnosing and promoting individualized therapy for individuals with monogenic forms of diabetes and a cross-NHGRI payer/stakeholder engagement effort. She now works with patients, providers, and researchers to work toward universal access to diagnosis and individualized treatment for monogenic diabetes in the Monogenic Diabetes Research and Advovacy Project (MDRAP). She also leads the NICHD-funded ClinGen Genomic Clinical Variant Expert Curation Panel for Monogenic Diabetes, which complements the PDMP in addressing the underdiagnosis of highly genetic forms of diabetes in which a molecular diagnosis is critical for receiving appropriate treatment. Finally, she is a co-investigator in RADIANT, the NIDDK-funded Rare and Atypical Diabetes NeTwork.

Faculty, Grandparents Faculty

Janet Rodriguez, BSN, RN, CDE, a former Pediatric ICU nurse, leads the Diabetes Technology Education group at the USF Diabetes and Endocrinology Center in Tampa, FL. She is an insulin pump and CGM specialist and a certified diabetes educator, caring for pediatric and adult patients. She is a certified trainer for all commercially available insulin pumps and continuous glucose monitors and she coordinates research in adoption of diabetes technologies and hybrid closed-loop insulin pump systems. She actively participates in diabetes education of school personnel and she is a longtime supporter of diabetes camps.

Faculty, Grandparents Faculty

Henry Rodriguez, MD, is a highly regarded pediatric diabetologist and collaborative type 1 diabetes clinical researcher who led the Indiana University (IU) DPT-1 Regional Recruitment Center and served as the highly successful IU TrialNet Clinical Center’s Clinical Director for 10 years. He joined the University of South Florida College of Medicine in 2010 as a Professor of Pediatrics and Clinical Director of the USF Diabetes Center. He has led expansion of clinical, educational, and clinical research activities at USF including the launch of the USF T1D Exchange Clinical Center, establishment of the USF TrialNet Clinical Center, and partnering with industry in investigating novel therapies in type 1 and pediatric type 2 diabetes. Dr. Rodriguez is the Protocol Chair for the NIH-funded TrialNet Pathway to Prevention Study and serves on numerous TrialNet committees. He is co-chair of the ADA Safe at School Working Group, co-chair of the Diabetes Advocacy Alliance and has been a longstanding volunteer with JDRF and a staunch supporter of diabetes camps. He has also been the member of working groups addressing insulin pump therapy in children and the transition of young adults from pediatric to adult diabetes care providers. His clinical and research foci are the improvement of lives impacted by diabetes while pursing prevention and a cure.

Faculty

Gary Scheiner, MS, CDE, is owner and Clinical Director of Integrated Diabetes Services, a practice located just outside of Philadelphia specializing in intensive insulin therapy and advanced education for children and adults. He and his staff provide consultations throughout the world via phone and the internet. Gary is a Masters-level exercise physiologist. He has been a Certified Diabetes Educator for 19 years, and served as the 2014 Diabetes Educator of the Year. He has had type 1 diabetes for 30 years and makes personal use of insulin pump therapy and CGM. Gary has written dozens of articles for diabetes trade publications and six books, including the popular Think Like A Pancreas – A Practical Guide to Managing Diabetes With Insulin. He lectures nationally and internationally for people with diabetes as well as professionals in the healthcare industry. In addition to serving on the faculty of Children With Diabetes and the Board of Directors for JDRF, Gary volunteers for the American Diabetes Association, Diabetes Sisters, and Setebaid Diabetes Camps. Gary has been happily married for 25 years and has four wonderful kids. A fitness fanatic, he enjoys playing basketball, running, cycling and cheering on his Philadelphia sports teams.

 Denotes faculty or staff with diabetes

Highlights from Past FFL Conferences