Children with Diabetes
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Children with Diabetes

The online community for kids, families and adults with diabetes

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        August 16, 2017 Volume 23, Number 33 First Published in June 1995     
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Getting Around
What's New
About CWD
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People
Family Support Network
Adults with Diabetes
Care Photos
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-- Kids with Diabetes
Parents
Parent Humor
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-- Care Suggestions
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Kids with Diabetes
Diabetes Scholars Foundation

Insulin & Supplies
For a Child
The IDF Life for a Child Campaign

Insulin for Life USA
The IDF Life for a Child Campaign

Research to Find a Cure
Children with Diabetes Foundation


Around the World

Diabetes-Kids.de
Diabetes-Kids.de



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Living With Diabetes
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My name is Austin. I am five years old and have diabetes. I was just diagnosed on December 3, 2010 (which was also my birthday!) My mom had a harder time with me being in the hospital than I did because I just played with toys while she cried! I am very brave (that's what my mom says). I test my own blood and don't cry. I don't know what the numbers mean but I tell my mom what I am, and then ask if I am perfect. Of course, she always says yes! I don't love the shots, but my mom and dad are going to a pump class so I guess I will be getting one of those soon. I am a busy boy and love to play with toys, ride my bike, and play the WII. I am going to play T-ball this year. I can't wait.

My name is Lisa, Austin's mom. What a long two months it has been -- but we have learned so much and, most importantly, how to take care of our son. There is a lot to learn, and I am sure more and more each day, but we are getting more comfortable as time goes on. It felt like taking a new baby home when we left the hospital -- a lot of fear, anxiety, sadness -- but it is what it is, and I am a firm believer that things happen for a reason, and that Austin is a very special boy to be given this challenge. We are just hoping for a cure like everyone else, but, in the meantime, we are so glad that it can be managed. All I can say is this takes organized to a whole new level!

-- Visit Austin's page
-- More children with diabetes


CWD Conferences and Events
Friends for Life Falls Church 2017   Friends for Life Falls Church 2017
October 6-8, 2017
Fairview Park Marriott
Falls Church, Virginia

Reports from recent CWD conferences & events:

-- Orlando 2017, Anaheim 2017, Anaheim 2016, Orlando 2016, Falls Church 2016,
-- More Reports & Upcoming CWD Conferences and Events


Headlines
CWD presents It's Not Just a Numbers Game: Parenting the Child with Type 1 Diabetes with Joe Solowiejczyk.

A Comparative Effectiveness Analysis of Three Continuous Glucose Monitors: The Navigator, G4 Platinum, and Enlite. Free full text available in HTML and PDF formats.

Increasing Incidence of Type 1 Diabetes in Youth - Twenty years of the Philadelphia Pediatric Diabetes Registry. See also Type 1 Diabetes in Urban Children Skyrockets.

In the absence of renal disease, 20 year mortality risk in type 1 diabetes is comparable to that of the general population: a report from the Pittsburgh Epidemiology of Diabetes Complications Study.

Effectiveness of Sensor-Augmented Insulin-Pump Therapy in Type 1 Diabetes. Free full text available in PDF format. See also Continuous Glucose Monitoring - Coming of Age, also available in PDF format.

Threshold-Based Insulin-Pump Interruption for Reduction of Hypoglycemia.

Suspended insulin infusion during overnight closed-loop glucose control in children and adolescents with Type 1 diabetes.

Prolonged Nocturnal Hypoglycemia Is Common During 12 Months Of Continuous Glucose Monitoring In Children And Adults With Type 1 Diabetes.

Prevention of Nocturnal Hypoglycemia Using Predictive Alarm Algorithms and Insulin Pump Suspension.

Use of a real-time continuous glucose monitoring system in children and young adults on insulin pump therapy: patients' and caregivers' perception of benefit.

Nocturnal hypoglycaemias in type 1 diabetic patients: what can we learn with continuous glucose monitoring? See also Nocturnal hypoglycaemia in Type 1 diabetic patients, assessed with continuous glucose monitoring: frequency, duration and associations.

Defective Awakening Response to Nocturnal Hypoglycemia in Patients with Type 1 Diabetes Mellitus. Free full text available in PDF format.

Awakening from Sleep and Hypoglycemia in Type 1 Diabetes Mellitus. Free full text available in PDF format.

The Family Support Network now includes over 5,750 families from 50 states and 87 countries. If you're new to diabetes, the Family Support Network will help you connect with families near you or find a babysitter. If you haven't joined, please become part of the Family Support Network.

The Quilt for Life now has 756 panels. The latest quilt is from Katrina.

-- Other news and information


Clinic
We offer diabetes care suggestions based on the current state-of-the-art in caring for type 1 diabetes.

Learn more about continuous glucose sensors and see Getting Started with Continuous Glucose Monitoring by Linda Mackowiak, MS, RN, CDE.

The "Un-Tethered" Regimen by Dr. Steve Edelman offers pump users an alternative strategy by combining a pump with Lantus.

Any child who was diagnosed in their first year of life should be screened for Kir6.2 Mutations. This mutation causes an extremely rare form of diabetes that can be treated with oral medication. To learn more, see Switching from Insulin to Oral Sulfonylureas in Patients with Diabetes Due to Kir6.2 Mutations. Families in the US should contact Dr. Louis Philipson at the University of Chicago. More information is available at www.diabetesgenes.org.

Learn about Type 2 and Double Diabetes in kids.


Support
-- Sign up for our weekly What's New e-mail newsletter
-- Join the Family Support Network
-- Share your experiences in the CWD Forums


Diabetes Humor
We just put an in-ground pool in our backyard this summer. One day, I was testing the pool for chlorine and ph balance. My 9 year old daughter saw me put the testing strip in and compare it to the colours on the bottle. She then asked, "Does the pool have ketones?"
-- More Humorous Tidbits

You know you're the parent of a child with diabetes when ...
... instead of whispering "sweet nothings" to each other in the middle of the night, you and your spouse are talking about blood sugar numbers.
--More Parent Humor


Featured Book of the Week

[RECOMMENDED!] The Fight to Survive: A Young Girl, Diabetes, and the Discovery of Insulin by Caroline Cox. Published by Kaplan Publishing, 2009. ISBN 1607145510. 254 pages, hardcover US$26.95.

Book cover

The Fight to Survive: A Young Girl, Diabetes, and the Discovery of Insulin is the very personal story of Elizabeth Evans Hughes, daughter of Charles Evans Hughes, who served as Governor of New York, US Secretary of State, Associate Justice of the Supreme Court, and Chief Justice of the Supreme Court. Elizabeth was diagnosed with type 1 diabetes in 1919 when she was 11 years old. The only treatment was a brutal starvation diet, which prolonged life -- and in her case, prolonged it enough for her to become one of the first people in the world to receive insulin. Author Caroline Cox takes us back to Elizabeth's life and helps us understand the inner courage of one young girl. If you're interested in learning about the history of diabetes and insulin, The Fight to Survive is for you. Recommended.

Amazon Books Order The Fight to Survive: A Young Girl, Diabetes, and the Discovery of Insulin from Amazon.com

-- Other books for parents and adults with diabetes
-- Recently Featured Books


Ask the Diabetes Team
My toddler has had excessive thirst and urination, but urine and blood tests were normal. I am concerned due to a family history of diabetes. What do you think? (13 Jul 2017)
-- Answers to over 19,400 questions
-- What's your question?


Studies and Surveys
-- Parents of Adolescents with Type 1 Diabetes are invited to participate in a survey on teen risk behaviors being run by researchers at Boston Children's Hospital and Harvard University.

-- PERL (Preventing Early Renal Loss in Diabetes) is a clinical trial for people with type 1 diabetes who have early signs of kidney problems. Our goal is to test a new way to reduce loss of kidney function using a safe and inexpensive medicine. We are seeking adults with type 1 diabetes to participate in our study.

-- Type 1 Diabetes TrialNet is a group of studies looking at the prevention and early treatment of type 1 diabetes.

-- Other Studies



 
Poll

Current Poll

 

For teens and adults with diabetes who drive:
How often do you check your blood sugar before you drive?

 
 

Checking can mean a finger stick or reviewing your CGM

 
   

Always

 
   

Usually

 
   

Sometimes

 
   

Rarely

 
   

Never

 
   

Other

 



Poll Results

 

For teens and adults with diabetes who drive:
How often do you check your blood sugar before you drive?

 
 

Checking can mean a finger stick or reviewing your CGM

 
     

Always

 
 

33%

 

 
     

Usually

 
 

33%

 

 
     

Sometimes

 
 

0%

     
     

Rarely

 
 

16%

 

 
     

Never

 
 

0%

     
     

Other

 
 

16%

 

 
-- View Results & More Polls

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Recommended Books

Book Cover
Get the
Pink Panther Book
From the Children's Diabetes Foundation at Denver

Book cover
Become an expert in
your own diabetes
Buy at Amazon.com


Book Cover
Living with diabetes
and as a parent
Buy at Amazon.com





Always remember that kids with diabetes are still kids
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Last Updated: Wednesday, 16-Aug-2017 15:58:09 UTC
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