Children with Diabetes
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Children with Diabetes
The online community for kids, families and adults with diabetes

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July 1, 2015 Volume 21, Number 25 First Published in June 1995     
Chat Forums Conferences Ask the Diabetes Team Care Suggestions School News

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Getting Around
What's New
About CWD
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People
Family Support Network
Adults with Diabetes
Care Photos
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-- Kids with Diabetes
Parents
Parent Humor
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-- Care Suggestions
Diabetes Basics
Type 2 and Double Diabetes
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Making a Difference

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Kids with Diabetes
Diabetes Scholars Foundation

Insulin & Supplies
For a Child
The IDF Life for a Child Campaign

Insulin for Life USA
The IDF Life for a Child Campaign

Research to Find a Cure
Children with Diabetes Foundation


Around the World

Diabetes-Kids.de
Diabetes-Kids.de




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Living With Diabetes
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Hi, my name is Claire, and I have type 1 diabetes.

When I was ten we were skiing and I threw up a couple of times, so the next day my dad took me to the doctor. She took one look at me and guessed that I had diabetes, and made me pee in a cup. Sure enough, I was above 500 mg/dl and had ketones, so they sent me straight off the Children's Hospital. I was there overnight in the Intensive Care Unit.

At first I was just pretty confused, and honestly, my brother and sister were more scared then I was. But now I'm fourteen and I've had diabetes for four years, and I pretty much do everything by myself. I have a pump and a CGM.

The biggest thing that I've learned about diabetes is that you have to take care of yourself and to be your own advocate. If you don't, people might think that they know what's best for you, when it really isn't. Also, stick with it. It gets easier, and you learn how to manage it.

-- Visit Claire's page
-- More children with diabetes


CWD Conferences and Events
Friends for Life: Orlando 2015   Friends for Life: Orlando 2015
July 6-12, 2015
Disney's Coronado Springs Resort
Lake Buena Vista, Florida

Anaheim 2015   CWD Focus on Technology
September 18 - 20, 2015
Disneyland Hotel
Anaheim, California

Friends for Life Canada 2015   Friends for Life Canada 2015
October 23-25, 2015
Marriott Gateway on the Falls
Niagara Falls, Ontario, Canada
This Conference is Sold Out

Friends for Life UK: Old Windsor 2015   Friends for Life UK: Old Windsor 2015
30 October - 1 November, 2015
Beaumont House Hotel and Conference Venue
Old Windsor, Berkshire, England
This Conference is Sold Out

Reports from recent CWD conferences & events:
-- Anaheim, UK 2014, Orlando 2014, Cincinnati, Orlando 2013, UK, Toronto, DC
-- More Reports & Upcoming CWD Conferences and Events


Headlines
CWD presents It's Not Just a Numbers Game: Parenting the Child with Type 1 Diabetes with Joe Solowiejczyk.

A Comparative Effectiveness Analysis of Three Continuous Glucose Monitors: The Navigator, G4 Platinum, and Enlite. Free full text available in HTML and PDF formats.

Increasing Incidence of Type 1 Diabetes in Youth - Twenty years of the Philadelphia Pediatric Diabetes Registry. See also Type 1 Diabetes in Urban Children Skyrockets.

In the absence of renal disease, 20 year mortality risk in type 1 diabetes is comparable to that of the general population: a report from the Pittsburgh Epidemiology of Diabetes Complications Study.

Effectiveness of Sensor-Augmented Insulin-Pump Therapy in Type 1 Diabetes. Free full text available in PDF format. See also Continuous Glucose Monitoring - Coming of Age, also available in PDF format.

Threshold-Based Insulin-Pump Interruption for Reduction of Hypoglycemia.

Suspended insulin infusion during overnight closed-loop glucose control in children and adolescents with Type 1 diabetes.

Prolonged Nocturnal Hypoglycemia Is Common During 12 Months Of Continuous Glucose Monitoring In Children And Adults With Type 1 Diabetes.

Prevention of Nocturnal Hypoglycemia Using Predictive Alarm Algorithms and Insulin Pump Suspension.

Use of a real-time continuous glucose monitoring system in children and young adults on insulin pump therapy: patients' and caregivers' perception of benefit.

Nocturnal hypoglycaemias in type 1 diabetic patients: what can we learn with continuous glucose monitoring? See also Nocturnal hypoglycaemia in Type 1 diabetic patients, assessed with continuous glucose monitoring: frequency, duration and associations.

Defective Awakening Response to Nocturnal Hypoglycemia in Patients with Type 1 Diabetes Mellitus. Free full text available in PDF format.

Awakening from Sleep and Hypoglycemia in Type 1 Diabetes Mellitus. Free full text available in PDF format.

The Family Support Network now includes over 5,600 families from 50 states and 87 countries. If you're new to diabetes, the Family Support Network will help you connect with families near you or find a babysitter. If you haven't joined, please become part of the Family Support Network.

The Quilt for Life now has 751 panels.

-- Other news and information


Clinic
We offer diabetes care suggestions based on the current state-of-the-art in caring for type 1 diabetes.

Learn more about continuous glucose sensors and see Getting Started with Continuous Glucose Monitoring by Linda Mackowiak, MS, RN, CDE.

The "Un-Tethered" Regimen by Dr. Steve Edelman offers pump users an alternative strategy by combining a pump with Lantus.

Any child who was diagnosed in their first year of life should be screened for Kir6.2 Mutations. This mutation causes an extremely rare form of diabetes that can be treated with oral medication. To learn more, see Switching from Insulin to Oral Sulfonylureas in Patients with Diabetes Due to Kir6.2 Mutations. Families in the US should contact Dr. Louis Philipson at the University of Chicago. More information is available at www.diabetesgenes.org.

Learn about Type 2 and Double Diabetes in kids.


Support
-- Sign up for our weekly What's New e-mail newsletter
-- Join the Family Support Network
-- Share your experiences in the CWD Forums


Diabetes Humor
My 5 year old (diabetic) daughter was mad at me the other day. She came walking into the kitchen with her backpack full with all her stuff. She really knows what buttons to push, telling me: "I'm running away, I'm taking a lot of candy, and I'm not taking any insulin!"
-- More Humorous Tidbits

You know you're the parent of a child with diabetes when ...
... your 3-year-old son with diabetes asks every person who drinks juice, "Are you low?"
--More Parent Humor


Featured Book of the Week

[RECOMMENDED!] Diabetes Burnout: What To Do When You Can't Take It Anymore by William Polonsky, American Diabetes Association, 2000. ISBN 1580400337.

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Many people with diabetes also deal with depression. It's common and understandable. This wonderful book throws a strong and practical light on how the anger, worries and burdens of caring for diabetes day in and day out can effect you. Written in an interactive format, the book the emotional issues that contribute to poor diabetes control and provides guidance to overcoming your barriers to self-care. Worksheets help you assess your current level of motivation and establish a successful plan of action.

Diabetes Burnout addresses such issues as:

  • Ten good reasons to hate blood sugar monitoring (and what to do about them)
  • Worrying about long-term complications: the uses and misuses of fear
  • Depression and diabetes: a tough combination
  • Friends, family and health care providers - the diabetes police
  • How stresses influence diabetes (and what to do about it)
  • More

If you're "fed-up," try reading "Diabetes Burnout" and completing the worksheets. You will not only feel acknowledged, but you'll end up with a plan to do something truly helpful to improve how you're feeling.

Betty Brackenridge

Order from Amazon.com Order Diabetes Burnout: What To Do When You Can't Take It Anymore from Amazon.com
-- Other books for parents, adults, and older kids
-- Recently Featured Books


Ask the Diabetes Team
My fasting and post dinner blood sugars are elevated. I take Actrapid and Insulatard. Can you advise me about what I should do? (1 Jul 2015)
-- Answers to over 19,350 questions
-- What's your question?


Studies and Surveys
-- PERL (Preventing Early Renal Loss in Diabetes) is a clinical trial for people with type 1 diabetes who have early signs of kidney problems. Our goal is to test a new way to reduce loss of kidney function using a safe and inexpensive medicine. We are seeking adults with type 1 diabetes to participate in our study.

-- Type 1 Diabetes TrialNet is a group of studies looking at the prevention and early treatment of type 1 diabetes.

-- Other Studies



 
Poll

Current Poll

 

How do you or your child usually check for ketones?

 
   

Urine ketone strips from a vial

 
   

Foil-wrapped urine ketone strips

 
   

Blood ketone testing using the Precision Xtra

 
   

Blood ketone testing using the Nova Max Plus

 
   

I use something else

 
   

I don't test for ketones

 
   

I don't know what ketones are

 



Poll Results

 

How do you or your child usually check for ketones?

 
     

Urine ketone strips from a vial

 
 

44%

 

 
     

Foil-wrapped urine ketone strips

 
 

0%

     
     

Blood ketone testing using the Precision Xtra

 
 

30%

 

 
     

Blood ketone testing using the Nova Max Plus

 
 

0%

     
     

I use something else

 
 

0%

     
     

I don't test for ketones

 
 

25%

 

 
     

I don't know what ketones are

 
 

0%

     
-- View Results & More Polls

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Recommended Books

Book Cover
Get the
Pink Panther Book
From the Children's Diabetes Foundation at Denver

Book cover
Become an expert in
your own diabetes
Buy at Amazon.com


Book Cover
Living with diabetes
and as a parent
Buy at Amazon.com





Always remember that kids with diabetes are still kids
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Last Updated: Wednesday, 01-Jul-2015 17:00:53 UTC
This Internet site provides information of a general nature and is designed for educational purposes only. If you have any concerns about your own health or the health of your child, you should always consult with a physician or other health care professional.

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