Family Support Network Children with Diabetes
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     July 1, 2009 Volume 15, Number 26 First Published in June 1995     
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Living With Diabetes
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Hi, I'm Brendan and I was diagnosed with diabetes in January 2005. It's been four years now and I'm two months away from turning thirteen. When I was diagnosed I was thirsty a lot and going pee like every 20 minutes. My mom thought I had a bladder infection so she took me to the doctor. He checked my blood and did some tests and about twenty minutes later he said I have type 1 diabetes. At the time I thought it was just a virus and I was kind of happy that I got a free coloring book. But when he said I had to go to the hospital I started getting a bit scared.I stayed in the hospital for three days. My hospital experience was kind of weird because I cried when they tested my blood. I'd never do that now.

-- Visit Brendan's page
-- More children with diabetes


Upcoming CWD Conferences and Events
Orlando 2009   Friends for Life Conference and Expo
July 7-12, 2009 - Disney's Coronado Springs Resort
Lake Buena Vista, Florida
View the Friends for Life 2008 Video

UK 2009   Friends for Life UK Conference and Expo
August 14-16, 2009 - Beaumont House
Old Windsor, Berkshire, England

La Jolla 2009   CWD Focus on Technology
October 2-4, 2009 - Marriott San Diego La Jolla
La Jolla, California

Marco Island 2010   CWD Family Support Weekend
December 31, 2009 - January 3, 2010
Marriott Marco Island Resort
Marco Island, Florida

Reports from recent CWD conferences & events:
-- Chicago, Toronto, Marco Island, Bethesda, Quilt D.C. 2008, Orlando
-- More Reports & Upcoming CWD Conferences and Events


Headlines
From Diabetelogia, the journal of the European Association for the Study of Diabetes: Lantus insulin: a possible link with cancer which requires further investigation. The science and a statement from Sanofi-Aventis are freely available at that link in PDF form. See also Sanofi-aventis stands behind the safety of Lantus® (PDF), Lantus®: message from Dr. Jean-Pierre Lehner, sanofi-aventis Chief Medical Officer (video and PDFs), European Medicines Agency update on safety of insulin glargine (PDF), European Public Assessment report on Lantus (PDF), Points to consider on the Non-clinical assessment of the carcinogenic potential of human insulin analogues (PDF) from 2001, Statement from the American Diabetes Association Related to Studies Published in 'Diabetelogia', Companies counter insulin safety concerns, and Early Communication About Safety of Lantus (insulin glargine) from the FDA.

Win Jonas Brothers VIP Concert Tickets -- and Support the DRI.

Submit your diabetes story at GlucoStories for a chance to attend Charlie Kimball's race in Miami in October 2009.

A1C Champions educate and mentor youth with diabetes and their parents.

Visit Diabetes Handprint to submit the word in your hand. For every word submitted, OneTouch will donate $5 up to a maximum of $250,000 for the Diabetes Education and Camping Association (DECA) to support children's diabetes camps and to Taking Control of Your Diabetes (TCOYD) to support adult diabetes conferences. See also Annoucement about DiabetesHandprint.com and OneTouch® Teams With Online Diabetes Community To Launch Global Diabetes Handprint Project.



Vitamin D Supplementation in Early Childhood and Risk of Type 1 Diabetes: a Systematic Review and Meta-analysis. See also Vitamin D Lowers Diabetes Risk and Extra Vitamin D In Early Childhood Cuts Adult Diabetes Risk.

Nocturnal hypoglycaemias in type 1 diabetic patients: what can we learn with continuous glucose monitoring? See also Nocturnal hypoglycaemia in Type 1 diabetic patients, assessed with continuous glucose monitoring: frequency, duration and associations.

Defective Awakening Response to Nocturnal Hypoglycemia in Patients with Type 1 Diabetes Mellitus. Free full text available in PDF format.

Awakening from Sleep and Hypoglycemia in Type 1 Diabetes Mellitus. Free full text available in PDF format.

Continuous subcutaneous insulin infusion leads to immediate, stable and long-term changes in metabolic control.

Prediction of Severe Hypoglycemia.

Subcutaneous glucose sensor values closely parallel blood glucose during insulin-induced hypoglycaemia.



The Family Support Network now includes over 4,280 families from 50 states and 82 countries. If you're new to diabetes, the Family Support Network will help you connect with families near you or find a babysitter. If you haven't joined, please become part of the Family Support Network.

The Quilt for Life now has 695 panels. The next complete showing of the Quilt for Life will be at CWD's Friends for Life conference in Orlando in July 2009.

-- Other news and information


Clinic
Learn more about continuous glucose sensors and see Getting Started with Continuous Glucose Monitoring by Linda Mackowiak, MS, RN, CDE.

Any child who was diagnosed in their first year of life should be screened for Kir6.2 Mutations. This mutation causes an extremely rare form of diabetes that can be treated with oral medication. To learn more, see Switching from Insulin to Oral Sulfonylureas in Patients with Diabetes Due to Kir6.2 Mutations. Families in the US should contact Dr. Louis Philipson at the University of Chicago. More information is available at www.diabetesgenes.org.

Learn about Type 2 and Double Diabetes in kids.

The "Un-Tethered" Regimen by Dr. Steve Edelman offers pump users an alternative strategy by combining a pump with Lantus.

We offer diabetes care suggestions based on the current state-of-the-art in caring for type 1 diabetes.

Learn about the work of Dr. Denise Faustman.


Chats
Nothing scheduled this week


Support
-- Sign up for our weekly What's New e-mail newsletter
-- Parents, sign up for our Parents support mailing list
-- Grandparents, sign up for our Grandparents support mailing list
-- Share recipes
-- More mailing lists
-- Support Groups
-- Join the Family Support Network
-- Share your experiences in the CWD Forums
--  Mailing lists for readers from:
Australia New Zealand UK Finland

See our CWD UK Information Section with links to UK-specific information.

See our section of photos of diabetes care in interesting places. Send in your photos to info@childrenwithdiabetes.com.

Parents report that over 3,000 schools across the US support in-classroom blood glucose monitoring. Does your child's school? Check the Schools database and add information about your child's school.
-- Other information about diabetes and school


Diabetes Humor
It was shortly before noon and my 6 year old told me that she felt low, so she grabbed her monitor and tested her blood sugar. She announced that her blood sugar was 33 so I panicked and grabbed a glucose tablet and juice box. After I juiced her up, I tested her again to see if her blood sugar had come up and the monitor now read "HI". I checked her previous reading and the monitor read "303". I guess in her little mind's eye it read 30 3. This will be a family favorite for years to come.
-- More Humorous Tidbits

You know you're a parent of a child with diabetes when ...
... your two type 1 teens who both drive argue whoever has the best BG gets the car.
--More Parent Humor


Featured Book of the Week

[RECOMMENDED!] Smart Pumping for People with Diabetes, edited by Howard Wolpert, MD. Pubished by the American Diabetes Association. 2002. Paperback, 181 pages. $16.95. ISBN 1-58040-125-2.

Book Cover  

Smart Pumping for People with Diabetes is an excellent guide to managing diabetes using an insulin pump. Edited by Howard Wolpert, MD, the book is based on educational materials used at the Joslin Diabetes Center and is published by the American Diabetes Asssocation. Filled with dozens of charts and graphs, and written in easy-to-understand language, Smart Pumping starts with the basics of pump therapy, including how to figure out basal rates and insulin sensitivity -- essential for determining bolus amounts. Several sections are devoted to nutrition and how different foods are covered using extended boluses. There's even a discussion about how to manage with a pump should you have to go to the hospital. The only shortcoming in this book is the complete absence of references to non-ADA sources of information. There's nothing about the other books about pumping, and nothing about the Insulin Pumpers web site. If you're looking for a good, easy-to-read reference for insulin pumping, Smart Pumping will fit the bill, but it cannot be the only book in your pumping library. Recommended for anyone considering or using an insulin pump.

Order from Amazon.com Order Smart Pumping from Amazon.com
-- Other books for parents, adults, and older kids
-- Recently Featured Books


Ask the Diabetes Team
I have a family history of diabetes, but I do not have it. I have had times when my hands shook, I was agitated and craved chocolate, often after drinking Diet Coke or carbonated water. Are these beverages the cause of my symptoms? (2 Jul 2009)
-- Answers to over 18,780 questions
-- What's your question?


From the Diabetes Dictionary
First Phase Insulin Release
Release of insulin into the bloodstream from the beta cell within a few minutes after the blood glucose level rises. It is thought that this almost immediate release is due to release of insulin that was previously manufactured, and was being stored in the beta cell. See also Second Phase Insulin Release


-- More definitions


Surveys and Studies
-- Type 1 Diabetes TrialNet is a group of studies looking at the prevention and early treatment of type 1 diabetes.

Randomized Trial to Assess Efficacy and Safety of Continuous Glucose Monitoring in Children 4-<8 Years With T1DM

Researchers at Northwestern University are seeking participants in a study called Prevent Risks by Early interVEntion at Nighttime in Type 1 diabetes for Kidney Disease (PREVENTKD).

The University of Florida is studying Neulasta in patients with new onset type 1 diabetes.

Families are Needed Who Have an Infant Under age 5 Months or a Mother in the Last Trimester of Pregnancy and a Family Member with Type 1 Diabetes are highly encouraged to participate in the TrialNet NIP study.

NYU researchers are looking for teens with type 2 diabetes or teens with a BMI over 30, aged 14-19, for a study at the NYU Medical Center. The study involves two visits to the medical center, and includes cognitive testing (memory, etc.), a blood sample, and an MRI scan of the brain. Parental consent is necessary for those under 18. All volunteers will be financially compensated $100 for their time.

Behavioral specialists at the Joslin Diabetes Center and the University of Virginia seek help from parents who have children with diabetes from ages 6 to 11.

The University of California at Irvine has a new Exercise in Teens with Type 1 study.

Clinical Trials for Newly Diagnosed Type 1 Diabetes is seeking people ages 8-30 who have been diagnosed with type 1 diabetes within the past six weeks for the AbATE Trial.

The Type 1 Diabetes Genetics Consortium is seeking families with at least 2 siblings diagnosed with type 1 diabetes prior to age 35. They are also interested in having the parents participate, as well as other siblings without diabetes. In this study, researchers will be trying to identify genes influencing an individuals risk for developing type 1 diabetes. By furthering the knowledge of these genes, the researchers hope to prevent type 1 diabetes in the future.

-- Other Studies

 

Become part of the CWD Quilt for Life
View the Online Quilt Gallery
View Amy's Quilt
View the Online Quilt Gallery

Current Poll

  How do you or your child usually check for ketones?  
   

Urine ketone strips from a vial

 
   

Foil-wrapped urine ketone strips

 
   

Blood ketone testing using the Precision Xtra

 
   

I use something else

 
   

I don't test for ketones

 
   

I don't know what ketones are

 


 

Poll Results

 

How do you or your child usually check for ketones?

 
     

Urine ketone strips from a vial

 
 

42%

 

 
     

Foil-wrapped urine ketone strips

 
 

14%

 

 
     

Blood ketone testing using the Precision Xtra

 
 

38%

 

 
     

I use something else

 
 

1%

 

 
     

I don't test for ketones

 
 

3%

 

 
     

I don't know what ketones are

 
 

0%

 

 

 
-- View Results & More Polls

Diabetes Marketplace
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Strawberry Smoothy
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Top E-mailed Pages
1. Camp Too Sweet
2. Ben Cooper
3. 10 Second Sprint May Help Prevent Post-Exercise Hypoglycemia
4. Nick Jonas Reveals He Has Diabetes
5. Sample 504 and IEP Plans
6. Blood Sugar Converter
7. Continuous Glucose Sensors
8. Glucagon Emergency Kit
9. Type 2 Diabetes in Children
10. Reduced-Sugar Cupcakes
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Top Rated Pages
1.   Glucagon Emergency Kit
2.   Blood Sugar Converter
3.   Nick Jonas Reveals He Has Diabetes
4.   The Un-Tethered Regimen
5.   Esté
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7.   About Children with Diabetes
Top 20 Rated Pages

Find US Schools By
Blood Testing Rules

Find schools where blood testing is allowed


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Recommended Books

Book Cover
Get the
Pink Panther Book
From the Children's Diabetes Foundation at Denver

Book cover
Become an expert in
your own diabetes
Buy at Amazon.com


Book Cover
Living with diabetes
and as a parent
Buy at Amazon.com

Book cover
The Adventure of A Lifetime
Buy at The Diabetes Mall


Book Cover
NFL Veteran Jay Leeuwenberg Tackles Diabetes and Wins.
You can too!
Buy From The Publisher




Always remember that kids with diabetes are still kids
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Last Updated: Thu Jul 02 13:20:17 2009
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