Children with Diabetes
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Children with Diabetes

The online community for kids, families and adults with diabetes

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        February 22, 2017 Volume 23, Number 8 First Published in June 1995     
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Living With Diabetes
Photo  

Hi, my name is Jordan. I am 12 and I was diagnosed with type 1 diabetes in November of 2012. It started when my family and I noticed I was using the restroom a lot. Some of my family and friends said that I was really skinny. My parents had taken me to my 12 year old check up because my birthday had just past. My doctor immediately found that since my last appointment (6 months prior) I had lost 11 pounds.

My mom and dad asked the doctor to take a urine sample because of my frequent urination. After I did that they immediately found ketones in the sample and took me to test my blood sugar. The nurse told me and her partner that it was 486. I didn’t know what this meant but they looked very concerned. They then took me back to my parent with the doctor and told them the number. Dr. George then told us that we needed to get to a hospital soon and that I was diabetic.

-- Visit Jordan's page
-- More children with diabetes


CWD Conferences and Events
Friends for Life Anaheim 2017   Friends for Life Anaheim 2017
May 5-7, 2017
Disneyland® Hotel
Anaheim, California
DSF Family Scholarships

Friends for Life Orlando 2017   Friends for Life Orlando 2017
July 4 - 9, 2017
Disney's Coronado Springs Resort
Orlando, Florida
DSF Family and Individual Scholarships

Reports from recent CWD conferences & events:

-- Anaheim, Orlando, Falls Church, UK, Canada
-- More Reports & Upcoming CWD Conferences and Events


Headlines
CWD presents It's Not Just a Numbers Game: Parenting the Child with Type 1 Diabetes with Joe Solowiejczyk.

A Comparative Effectiveness Analysis of Three Continuous Glucose Monitors: The Navigator, G4 Platinum, and Enlite. Free full text available in HTML and PDF formats.

Increasing Incidence of Type 1 Diabetes in Youth - Twenty years of the Philadelphia Pediatric Diabetes Registry. See also Type 1 Diabetes in Urban Children Skyrockets.

In the absence of renal disease, 20 year mortality risk in type 1 diabetes is comparable to that of the general population: a report from the Pittsburgh Epidemiology of Diabetes Complications Study.

Effectiveness of Sensor-Augmented Insulin-Pump Therapy in Type 1 Diabetes. Free full text available in PDF format. See also Continuous Glucose Monitoring - Coming of Age, also available in PDF format.

Threshold-Based Insulin-Pump Interruption for Reduction of Hypoglycemia.

Suspended insulin infusion during overnight closed-loop glucose control in children and adolescents with Type 1 diabetes.

Prolonged Nocturnal Hypoglycemia Is Common During 12 Months Of Continuous Glucose Monitoring In Children And Adults With Type 1 Diabetes.

Prevention of Nocturnal Hypoglycemia Using Predictive Alarm Algorithms and Insulin Pump Suspension.

Use of a real-time continuous glucose monitoring system in children and young adults on insulin pump therapy: patients' and caregivers' perception of benefit.

Nocturnal hypoglycaemias in type 1 diabetic patients: what can we learn with continuous glucose monitoring? See also Nocturnal hypoglycaemia in Type 1 diabetic patients, assessed with continuous glucose monitoring: frequency, duration and associations.

Defective Awakening Response to Nocturnal Hypoglycemia in Patients with Type 1 Diabetes Mellitus. Free full text available in PDF format.

Awakening from Sleep and Hypoglycemia in Type 1 Diabetes Mellitus. Free full text available in PDF format.

The Family Support Network now includes over 5,750 families from 50 states and 87 countries. If you're new to diabetes, the Family Support Network will help you connect with families near you or find a babysitter. If you haven't joined, please become part of the Family Support Network.

The Quilt for Life now has 756 panels. The latest quilt is from Katrina.

-- Other news and information


Clinic
We offer diabetes care suggestions based on the current state-of-the-art in caring for type 1 diabetes.

Learn more about continuous glucose sensors and see Getting Started with Continuous Glucose Monitoring by Linda Mackowiak, MS, RN, CDE.

The "Un-Tethered" Regimen by Dr. Steve Edelman offers pump users an alternative strategy by combining a pump with Lantus.

Any child who was diagnosed in their first year of life should be screened for Kir6.2 Mutations. This mutation causes an extremely rare form of diabetes that can be treated with oral medication. To learn more, see Switching from Insulin to Oral Sulfonylureas in Patients with Diabetes Due to Kir6.2 Mutations. Families in the US should contact Dr. Louis Philipson at the University of Chicago. More information is available at www.diabetesgenes.org.

Learn about Type 2 and Double Diabetes in kids.


Support
-- Sign up for our weekly What's New e-mail newsletter
-- Join the Family Support Network
-- Share your experiences in the CWD Forums


Diabetes Humor
Our youngest group of campers at Camp Koral Kids in Coral Springs, Florida are 5 and 6 years old, but have the wit and wisdom of adults. Diabetes education is an important component of camp and we try to incorporate it in all we do. When quizzing the little ones on diabetes concepts we get all kinds of great responses, but the best one by far was their response to the question of what we check for when our blood sugar is above 240. Their group response was "PEE-tones"! Kind of sums it all up, huh?
-- More Humorous Tidbits

You know you're the parent of a child with diabetes when ...
... while driving in the car with your child, a radio show asks listeners to call in with the answer to the question, "What do parents most often say at their kids?" and your daughter answers, "Did you bolus?"
--More Parent Humor


Featured Book of the Week

[RECOMMENDED!] Taking Control of Your Diabetes, 4th Edition by Steven V. Edelman, MD. Professional Communications Inc., 2013. 544 pages. Softcover. US$ 16.95. ISBN 978-1-932610-87-1.

Book Cover  

Dr. Steve Edelman developed type 1 diabetes when he was 15 years old. Taking Control of Your Diabetes embodies his philosophy of patient empowerment in the care of their diabetes. Now in its fourth edition, Taking Control of Your Diabetes is thoroughly updated for 2013, including an excellent section on continuous glucose sensors and how to get the most out of this important technology. Dr. Edelman's core message is that patients can take charge, regardless of how long they've had diabetes, and even if they have complications. This book is thorough, very well-written, and easy to read. The medical information covers everything one might need to know about taking charge, for people with both type 1 and type 2 diabetes. Dr. Edelman covers potential complications as well as daily care, with excellent advice on today's best practices. With contributions from a veritable who's-who in the diabetes world, TCOYD is an excellent addition to the library of everyone living with diabetes -- type 1 or type 2.

Order from Amazon.com Order Taking Control of Your Diabetes from Amazon.com

-- Other books for parents and adults with diabetes
-- Recently Featured Books


Ask the Diabetes Team
Just diagnosed, my teen daughter's blood work indicated high GAD, extremely high Anti-thyroid Peroxidase AB and high Thyroglobulin. Are these related to type 1 or some other disease? (15 Feb 2017)
-- Answers to over 19,400 questions
-- What's your question?


Studies and Surveys
-- Parents of Adolescents with Type 1 Diabetes are invited to participate in a survey on teen risk behaviors being run by researchers at Boston Children's Hospital and Harvard University.

-- Teens with Type 1 Diabetes and their Parents are needed for a shared decision making study about the use of insulin pumps and continuous glucose monitoring systems.

-- PERL (Preventing Early Renal Loss in Diabetes) is a clinical trial for people with type 1 diabetes who have early signs of kidney problems. Our goal is to test a new way to reduce loss of kidney function using a safe and inexpensive medicine. We are seeking adults with type 1 diabetes to participate in our study.

-- Type 1 Diabetes TrialNet is a group of studies looking at the prevention and early treatment of type 1 diabetes.

-- Other Studies



 
Poll

Current Poll

 

Do you or your child experience discrimination from friends or family members because of having diabetes?

 
   

No

 
   

Yes, some but it doesn't really impact us

 
   

Yes, some, and it impacts us

 
   

Yes, a lot, and it impacts us a lot

 
   

We were recently diagnosed and it's too early to tell

 
   

I don't know

 



Poll Results

 

Do you or your child experience discrimination from friends or family members because of having diabetes?

 
     

No

 
 

54%

 

 
     

Yes, some but it doesn't really impact us

 
 

9%

 

 
     

Yes, some, and it impacts us

 
 

18%

 

 
     

Yes, a lot, and it impacts us a lot

 
 

4%

 

 
     

We were recently diagnosed and it's too early to tell

 
 

13%

 

 
     

I don't know

 
 

0%

     
-- View Results & More Polls

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Recommended Books

Book Cover
Get the
Pink Panther Book
From the Children's Diabetes Foundation at Denver

Book cover
Become an expert in
your own diabetes
Buy at Amazon.com


Book Cover
Living with diabetes
and as a parent
Buy at Amazon.com





Always remember that kids with diabetes are still kids
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Last Updated: Wednesday, 22-Feb-2017 16:36:53 UTC
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