Family Support Network Children with Diabetes
The online community for kids, families and adults with diabetes
     February 3, 2010 Volume 16, Number 5 First Published in June 1995     
Chat Forums Conferences Ask the Diabetes Team Care Suggestions School News

Getting Around
What's New
About CWD
CWD Pressroom
Privacy Policy
Search CWD
People
Family Support Network
Adults with Diabetes
Care Photos
Chat Rooms
CWD Conferences
-- Kids with Diabetes
Parents
Parent Humor
Scholarships and Financial Aid
Grandparents
Humorous Tidbits
Mailing Lists
CWD Forums
Poetry and Art
Videos
Polls
Quilt for Life
Surveys
Rufus
Blogs
Clinic
Ask the Diabetes Team
Alternate Site Testing
Alternative Treatments
-- Care Suggestions
CWD Español
Diabetes Basics
Type 2 and Double Diabetes
Diabetes at School
504 Plans
Diabetes Camps
Diabetes Dictionary
Insulin Pumps
Food and Nutrition
Podcasts
Presentations
Products
Product Marketplace
Sports
Studies
Warning Signs
Sources
News and Information
Diabetes Advocacy
Links to Other Web Sites
Press Releases
Blogs about Diabetes
Regional Information
Diabetes Events
Services
Support Groups
Feedback
About CWD
Advertise
Awards
Contribute Your Experiences
Disclaimer
Letters to the Editor
Logos and Linking
-- Share our Brochures
History of CWD

Top E-mailed Pages
1. The Law, Schools, and Your Child with Diabetes
2. Ask the Diabetes Team
3. Information for Teachers
4. Glucagon Emergency Kit
5. The Un-Tethered Regimen
6. Continuous Glucose Sensors
7. Sample 504 and IEP Plans
8. Friends for Life 2010
9. children with DIABETES Online Community
10. Nick Jonas Reveals He Has Diabetes
E-mail Article spacer E-mail This Page

Top Rated Pages
1.   McKayla
2.   Blood Sugar Converter
3.   Care Suggestions
4.   Aaron
5.   Athina Diane
6.   Friends for Life 2010
7.   Information for Teachers
8.   Type 2 Diabetes in Children
9.   Diabetes Care in Interesting Places
Top 20 Rated Pages

The Diabetes Marketplace
Featured Product
Insulin Pump Angels
Visit the Diabetes Marketplace

Diabetes Juvenil


Scholarships for
Kids with Diabetes
Diabetes Scholars Foundation


Research to Find a Cure
Children with Diabetes Foundation


Insulin & Supplies
For a Child
The IDF Life for a Child Campaign

Friends of CWD from
Around the World


Diabetes Juvenil
Diabetes Juvenil

Progetto Diabete
Progetto Diabete

AAGD Lombardia
AAGD Lombardia

Diabetes-Kids.de
Diabetes-Kids.de



Diabetes requires professional care. Be sure to read our disclaimer.

Your privacy is important to us. Read our privacy statement.

This website is accredited by Health On the Net Foundation. Click to verify. We comply with the HONcode standard for trustworthy health information: verify here.


 


Living With Diabetes
Photo  

My name is McKayla. I'm six years old, I'll be seven in a few weeks. I was diagnosed with type 1 diabetes in November of 2009. I was drinking and going to the bathroom alot, and very sleepy all the time. And my stomach hurt all the time. Then I went to the hospital, they gave me an I.V. I named it the robot. I was scared to be diabetic. I didn't like my shots. Now I'm getting use to them. I'm looking for diabetic friends, someone to be pen pal's with.

-- Visit McKayla's page
-- More children with diabetes


Upcoming CWD Conferences and Events
Houston 2010   CWD Focus on Technology
February 19-21, 2010
JW Marriott
Houston, Texas
Family Scholarships from
Diabetes Scholars Foundation

Friends for Life: Orlando 2010   Friends for Life: Orlando 2010
June 29 – July 4, 2010
Orlando World Center Marriott
Orlando, Florida
Family Scholarships from
Diabetes Scholars Foundation

Friends for Life Canada: Vancouver 2010   Friends for Life Canada: Vancouver 2010
August 27-29, 2010
Renaissance Vancouver Hotel Harbourside
Vancouver, BC, Canada

Houston 2010   CWD Focus on Technology
September 3-5, 2010
Renaissance Charlotte Suites Hotel
Charlotte, North Carolina
Family Scholarships from
Diabetes Scholars Foundation

Friends for Life UK 2010   Friends for Life UK: Old Windsor 2010
October 29-31, 2010
Beaumont House Hotel and Conference Venue
Old Windsor, Berkshire, England
Family Scholarships from
Diabetes Scholars Foundation

Reports from recent CWD conferences & events:
-- Marco Island, Seattle, La Jolla, UK, Orlando, Chicago, Toronto
-- More Reports & Upcoming CWD Conferences and Events


Headlines
Diabetes Scholars Foundation Applications for the $5,000 2010-2011 Diabetes Scholars Foundation College Scholarships are due by April 15, 2010.

JDRF Forms Partnership with Animas to Develop First-Generation Automated System for Managing Type 1 Diabetes.



Use of a real-time continuous glucose monitoring system in children and young adults on insulin pump therapy: patients' and caregivers' perception of benefit.

Modern-Day Clinical Course of Type 1 Diabetes Mellitus After 30 Years' Duration. See also Clinical Course of Type 1 Diabetes Called Much Improved.

Vitamin D Supplementation in Early Childhood and Risk of Type 1 Diabetes: a Systematic Review and Meta-analysis. See also Vitamin D Lowers Diabetes Risk and Extra Vitamin D In Early Childhood Cuts Adult Diabetes Risk.

Nocturnal hypoglycaemias in type 1 diabetic patients: what can we learn with continuous glucose monitoring? See also Nocturnal hypoglycaemia in Type 1 diabetic patients, assessed with continuous glucose monitoring: frequency, duration and associations.

Defective Awakening Response to Nocturnal Hypoglycemia in Patients with Type 1 Diabetes Mellitus. Free full text available in PDF format.

Awakening from Sleep and Hypoglycemia in Type 1 Diabetes Mellitus. Free full text available in PDF format.

Continuous subcutaneous insulin infusion leads to immediate, stable and long-term changes in metabolic control.

Subcutaneous glucose sensor values closely parallel blood glucose during insulin-induced hypoglycaemia.



The Family Support Network now includes over 4,450 families from 50 states and 84 countries. If you're new to diabetes, the Family Support Network will help you connect with families near you or find a babysitter. If you haven't joined, please become part of the Family Support Network.

The Quilt for Life now has 713 panels.

-- Other news and information


Clinic
Learn more about continuous glucose sensors and see Getting Started with Continuous Glucose Monitoring by Linda Mackowiak, MS, RN, CDE.

Any child who was diagnosed in their first year of life should be screened for Kir6.2 Mutations. This mutation causes an extremely rare form of diabetes that can be treated with oral medication. To learn more, see Switching from Insulin to Oral Sulfonylureas in Patients with Diabetes Due to Kir6.2 Mutations. Families in the US should contact Dr. Louis Philipson at the University of Chicago. More information is available at www.diabetesgenes.org.

Learn about Type 2 and Double Diabetes in kids.

The "Un-Tethered" Regimen by Dr. Steve Edelman offers pump users an alternative strategy by combining a pump with Lantus.

We offer diabetes care suggestions based on the current state-of-the-art in caring for type 1 diabetes.


Chats
Join Laura Billetdeaux for a special chat about CWD's Friends for Life: Orlando 2010 conference on Friday, February 12th at 9pm Eastern in the Friends for Life chat room.


Support
-- Sign up for our weekly What's New e-mail newsletter
-- Parents, sign up for our Parents support mailing list
-- Grandparents, sign up for our Grandparents support mailing list
-- Share recipes
-- More mailing lists
-- Support Groups
-- Join the Family Support Network
-- Share your experiences in the CWD Forums
--  Mailing lists for readers from:
Australia New Zealand UK Scotland Finland

See our CWD UK Information Section with links to UK-specific information.

See our section of photos of diabetes care in interesting places. Send in your photos to info@childrenwithdiabetes.com.

Parents report that over 3,000 schools across the US support in-classroom blood glucose monitoring. Does your child's school? Check the Schools database and add information about your child's school.
-- Other information about diabetes and school


Diabetes Humor
My oldest granddaughter, Ashley, is the type 1 diabetic. Her younger sister, Alyssa, takes part in the TrialNet program and is tested periodically for 'antibodies', which we explained to her was to see if she might be getting sick with diabetes. One day, I was working on her computer and it wasn't responding properly, so Alyssa asked me, "Grandma does my computer have "antibodies?"
-- More Humorous Tidbits

You know you're the parent of a child with diabetes when ...
... your refrigerator magnets are from your endo, your diabetes supplier, your insurance company, and your pump manufacturer.
--More Parent Humor


Featured Book of the Week

[RECOMMENDED!] Cheating Destiny by James S. Hirsch. Published by Houghton Mifflin, 2006. Hardcover, 307 pages. $25.00 ISBN 0-618-51461-9. Paperback (2007) ISBN 061891899X, $14.95.

Book Cover   "My son is thirsty." So begins Cheating Destiny, Jim Hirsch's amazing book about living with type 1 diabetes, being the parent of a child with diabetes, the diabetes industry today, the cost to the US of type 1 and type 2 diabetes, islet cell transplantation, stem cell research, the maddening nature of US healthcare, and so much more. Hirsch is a captivating writer, and as the parent of a child with diabetes, I feel a special kinship to him -- he too has a child with diabetes. He has also lived most of his life with type 1 diabetes. His book is a must read for everyone whose life includes diabetes. You'll learn more than you could have imagined. And if you, like Jim and I, have a child with diabetes, be prepared for a deeply emotional experience. Highly Recommended.
-- JSH      
Order from Amazon.com Order Cheating Destiny in hardcover from Amazon.com
Order Cheating Destiny in softcover from Amazon.com
-- Other books for parents, adults, and older kids
-- Recently Featured Books


Ask the Diabetes Team
Diagnosed last April, my son is experiencing very high blood sugars. I suspect he is "sneaking" food. What do you suggest I do about this? (8 Feb 2010)
-- Answers to over 18,950 questions
-- What's your question?


From the Diabetes Dictionary
GAD (Glutamic Acid Decarboxylase)
A normal enzyme found in all cells that initiates the metabolism of a substance called glutamic acid. Glutamic acid is a component of all proteins and is also part of the cycle for the disposal of a waste product called ammonia. The presence of antibodies to GAD (called anti-GAD antibodies) in the blood is an early indication of the start of the autoimmune process in Type 1A Diabetes.
-- More definitions


Studies and Surveys
-- Type 1 Diabetes TrialNet is a group of studies looking at the prevention and early treatment of type 1 diabetes.

-- DiaPrevent is a type 1 diabetes research study for people newly diagnosed between the ages of 10 to 20.

-- DEFEND is a global study seeking newly diagnosed patients aged 12 to 45 to test an islet preserving medication.

Researchers at the Medical University of South Carolina are looking for teenage drivers with type 1 diabetes between the ages of 16-19 and their parents to participate in an online study about how diabetes affects driving in teens. The survey is anonymous, which means that no one will know your answers but YOU. For more information and to complete the survey, please choose the appropriate survey:
  1. Survey for teens
  2. Survey for parents
Randomized Trial to Assess Efficacy and Safety of Continuous Glucose Monitoring in Children 4-<8 Years With T1DM

Researchers at Northwestern University are seeking participants in a study called Prevent Risks by Early interVEntion at Nighttime in Type 1 diabetes for Kidney Disease (PREVENTKD).

The University of Florida is studying Neulasta in patients with new onset type 1 diabetes.

Families are Needed Who Have an Infant Under age 5 Months or a Mother in the Last Trimester of Pregnancy and a Family Member with Type 1 Diabetes are highly encouraged to participate in the TrialNet NIP study.

NYU researchers are looking for teens with type 2 diabetes or teens with a BMI over 30, aged 14-19, for a study at the NYU Medical Center. The study involves two visits to the medical center, and includes cognitive testing (memory, etc.), a blood sample, and an MRI scan of the brain. Parental consent is necessary for those under 18. All volunteers will be financially compensated $100 for their time.

Behavioral specialists at the Joslin Diabetes Center and the University of Virginia seek help from parents who have children with diabetes from ages 6 to 11.

The University of California at Irvine has a new Exercise in Teens with Type 1 study.

Clinical Trials for Newly Diagnosed Type 1 Diabetes is seeking people ages 8-30 who have been diagnosed with type 1 diabetes within the past six weeks for the AbATE Trial.

The Type 1 Diabetes Genetics Consortium is seeking families with at least 2 siblings diagnosed with type 1 diabetes prior to age 35. They are also interested in having the parents participate, as well as other siblings without diabetes. In this study, researchers will be trying to identify genes influencing an individuals risk for developing type 1 diabetes. By furthering the knowledge of these genes, the researchers hope to prevent type 1 diabetes in the future.

-- Other Studies

 

Become part of the CWD Quilt for Life
View the Online Quilt Gallery
View Layla's Quilt
View the Online Quilt Gallery

Current Poll
  What insulin pump do you or your child use?  
  Animas  
    IR1200  
    IR1250  
    2020  
    Ping  
  Disetronic / Roche  
    D-TRON or D-TRONplus  
    H-TRON or H-TRONplus  
    Spirit  
  Medtronic Diabetes  
    Paradigm 511 or older  
    Paradigm 512 or 712  
    Paradigm 515 or 715  
    Paradigm 522 with sensor  
    Paradigm 522 without sensor  
    Paradigm 722 with sensor  
    Paradigm 722 without sensor  
  Smiths Medical  
    Cozmo  
  Insulet  
    OmniPod  
  Other  
    I use a pump not listed here  
    I don't use a pump but I want to  
    I don't use a pump and I don't want to  


-- View Results & More Polls

Featured Recipe
Photo
Almond Buttons
More Recipes

Find US Schools By
Blood Testing Rules

Find schools where blood testing is allowed


Restrict to schools with the following ZIP Code


Restrict to schools in the following state



Recommended Books

Book Cover
Get the
Pink Panther Book
From the Children's Diabetes Foundation at Denver

Book cover
Become an expert in
your own diabetes
Buy at Amazon.com


Book Cover
Living with diabetes
and as a parent
Buy at Amazon.com

Book cover
The Adventure of A Lifetime
Buy at The Diabetes Mall


Book Cover
NFL Veteran Jay Leeuwenberg Tackles Diabetes and Wins.
You can too!
Buy From The Publisher




Always remember that kids with diabetes are still kids
Spacer

Last Updated: Wednesday, 03-Feb-2010 15:36:22 Eastern Standard Time
This Internet site provides information of a general nature and is designed for educational purposes only. If you have any concerns about your own health or the health of your child, you should always consult with a physician or other health care professional.

US Flag This site is published by Children With Diabetes, Inc, which is responsible for its contents.
By using this site, you agree to our Terms of Use, Legal Notice and Privacy Policy.
© Children with Diabetes, Inc. 1995-2009. Comments and Feedback.