I would like to know more about Primary Lactic Acidemia. My son was diagnosed with hypoglycemia several months ago. He is also lactose intolerant, and I was told that there’s a great chance that he is fructose intolerant. His gastroenterologist told me that he will perform the breath test on him when he’s about 3 years old. He is 21 months right now. His older sister is fructose intolerant (she is seven years old).

For the best resources on Primary Lactic Acidemia, I would suggest starting by contacting the National Organization of Rare Diseases and the Organic Acidemia Association listed below. Your physician should also be able to direct you to more resources that may prove beneficial to you.

National Organization for Rare Disorders, Inc. (NORD)
P.O. Box 8923
New Fairfield, CT 06812-8923
Telephone: (203) 746-6518
Fax: (203) 746-6481
Toll free: (800) 999-6673
TDD: (203) 746-6927
e-mail: [email protected]
Home Page: http://www.rarediseases.org

Organic Acidemia Association
13210 35th Avenue North
Plymouth, MN 55441
(763) 559-1797
e-mail: [email protected]
Home Page: http://www.oaanews.org

MSB