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Upcoming CWD Conferences and Events
Reports from recent CWD conferences & events:
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Marco Island,
Minneapolis,
Toronto,
Orlando,
La Jolla,
New York,
Quilt D.C. 2006
Upcoming CWD Conferences and Events
Headlines
Families coming to CWD's Friends for Life: Orlando 2008 conference have a choice of 44 Focus Groups on Wednesday, July 23rd, as well as six receptions. Read the focus group descriptions and sign up for the focus groups you want to attend. Focus group registrations are first come, first served, and many focus groups fill up very quickly.
dTOEs: Second Edition by Kerri Morrone will make you laugh.
Children 9-12 with diabetes can apply to participate in "Insulindependence ironKiDz" which includes a six-month, personalized diabetes mentorship program, a canoe trip in Wisconsin in the days leading up to the Ironman Wisconsin race, and race day participation by supporting their mentor and ceremoniously crossing the finish line hand-in-hand.
Towards an Artificial Pancreas: An FDA-NIH-JDRF Workshop will be held on July 21 and 22, 2008, at the Lister Hill Auditorium on the NIH Campus in Bethesda, Maryland. The workshop is open to the public.
Families from Florida are encouraged to take a few minutes to complete an online survey by the American Diabetes Association about diabetes care in school.
Vitamin D Supplementation in Early Childhood and Risk of Type 1 Diabetes: a Systematic Review and Meta-analysis. See also Vitamin D Lowers Diabetes Risk and Extra Vitamin D In Early Childhood Cuts Adult Diabetes Risk.
Nocturnal hypoglycaemias in type 1 diabetic patients: what can we learn with continuous glucose monitoring?
Nocturnal hypoglycaemia in Type 1 diabetic patients, assessed with continuous glucose monitoring: frequency, duration and associations.
Defective Awakening Response to Nocturnal Hypoglycemia in Patients with Type 1 Diabetes Mellitus. Free full text available in PDF format.
Awakening from Sleep and Hypoglycemia in Type 1 Diabetes Mellitus. Free full text available in PDF format.
Continuous subcutaneous insulin infusion leads to immediate, stable and long-term changes in metabolic control.
In Type 1 diabetic patients with good glycaemic control, blood glucose variability is lower during continuous subcutaneous insulin infusion than during multiple daily injections with insulin glargine.
Continuous subcutaneous insulin infusion therapy: effects on quality of life. Free full text available in PDF format.
Prediction of Severe Hypoglycemia.
Subcutaneous glucose sensor values closely parallel blood glucose during insulin-induced hypoglycaemia.
Strong association between time watching television and blood glucose control in children and adolescents with type-1 diabetes mellitus.
Every family is encouraged to download a copy of Helping the Student with Diabetes Succeed: A Guide for School Personnel from the web site of the National Diabetes Education Program, a joint program of the National Institutes of Health and the Centers for Disease Control and Prevention. If the 88-page PDF file is too large for you to download, you can request a free copy of the document by printing the order form and faxing or mailing it to the NDEP.
The ADA's Legal Rights of Students with Diabetes is an authoritative and comprehensive tool for families seeking to ensure that their children with diabetes are afforded all of their legal rights while they are at school. This document is indispensable for all families. You can download the complete PDF from the ADA web site or from the Children with Diabetes web site.
The Family Support Network now includes over 3,700 families from 50 states and 75 countries. If you're new to diabetes, the Family Support Network will help you connect with families near you or find a babysitter. If you haven't joined, please become part of the Family Support Network.
The Quilt for Life now has 616 panels. Please consider adding your panel in time for the showing on the National Mall in August 2008.
Other news and information
Clinic
Learn more about continuous glucose sensors and see Getting Started with Continuous Glucose Monitoring by Linda Mackowiak, MS, RN, CDE.
Any child who was diagnosed in their first year of life should be screened for Kir6.2 Mutations. This mutation causes an extremely rare form of diabetes that can be treated with oral medication. To learn more, see Switching from Insulin to Oral Sulfonylureas in Patients with Diabetes Due to Kir6.2 Mutations. Families in the US should contact Dr. Louis Philipson at the University of Chicago. More information is available at www.diabetesgenes.org.
Learn about Type 2 and Double Diabetes in kids.
The "Un-Tethered" Regimen by Dr. Steve Edelman offers pump users an alternative strategy by combining a pump with Lantus.
We offer diabetes care suggestions based on the current state-of-the-art in caring for type 1 diabetes.
Learn about the work of Dr. Denise Faustman.
Chats
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Support Groups
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See our CWD UK Information Section with links to UK-specific information.
See our section of photos of diabetes care in interesting places. Send in your photos to info@childrenwithdiabetes.com.
Parents report that over 3,000 schools across the US support in-classroom blood glucose monitoring. Does your child's school? Check the Schools database and add information about your child's school.
Other information about diabetes and school
Featured Book of the Week
Taking Control of Your Diabetes, Second Edition by Steven V. Edelman, MD. Professional Communications Inc., 2001. 295 pages. Softcover. US$ 14.95. ISBN 1-884735-69-X.
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Dr. Steve Edelman developed Type 1 diabetes when he was 15 years old. Taking Control of Your Diabetes embodies his philosophy of patient empowerment in the care of their diabetes. Patients can take charge, regardless of how long they've had it, and even if they have complications. Now in its second edition, this book is thorough, very well-written, and easy to read. The medical information covers everything one might need to know about taking charge, for people with both Type 1 and Type 2 diabetes. Dr. Edelman covers potential complications as well as daily care, with excellent advice on today's best practices. [Note to parents: the chapter on male impotence is very thorough.]
Taking Control of Your Diabetes includes up-to-date information about Lantus, Humalog, and Novolog, as well as insulin pump and insulin pen therapy. It even covers the MiniMed Continuous Glucose Monitoring System (CGMS) and the GlucoWatch. If you're newly diagnosed, or just looking for a good addition to your existing library of diabetes books, Taking Control of Your Diabetes belongs on the shelf of everyone living with diabetes.
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Other books for parents, adults, and older kids
Recently Featured Books
Ask the Diabetes Team
My daughter is going through many growth changes at four years of age. Why does this cause such a change in her glucose numbers? (12 May 2008)
Answers to over 18,200 questions
What's your question?
From the Diabetes Dictionary
Gastroparesis
A form of nerve damage that affects the stomach. Food is not digested properly and does not move through the stomach in a normal way, resulting in vomiting, nausea, or bloating and interfering with diabetes management. See also Autonomic neuropathy.
More definitions
Surveys and Studies
Type 1 Diabetes TrialNet is a group of studies looking at the prevention and early treatment of type 1 diabetes.
Families are Needed Who Have an Infant Under age 5 Months or a Mother in the Last Trimester of Pregnancy and a Family Member with Type 1 Diabetes are highly encouraged to participate in the TrialNet NIP study.
NYU researchers are looking for teens with type 2 diabetes or teens with a BMI over 30, aged 14-19, for a study at the NYU Medical Center. The study involves two visits to the medical center, and includes cognitive testing (memory, etc.), a blood sample, and an MRI scan of the brain. Parental consent is necessary for those under 18. All volunteers will be financially compensated $100 for their time.
Behavioral specialists at the Joslin Diabetes Center and the University of Virginia seek help from parents who have children with diabetes from ages 6 to 11.
The University of California at Irvine has a new Exercise in Teens with Type 1 study.
Clinical Trials for Newly Diagnosed Type 1 Diabetes is seeking people ages 8-30 who have been diagnosed with type 1 diabetes within the past six weeks for the AbATE Trial.
The Type 1 Diabetes Genetics Consortium is seeking families with at least 2 siblings diagnosed with type 1 diabetes prior to age 35. They are also interested in having the parents participate, as well as other siblings without diabetes. In this study, researchers will be trying to identify genes influencing an individuals risk for developing type 1 diabetes. By furthering the knowledge of these genes, the researchers hope to prevent type 1 diabetes in the future.
Adult males with type 1 diabetes are needed for a study about Benfotiamine and Complications in New York.
The University of Florida is running a study about Cord Blood and Diabetes.
A study on Autoantigen Vaccination In Human Type 1 Newly Diagnosed Diabetes Mellitus is seeking adults 18-35 who have been diagnosed with type 1 diabetes mellitus less than three months.
Other Studies
Diabetes Humor
My daughter Sarah went to a party last weekend. She was getting ready to leave and a guy called her over and asked, "So why are you wearing your garage door opener?" He actually did know what it was. It was her insulin pump.
More Humorous Tidbits
You know you're a parent of a child with diabetes when ...
... you have the coolest first grader in the entire school -- none of other children have a "beeper" and personal nurse who follows them everywhere they go.
More Parent Humor
Living With Diabetes
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Poll Results
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How many people in your immediate family have type 1 diabetes? |
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One child |
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75% |
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More than one child |
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7% |
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One parent and one child |
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3% |
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One parent and more than one child |
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0% |
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Both parents and one child |
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1% |
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Both parents and more than one child |
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0% |
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One or more adults, but no children |
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4% |
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Another relative has type 1 diabetes |
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2% |
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No relative I know has type 1 diabetes |
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4% |
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None, I'm a health care provider |
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1% |
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Other |
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1% |
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View Results & More Polls
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