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Children with Diabetes
The online community for kids, families and adults with diabetes

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        August 26, 2015 Volume 21, Number 32 First Published in June 1995     
Chat Forums Conferences Ask the Diabetes Team Care Suggestions School News

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Getting Around
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Making a Difference

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Kids with Diabetes
Diabetes Scholars Foundation

Insulin & Supplies
For a Child
The IDF Life for a Child Campaign

Insulin for Life USA
The IDF Life for a Child Campaign

Research to Find a Cure
Children with Diabetes Foundation


Around the World

Diabetes-Kids.de
Diabetes-Kids.de



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A Private Evening with Ed Damiano, PhD, Creator of the Bionic Pancreas
A Fundraising Event during CWD's Focus on Technology Conference
Click to register for the Evening with Ed Damiano
Spend an intimate evening with Ed Damiano, PhD, creator of the Bionic Pancreas. Learn about Ed's vision for bringing this revolutionary technology to patients, get an update on the remaining clinical trials required before commercialization, and hold the iLet prototype in your hands. Special sneak peak: Guests will be asked to put aside their mobile phones and cameras when they get a sneak peak at another critical piece of bionic pancreas technology never before shown. Register Online for this Special Fundraiser.

Anaheim 2015   CWD Focus on Technology
September 18 - 20, 2015
Disneyland Hotel
Anaheim, California


Have't registered for Focus on Technology: Anaheim 2015 conference yet? CWD has invited some of the top experts in the diabetes world to share their ideas with you. In addition to the scheduled presentations, including Ed Damiano's Sunday Keynote address on the Bionic Pancreas, the conference faculty will be available during meals and breaks for more personalized discussion. Our faculty are very approachable - don't be shy about asking questions! This is a time to discuss anything on your mind relating to diabetes management. It's a great opportunity to network, share ideas, and interact with CWD's most wonderful and caring faculty and staff!

Click here to register now!


Living With Diabetes
Photo  

My name is Marissa and I have had diabetes for 26 years. I was diagnosed when I was 2, got a pump when I was 11, got a sensor when I was 20, and they both make my life much easier!

I work as a diabetes nurse educator, am married to Adam, and have a wonderful son. At CWD conferences, I am one of the teen group leaders and Adam is one of the tween group leaders.

I also love to travel, practice my Spanish, salsa dance, and play with our dog, Baxter.

-- Visit Marissa's page
-- More children with diabetes


CWD Conferences and Events
Friends for Life Canada 2015   Friends for Life Canada 2015
October 23-25, 2015
Marriott Gateway on the Falls
Niagara Falls, Ontario, Canada
This Conference is Sold Out

Friends for Life UK: Old Windsor 2015   Friends for Life UK: Old Windsor 2015
30 October - 1 November, 2015
Beaumont House Hotel and Conference Venue
Old Windsor, Berkshire, England
This Conference is Sold Out

Reports from recent CWD conferences & events:
-- Orlando 2015, Anaheim, UK 2014, Orlando 2014, Cincinnati, Orlando 2013
-- More Reports & Upcoming CWD Conferences and Events


Headlines
CWD presents It's Not Just a Numbers Game: Parenting the Child with Type 1 Diabetes with Joe Solowiejczyk.

A Comparative Effectiveness Analysis of Three Continuous Glucose Monitors: The Navigator, G4 Platinum, and Enlite. Free full text available in HTML and PDF formats.

Increasing Incidence of Type 1 Diabetes in Youth - Twenty years of the Philadelphia Pediatric Diabetes Registry. See also Type 1 Diabetes in Urban Children Skyrockets.

In the absence of renal disease, 20 year mortality risk in type 1 diabetes is comparable to that of the general population: a report from the Pittsburgh Epidemiology of Diabetes Complications Study.

Effectiveness of Sensor-Augmented Insulin-Pump Therapy in Type 1 Diabetes. Free full text available in PDF format. See also Continuous Glucose Monitoring - Coming of Age, also available in PDF format.

Threshold-Based Insulin-Pump Interruption for Reduction of Hypoglycemia.

Suspended insulin infusion during overnight closed-loop glucose control in children and adolescents with Type 1 diabetes.

Prolonged Nocturnal Hypoglycemia Is Common During 12 Months Of Continuous Glucose Monitoring In Children And Adults With Type 1 Diabetes.

Prevention of Nocturnal Hypoglycemia Using Predictive Alarm Algorithms and Insulin Pump Suspension.

Use of a real-time continuous glucose monitoring system in children and young adults on insulin pump therapy: patients' and caregivers' perception of benefit.

Nocturnal hypoglycaemias in type 1 diabetic patients: what can we learn with continuous glucose monitoring? See also Nocturnal hypoglycaemia in Type 1 diabetic patients, assessed with continuous glucose monitoring: frequency, duration and associations.

Defective Awakening Response to Nocturnal Hypoglycemia in Patients with Type 1 Diabetes Mellitus. Free full text available in PDF format.

Awakening from Sleep and Hypoglycemia in Type 1 Diabetes Mellitus. Free full text available in PDF format.

The Family Support Network now includes over 5,600 families from 50 states and 87 countries. If you're new to diabetes, the Family Support Network will help you connect with families near you or find a babysitter. If you haven't joined, please become part of the Family Support Network.

The Quilt for Life now has 754 panels.

-- Other news and information


Clinic
We offer diabetes care suggestions based on the current state-of-the-art in caring for type 1 diabetes.

Learn more about continuous glucose sensors and see Getting Started with Continuous Glucose Monitoring by Linda Mackowiak, MS, RN, CDE.

The "Un-Tethered" Regimen by Dr. Steve Edelman offers pump users an alternative strategy by combining a pump with Lantus.

Any child who was diagnosed in their first year of life should be screened for Kir6.2 Mutations. This mutation causes an extremely rare form of diabetes that can be treated with oral medication. To learn more, see Switching from Insulin to Oral Sulfonylureas in Patients with Diabetes Due to Kir6.2 Mutations. Families in the US should contact Dr. Louis Philipson at the University of Chicago. More information is available at www.diabetesgenes.org.

Learn about Type 2 and Double Diabetes in kids.


Support
-- Sign up for our weekly What's New e-mail newsletter
-- Join the Family Support Network
-- Share your experiences in the CWD Forums


Diabetes Humor
My wife Brenda recently had a birthday. Laura sent an email to the parents list saying "Brenda is 48" which triggered a bunch of "Oh my you're low!" responses rather than "Happy birthday" notes. The best responses were "Hypo Birthday Brenda!" and "have lots of cake - you won't be 48 anymore."
-- More Humorous Tidbits

You know you're the parent of a child with diabetes when ...
... you are talking about a friend's car problem as "He needs to fix his carbohydrates" instead of carburetor.
--More Parent Humor


Featured Book of the Week

[RECOMMENDED!] The Fight to Survive: A Young Girl, Diabetes, and the Discovery of Insulin by Caroline Cox. Published by Kaplan Publishing, 2009. ISBN 1607145510. 254 pages, hardcover US$26.95.

Book cover

The Fight to Survive: A Young Girl, Diabetes, and the Discovery of Insulin is the very personal story of Elizabeth Evans Hughes, daughter of Charles Evans Hughes, who served as Governor of New York, US Secretary of State, Associate Justice of the Supreme Court, and Chief Justice of the Supreme Court. Elizabeth was diagnosed with type 1 diabetes in 1919 when she was 11 years old. The only treatment was a brutal starvation diet, which prolonged life -- and in her case, prolonged it enough for her to become one of the first people in the world to receive insulin. Author Caroline Cox takes us back to Elizabeth's life and helps us understand the inner courage of one young girl. If you're interested in learning about the history of diabetes and insulin, The Fight to Survive is for you. Recommended.

Amazon Books Order The Fight to Survive: A Young Girl, Diabetes, and the Discovery of Insulin from Amazon.com

-- Other books for parents, adults, and older kids
-- Recently Featured Books


Ask the Diabetes Team
My daughter tested positive for two antibodies and has had intermittent elevated blood sugars. Have there been any successes in reversing the antibody titers? I am looking for suggestions on how to prevent a diagnosis of type 1. (27 Aug 2015)
-- Answers to over 19,350 questions
-- What's your question?


Studies and Surveys
-- PERL (Preventing Early Renal Loss in Diabetes) is a clinical trial for people with type 1 diabetes who have early signs of kidney problems. Our goal is to test a new way to reduce loss of kidney function using a safe and inexpensive medicine. We are seeking adults with type 1 diabetes to participate in our study.

-- Type 1 Diabetes TrialNet is a group of studies looking at the prevention and early treatment of type 1 diabetes.

-- Other Studies



 
Poll

Current Poll

 

Does your child have a 504 plan for diabetes care at school?

 
   

Yes, we've done a 504 every year

 
   

Yes, this is the first year we've done one

 
   

Yes, but we haven't done one every year

 
   

No, not this year, but we have in the past

 
   

No, we've never done a 504

 
   

My child is in college or out of school

 
   

I don't know what a 504 is

 
   

Other

 



Poll Results

 

Does your child have a 504 plan for diabetes care at school?

 
     

Yes, we've done a 504 every year

 
 

48%

 

 
     

Yes, this is the first year we've done one

 
 

3%

 

 
     

Yes, but we haven't done one every year

 
 

10%

 

 
     

No, not this year, but we have in the past

 
 

3%

 

 
     

No, we've never done a 504

 
 

13%

 

 
     

My child is in college or out of school

 
 

6%

 

 
     

I don't know what a 504 is

 
 

6%

 

 
     

Other

 
 

6%

 

 
-- View Results & More Polls

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Recommended Books

Book Cover
Get the
Pink Panther Book
From the Children's Diabetes Foundation at Denver

Book cover
Become an expert in
your own diabetes
Buy at Amazon.com


Book Cover
Living with diabetes
and as a parent
Buy at Amazon.com





Always remember that kids with diabetes are still kids
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Last Updated: Wednesday, 26-Aug-2015 20:25:10 UTC
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