Children with Diabetes
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Children with Diabetes
The online community for kids, families and adults with diabetes

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        July 20, 2016 Volume 22, Number 29 First Published in June 1995     
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The IDF Life for a Child Campaign

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Living With Diabetes
Photo  

Hi. My name is Jaida and I am six years old. In late September 2010, I found out I had type 1 diabetes.

My parents noticed that I was thirsty all the time and using the bathroom a lot more than I used to. They also noticed that I looked like I had lost weight. When they took me to see the doctor, she made me take a blood test. I did not want to and cried some. When we left the doctor, they called my parents on the way home and told them to take me to the emergency room because my blood sugar was 511 and there was glucose in my urine.

I was in the hospital two nights. When I came home I was afraid to eat because I thought I might get sick. Now I'm not afraid to eat anymore and I check my own sugar and do my own shots. If you just found out you have diabetes, don't be afraid because you will feel better.

-- Visit Jaida's page
-- More children with diabetes


CWD Conferences and Events
Friends for Life Falls Church 2016   Friends for Life Anaheim 2016
September 16-18, 2016
Disneyland Hotel
Anaheim, California

Reports from recent CWD conferences & events:
-- Falls Church, UK, Canada, Anaheim, Orlando
-- More Reports & Upcoming CWD Conferences and Events


Headlines
#DiabetesAccessMatters: an open letter to Mr. Stephen Hemsley, Chief Executive Officer of UnitedHealth Group.

CWD presents It's Not Just a Numbers Game: Parenting the Child with Type 1 Diabetes with Joe Solowiejczyk.

A Comparative Effectiveness Analysis of Three Continuous Glucose Monitors: The Navigator, G4 Platinum, and Enlite. Free full text available in HTML and PDF formats.

Increasing Incidence of Type 1 Diabetes in Youth - Twenty years of the Philadelphia Pediatric Diabetes Registry. See also Type 1 Diabetes in Urban Children Skyrockets.

In the absence of renal disease, 20 year mortality risk in type 1 diabetes is comparable to that of the general population: a report from the Pittsburgh Epidemiology of Diabetes Complications Study.

Effectiveness of Sensor-Augmented Insulin-Pump Therapy in Type 1 Diabetes. Free full text available in PDF format. See also Continuous Glucose Monitoring - Coming of Age, also available in PDF format.

Threshold-Based Insulin-Pump Interruption for Reduction of Hypoglycemia.

Suspended insulin infusion during overnight closed-loop glucose control in children and adolescents with Type 1 diabetes.

Prolonged Nocturnal Hypoglycemia Is Common During 12 Months Of Continuous Glucose Monitoring In Children And Adults With Type 1 Diabetes.

Prevention of Nocturnal Hypoglycemia Using Predictive Alarm Algorithms and Insulin Pump Suspension.

Use of a real-time continuous glucose monitoring system in children and young adults on insulin pump therapy: patients' and caregivers' perception of benefit.

Nocturnal hypoglycaemias in type 1 diabetic patients: what can we learn with continuous glucose monitoring? See also Nocturnal hypoglycaemia in Type 1 diabetic patients, assessed with continuous glucose monitoring: frequency, duration and associations.

Defective Awakening Response to Nocturnal Hypoglycemia in Patients with Type 1 Diabetes Mellitus. Free full text available in PDF format.

Awakening from Sleep and Hypoglycemia in Type 1 Diabetes Mellitus. Free full text available in PDF format.

The Family Support Network now includes over 5,750 families from 50 states and 87 countries. If you're new to diabetes, the Family Support Network will help you connect with families near you or find a babysitter. If you haven't joined, please become part of the Family Support Network.

The Quilt for Life now has 756 panels. The latest quilt is from Katrina.

-- Other news and information


Clinic
We offer diabetes care suggestions based on the current state-of-the-art in caring for type 1 diabetes.

Learn more about continuous glucose sensors and see Getting Started with Continuous Glucose Monitoring by Linda Mackowiak, MS, RN, CDE.

The "Un-Tethered" Regimen by Dr. Steve Edelman offers pump users an alternative strategy by combining a pump with Lantus.

Any child who was diagnosed in their first year of life should be screened for Kir6.2 Mutations. This mutation causes an extremely rare form of diabetes that can be treated with oral medication. To learn more, see Switching from Insulin to Oral Sulfonylureas in Patients with Diabetes Due to Kir6.2 Mutations. Families in the US should contact Dr. Louis Philipson at the University of Chicago. More information is available at www.diabetesgenes.org.

Learn about Type 2 and Double Diabetes in kids.


Support
-- Sign up for our weekly What's New e-mail newsletter
-- Join the Family Support Network
-- Share your experiences in the CWD Forums


Diabetes Humor
My two sons, ages 9 and 7, share a bedroom. The 9 year old is a type 1 diabetic. As usual, I did the 2 a.m. BG test. I found him to be 97 so I ran downstairs to get some juice. While I was busy prodding and pushing him to get awake to drink it, I realized my boys had - for fun - switched beds for the nights and I was testing the child without diabetes and trying to give him juice! Thankfully, as bleary-eyed as I was, I figured it out :)
-- More Humorous Tidbits

You know you're the parent of a child with diabetes when ...
... your child learns to count backwards before learning to count forwards--they learn this from watching their meter countdown.
--More Parent Humor


Featured Book of the Week

[RECOMMENDED!] Type 1 Teens: A Guide to Managing Your Life With Diabetes by Korey Hood, PhD. Illustrated by Bruan Ische. Magination Press, 2010. ISBN 1-4338-0788-2. 146 pages, paperback. $14.95.

Book Cover

Being a teenager is challenging. Add type 1 diabetes and it can get -- well -- very challenging. In Type 1 Teens: A Guide to Managing Your Life With Diabetes, Dr. Korey Hood offers teens a straight talking, no-nonsense guide that can help teens with type 1 not just survive, but thrive. Dr. Hood covers all the usual topics -- school, dating, alcohol -- but also emphasizes the importance of avoiding burnout, a topic not often explored with teens. Dr. Hood is a pediatric psychologist who works with kids and teens living with diabetes, but he also has type 1 and can empathize with the difficulty of living up to expectations that teens face. This isn't a book of "do this" or "do that." It's more of a strategy guide to help teens find their own way to success. There are so few resources to help teens, and thus this book helps to fill a void. Highly Recommended.

Order from Amazon.com Order Type 1 Teens: A Guide to Managing Your Life With Diabetes from Amazon.com

-- Other books for kids and teens with diabetes
-- Recently Featured Books


Ask the Diabetes Team
My daughter had elevated blood sugars when at the ER three times for kidney infections, but testing was negative. Could she be in the early stages of type 1? (18 Jul 2016)
-- Answers to over 19,400 questions
-- What's your question?


Studies and Surveys
-- Parents of Adolescents with Type 1 Diabetes are invited to participate in a survey on teen risk behaviors being run by researchers at Boston Children's Hospital and Harvard University.

-- Teens with Type 1 Diabetes and their Parents are needed for a shared decision making study about the use of insulin pumps and continuous glucose monitoring systems.

-- PERL (Preventing Early Renal Loss in Diabetes) is a clinical trial for people with type 1 diabetes who have early signs of kidney problems. Our goal is to test a new way to reduce loss of kidney function using a safe and inexpensive medicine. We are seeking adults with type 1 diabetes to participate in our study.

-- Type 1 Diabetes TrialNet is a group of studies looking at the prevention and early treatment of type 1 diabetes.

-- Other Studies



 
Poll

Current Poll

 

For CGM users, how often do you make insulin dosing decisions based solely on your CGM readings?

 
   

Always

 
   

Often

 
   

Sometimes

 
   

Rarely

 
   

Never

 



Poll Results

 

For CGM users, how often do you make insulin dosing decisions based solely on your CGM readings?

 
     

Always

 
 

3%

 

 
     

Often

 
 

39%

 

 
     

Sometimes

 
 

28%

 

 
     

Rarely

 
 

17%

 

 
     

Never

 
 

10%

 

 
-- View Results & More Polls

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Recommended Books

Book Cover
Get the
Pink Panther Book
From the Children's Diabetes Foundation at Denver

Book cover
Become an expert in
your own diabetes
Buy at Amazon.com


Book Cover
Living with diabetes
and as a parent
Buy at Amazon.com





Always remember that kids with diabetes are still kids
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Last Updated: Wednesday, 20-Jul-2016 13:54:13 UTC
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