Children with Diabetes
Education. Support. Community.

Children with Diabetes
The online community for kids, families and adults with diabetes

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        November 30, 2016 Volume 22, Number 48 First Published in June 1995     
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Living With Diabetes
Photo  

Hi. My name is Caitlin and I'm 14. I've been diabetic since I was six.

It was pretty scary when it happened and I hated having needles and being hungry all the time, but I got an insulin pump when i was 7 and it made everything so much better.

My mom wrote a book kind of about me when I was in the hospital called "Libby Louanne and the Amazing Hospital Mystery!" It's cool and it made me feel kinda like I wasn't such an alien anymore, because there are other kids who are diabetic too.

-- Visit Caitlin's page
-- More children with diabetes


CWD Conferences and Events
Friends for Life Anaheim 2017   Friends for Life Anaheim 2017
May 5-7, 2017
Disneyland Hotel
Anaheim, California

Friends for Life Orlando 2017   Friends for Life Orlando 2017
July 4 - 9, 2017
Disney's Coronado Springs Resort
Orlando, Florida

Reports from recent CWD conferences & events:

-- Anaheim, Orlando, Falls Church, UK, Canada
-- More Reports & Upcoming CWD Conferences and Events


Headlines
CWD presents It's Not Just a Numbers Game: Parenting the Child with Type 1 Diabetes with Joe Solowiejczyk.

A Comparative Effectiveness Analysis of Three Continuous Glucose Monitors: The Navigator, G4 Platinum, and Enlite. Free full text available in HTML and PDF formats.

Increasing Incidence of Type 1 Diabetes in Youth - Twenty years of the Philadelphia Pediatric Diabetes Registry. See also Type 1 Diabetes in Urban Children Skyrockets.

In the absence of renal disease, 20 year mortality risk in type 1 diabetes is comparable to that of the general population: a report from the Pittsburgh Epidemiology of Diabetes Complications Study.

Effectiveness of Sensor-Augmented Insulin-Pump Therapy in Type 1 Diabetes. Free full text available in PDF format. See also Continuous Glucose Monitoring - Coming of Age, also available in PDF format.

Threshold-Based Insulin-Pump Interruption for Reduction of Hypoglycemia.

Suspended insulin infusion during overnight closed-loop glucose control in children and adolescents with Type 1 diabetes.

Prolonged Nocturnal Hypoglycemia Is Common During 12 Months Of Continuous Glucose Monitoring In Children And Adults With Type 1 Diabetes.

Prevention of Nocturnal Hypoglycemia Using Predictive Alarm Algorithms and Insulin Pump Suspension.

Use of a real-time continuous glucose monitoring system in children and young adults on insulin pump therapy: patients' and caregivers' perception of benefit.

Nocturnal hypoglycaemias in type 1 diabetic patients: what can we learn with continuous glucose monitoring? See also Nocturnal hypoglycaemia in Type 1 diabetic patients, assessed with continuous glucose monitoring: frequency, duration and associations.

Defective Awakening Response to Nocturnal Hypoglycemia in Patients with Type 1 Diabetes Mellitus. Free full text available in PDF format.

Awakening from Sleep and Hypoglycemia in Type 1 Diabetes Mellitus. Free full text available in PDF format.

The Family Support Network now includes over 5,750 families from 50 states and 87 countries. If you're new to diabetes, the Family Support Network will help you connect with families near you or find a babysitter. If you haven't joined, please become part of the Family Support Network.

The Quilt for Life now has 756 panels. The latest quilt is from Katrina.

-- Other news and information


Clinic
We offer diabetes care suggestions based on the current state-of-the-art in caring for type 1 diabetes.

Learn more about continuous glucose sensors and see Getting Started with Continuous Glucose Monitoring by Linda Mackowiak, MS, RN, CDE.

The "Un-Tethered" Regimen by Dr. Steve Edelman offers pump users an alternative strategy by combining a pump with Lantus.

Any child who was diagnosed in their first year of life should be screened for Kir6.2 Mutations. This mutation causes an extremely rare form of diabetes that can be treated with oral medication. To learn more, see Switching from Insulin to Oral Sulfonylureas in Patients with Diabetes Due to Kir6.2 Mutations. Families in the US should contact Dr. Louis Philipson at the University of Chicago. More information is available at www.diabetesgenes.org.

Learn about Type 2 and Double Diabetes in kids.


Support
-- Sign up for our weekly What's New e-mail newsletter
-- Join the Family Support Network
-- Share your experiences in the CWD Forums


Diabetes Humor
My seven year old daughter was recently diagnosed with diabetes. A couple of weeks ago, my five year old son Brian told me that he wasn't feeling well because he cut his finger and saw the "hydrates coming out."
-- More Humorous Tidbits

You know you're the parent of a child with diabetes when ...
... you grab the meter after cutting YOURSELF - that big drop of blood's just too perfect to waste!
--More Parent Humor


Featured Book of the Week

[RECOMMENDED!] Balancing Diabetes: Conversations about finding happiness and living well by Kerri Sparling. Published by Spry Publishing, 2014. ISBN 1938170377. Paperback, 200 pages. $16.95.

Book Cover

There are many medical books about how to manage type 1 diabetes, but there are precious few books on what is much more important -- how to live a full, happy life with type 1 diabetes. With Balancing Diabetes, Kerri Sparling reaches out to the real experts -- people living with type 1 diabetes -- to bring perspective to the challenges of living well with type 1. It is in the wisdom of these experts that we come to realize, as Kerri so eloquently reminds us, "Life with diabetes isn't about the diabetes itself, but about the life of which it's a part." Balancing Diabetes belongs in the home of everyone with type 1. Highly recommended.

Order from Amazon.com Order Balancing Diabetes: Conversations about finding happiness and living well

-- Other books for parents and adults with diabetes
-- Recently Featured Books


Ask the Diabetes Team
Where can I find a new NovoPen Junior? (22 Nov 2016)
-- Answers to over 19,400 questions
-- What's your question?


Studies and Surveys
-- Parents of Adolescents with Type 1 Diabetes are invited to participate in a survey on teen risk behaviors being run by researchers at Boston Children's Hospital and Harvard University.

-- Teens with Type 1 Diabetes and their Parents are needed for a shared decision making study about the use of insulin pumps and continuous glucose monitoring systems.

-- PERL (Preventing Early Renal Loss in Diabetes) is a clinical trial for people with type 1 diabetes who have early signs of kidney problems. Our goal is to test a new way to reduce loss of kidney function using a safe and inexpensive medicine. We are seeking adults with type 1 diabetes to participate in our study.

-- Type 1 Diabetes TrialNet is a group of studies looking at the prevention and early treatment of type 1 diabetes.

-- Other Studies



 
Poll

Current Poll

 

How concerned are you about your child's ability to pay for their diabetes care when they are an adult?

 
   

I'm extremely concerned

 
   

I'm very concerned

 
   

I'm somewhat concerned

 
   

I'm not concerned

 
   

I haven't given it much thought

 



Poll Results

 

How concerned are you about your child's ability to pay for their diabetes care when they are an adult?

 
     

I'm extremely concerned

 
 

78%

 

 
     

I'm very concerned

 
 

17%

 

 
     

I'm somewhat concerned

 
 

0%

     
     

I'm not concerned

 
 

3%

 

 
     

I haven't given it much thought

 
 

0%

     
-- View Results & More Polls

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Recommended Books

Book Cover
Get the
Pink Panther Book
From the Children's Diabetes Foundation at Denver

Book cover
Become an expert in
your own diabetes
Buy at Amazon.com


Book Cover
Living with diabetes
and as a parent
Buy at Amazon.com





Always remember that kids with diabetes are still kids
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Last Updated: Friday, 02-Dec-2016 13:25:49 UTC
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