Virtual Friends for Life Indianapolis 2020 Conference
Welcome, CWD family! It's finally here, our Virtual Friends for Life Indianapolis 2020 Conference! Live sessions took place throughout the day on Sunday, March 29th using GoToWebinar, and we have our full conference schedule of pre-recorded sessions and discussion panels, plus the recordings from the live sessions, available now.
Recordings from live sessions are available underneath their title card. Each link clicks through to the CWD YouTube channel.
Opening Keynote: Affordable Access to Insulin
George Huntley and Stewart Perry
10:00 – 11:00 am Eastern
Watch the video!
A welcome message from Laura Billetdeaux
We cannot say THANK YOU enough to our extraordinary sponsors who made it so the first ever virtual Friends for Life conference could be offered FREE OF CHARGE. Their generosity allows Children with Diabetes to bring the diabetes online community together in a safe way, and at a time when we need the support of our community the most.
View this full schedule of pre-recorded sessions!
BACKGROUND ON OUR DECISION TO GO DIGITAL:
In February 2020, we announced the cancellation of our in-person Friends for Life Indianapolis 2020 conference due to COVID-19 concerns. There was no doubt that we made the right call, but we knew in our hearts that we needed to do something to bring the diabetes community together during such uncharted times.
But we've never fully cancelled a Friends for Life conference ... and we have no plans to start now. Which is why we decided to hold the Friends for Life Indianapolis 2020 conference virtually instead!
Our goal with this virtual conference was to bring our community together while also keeping everyone safe. We proudly offered the conference for free, allowing the diabetes community to come together online and from around the globe (while maintaining our social distance).
Cancelling our in-person event and going fully digital has been a learning curve that has both tested our team and shown our fortitude, but we're dedicated to you, our CWD family. Thanks to the help of our staff and our sponsors, we'll always make sure our community has access to good science, solid support, and the latest information in diabetes research and technology.
Thanks to you, our beloved community, for your continued trust. And thank you for joining us for our first virtual conference.
If you would like to support our mission and our efforts to keep Friends for Life alive in the age of social distancing, you can make a gift here.
Thank you for your support. We are in this together, because now - more than ever - caring for diabetes is easier when we do it together.
Messages from our sponsors
Edward Damiano, PhD, is Professor of Biomedical Engineering at Boston University (BU) and President & CEO of Beta Bionics. His educational training is in the areas of biomedical and mechanical engineering as well as applied mathematics. Over the years, his lab at BU, and at the University of Illinois before that, has been engaged in basic scientific research that combines aspects of fluid dynamics, solid mechanics, and intravital microscopy to study the biomechanics of the inner ear and blood flow in the microcirculation. In addition to his basic science research, he has also committed himself to building a bionic pancreas for type 1 diabetes (T1D). Ever since his 20-year-old son, David, was diagnosed with T1D in infancy, he has set his sights on creating and integrating autonomous, intelligent systems for automatically regulating blood glucose levels in diabetes and with a vision of building a bihormonal (insulin and glucagon) bionic pancreas that David could have in college. He and his engineering team at BU began conducting experiments testing an early prototype of their bionic pancreas running on a laptop computer in diabetic swine in 2005 and then progressed with their clinical collaborators at the Massachusetts General Hospital through in-patient trials in adults and adolescents with T1D from 2008–2012. From 2013–2018, his team at BU and clinical collaborators conducted over a dozen home-use clinical trials in adults and children with diabetes (and other chronic conditions of glycemic dysregulation) testing a mobile version of their bionic pancreas, which ran on an iPhone and wirelessly controlled one or two insulin pumps. With nearly $2.5 million in donations from over 1,000 gifts from the T1D community in 2014 and 2015, his engineering team at BU, along with their contract manufacturers, began building the first fully integrated bihormonal bionic pancreas that does not rely upon smartphone technology. They called their device the iLet, in homage to the pancreatic islets of Langerhans. At the end of 2015, the iLet and associated technology was licensed to Beta Bionics, Inc., a Massachusetts Public Benefit Corporation that plans to commercialize the bionic pancreas for people with diabetes and other disorders of glycemic dysregulation. The first home-use clinical trial of the iLet was conducted in adults and children with T1D between May and October 2018. Three additional home-use clinical trials testing the iLet have been conducted in 2019. In collaboration with Damiano’s lab at BU, and 16 clinical sites across the US, Beta Bionics plans to begin final clinical (Phase 3) trials testing the iLet in 2020 and seek FDA approval of the device for commercial distribution in the US in late 2020.
Collector of orange and green wristbands, Leigh Fickling, MEd, MS, JD, is the Executive Director of the Disability Management System at Duke University and Health System. With over 20 years of higher education administration experience, Leigh is an expert in college and workplace accommodations for individuals with disabilities. As a former solo legal practitioner, Leigh’s law firm specialized in education law, disability law, and family law. Leigh is the mom to twins, Ava (green band) and Davis (orange band), and can most often be found in the FFL hallways shouting, “SLOW DOWN!” Leigh feels that FFL is the number one most important tool in her diabetes tool kit and can’t imagine trying to dia-beat-this without the strong support from her friends for life. FFL Conferences are the highlight of the year for the Fickling family and they can’t wait to welcome new and returning families into their circle of friends! #greenandorangeforlife
Mike Hoskins has been acting as his own pancreas since 1984, when he was diagnosed at age five. His mom also lives with T1D, diagnosed at the same young age. As managing editor of DiabetesMine.com since 2012, he’s an active patient advocate in the Diabetes Community and has two decades of experience in print and online journalism, including the Indianapolis Business Journal and Johnson County Daily Journal. He lived for 11 years in Greenwood with his wife and their black lab, Riley (his editorial assistant!) before they moved back to Metro Detroit. You can find him on Instagram at @DiabetesMineNews as well as other social media platforms, and offline you’ll probably find him exploring local coffee houses and microbreweries around the Great Lakes region.
George Huntley is the Chief Operating Officer and Chief Financial Officer of Theoris Group, Inc., a professional services and software company based in Indianapolis, Indiana, with offices throughout the US and Europe. He has been living with type 1 diabetes since 1983 and has been an active volunteer in the fight against diabetes since 1986. George has held many leadership roles with the American Diabetes Association including Chair of the National Board of Directors. George is a founding member and current officer of the National Diabetes Volunteer Leadership Council, a 501c3 organization dedicated to patient advocacy to improve the quality of life for people living with diabetes. George also serves on the board of Children with Diabetes.
Jessica C. Kichler, PhD, CDE, is a pediatric psychologist who specializes in working with chronically medically ill children and their families. She is also a certified diabetes educator (CDE). She provides individual, family, and group therapy for all ages of children and their families. In addition, she engages in research, education, and training in the areas of adjustment and coping, adherence, and the psychosocial outcomes of chronic illness in children and families. Dr. Kichler is Professor of Pediatrics at the University of Cincinnati Medical School, in the Division of Behavioral Medicine and Clinical Psychology at the Cincinnati Children’s Hospital Medical Center in Cincinnati, Ohio.
Kathryn Ortiz, MPH, CHES, was diagnosed with type 1 diabetes at three years old in 1995. She grew up in the Chicago area, but currently lives in Indianapolis, Indiana. Almost two years ago, Kathryn joined the diabetes online community in hopes of raising awareness and educating the world about diabetes as well as to share her personal story. She is also involved in the Indiana diabetes community both through her job and personal time. Kathryn is the Diabetes Program Coordinator for the Indiana State Department of Health (ISDH), but has previously worked as a Diabetes Education Instructor for the Diabetes Youth Foundation of Indiana and interned at both the American Diabetes Association in Indiana and Illinois. Kathryn holds her bachelor’s degree in Public Health, a Masters in Public Health (MPH) and is a Certified Health Education Specialist (CHES). She is currently on the Tandem x2 and Dexcom G6.
R. Stewart Perry grew up in Lexington, Kentucky. Since 1983 he has been the co-owner of Perry & Perry State Farm Insurance, one of the largest State Farm Insurance agencies in the state of Kentucky and is a Diabetes Consultant and Advocate. Stewart’s family has been dramatically affected by diabetes. His son has type 1 diabetes, both parents, and sister have all had diabetes during their lifetime. He has lost an uncle, grandfather and great grandmother to complications of diabetes. Stewart was diagnosed with type 2 diabetes in 1990. Since that time, he has been actively involved in the American Diabetes Association. Stewart was the Chairman of the National Board of Directors and Chair of the National Advocacy Committee for five years, He was Chair Bluegrass Chapter for a number of years and helped organize many of the fundraising events still in existence. He served as the Kentucky Affiliate Board of Vice-Chair and was Chair-Elect when it became a part of the Southern Region where he served as the Chair of the Southern Region. He also is a former member of the National Board of Directors. He is the State of Kentucky State Advocacy Chair for ADA. Stewart is a member of the Kentucky Diabetes Network and a founding member of the Fayette County Diabetes Collation. Stewart was appointed by two different Governors of Kentucky to the GET FIT KY Board and The Diabetes Research Trust Fund Board where he currently still serves. Stewart is one of the founders of the National Diabetes Volunteer Leadership Council and currently serves as an officer of that organization where he has been instrumental in passing Diabetes Action Plan legislation in 18 states over the past four years. Stewart serves on the board of Children with Diabetes.
Jillian Rippolone was diagnosed with type 1 diabetes in 1997 at the age of eight. Jillian and her brother were diagnosed one year apart from one another. Jillian was one of the first type 1 Instagram accounts, spreading diabetes awareness and inspiring others to live confidently with type 1 diabetes. Jillian is a type 1 advocate, volunteer in her community, and on her social media platforms. She currently lives in Michigan and holds her Bachelor’s degree in Special Education and Social Science. You can find her on Instagram and facebook @t1dchick.
Gary Scheiner, MS, CDE, is owner and Clinical Director of Integrated Diabetes Services, a practice located just outside of Philadelphia specializing in intensive insulin therapy and advanced education for children and adults. He and his staff provide consultations throughout the world via phone and the internet. Gary is a Masters-level exercise physiologist. He has been a Certified Diabetes Educator for 19 years, and served as the 2014 Diabetes Educator of the Year. He has had type 1 diabetes for 30 years and makes personal use of insulin pump therapy and CGM. Gary has written dozens of articles for diabetes trade publications and six books, including the popular Think Like A Pancreas – A Practical Guide to Managing Diabetes With Insulin. He lectures nationally and internationally for people with diabetes as well as professionals in the healthcare industry. In addition to serving on the faculty of Children With Diabetes and the Board of Directors for JDRF, Gary volunteers for the American Diabetes Association, Diabetes Sisters, and Setebaid Diabetes Camps. Gary has been happily married for 25 years and has four wonderful kids. A fitness fanatic, he enjoys playing basketball, running, cycling and cheering on his Philadelphia sports teams.
Cherise Shockley was diagnosed with LADA (Latent Autoimmune Diabetes in adults) June 2004. She is the founder of Diabetes Social Media Advocacy (#dsma), creator of the Blue Fridays initiative and WOCDiabetes (Women of Color living with Diabetes). Cherise is a subject matter expert in diabetes social media, online communities, and peer support. She is a wife, mother, and veteran.
Stacey Simms is the host of the award-winning podcast Diabetes Connections and was named one of Diabetes Forecast Magazine’s “People to Know: 2017.” Stacey’s son was diagnosed with type 1 diabetes in 2006, one month before he turned two, and Stacey started blogging about her family’s experience with T1D a few week later. For more than a decade, she hosted Charlotte’s Morning News on WBT-AM, the city’s top-rated morning radio news show. Stacey’s been named to the Charlotte Business Journal’s Forty under 40 and as one of the 50 Most Influential Women in Mecklenburg County by the Mecklenburg Times.
Kerri Sparling has been living with type 1 diabetes since 1986, diagnosed at the age of seven. She manages her diabetes and lives her life by the mantra “Diabetes doesn’t define me, but it helps explain me.” Kerri is an internationally recognized diabetes advocate. She is the creator and author of Six Until Me, which from May 2005 to May 2019 was one of the most widely-read diabetes patient blogs, reaching a global audience of patients, caregivers, and industry. She has been featured on NPR, US News and World Report, CBNC, Yahoo! Health, LA Times, The Lancet, Whole Living, Disney’s Family.com, and Family Circle, among other national outlets. In addition to her writing, Kerri is a highly-rated speaker and has presented the patient perspective to audiences around the world. She works to raise awareness for diabetes, patient advocacy, and the influence of social media on health outcomes. Her first book, Balancing Diabetes (Spry Publishing), looks at type 1 diabetes in the context of “real life.” Kerri and her husband live in Rhode Island, USA, with their two children. You can follow her writing and the release of her next projects at KerriSparling.com.
Marissa Town, BSN, RN, CDCES, has had type 1 diabetes for 31 years and grew up as an attendee of the Children with Diabetes Friends for Life conferences since the beginning in the year 2000. She recognized early on that helping other families living with diabetes was what she wanted to devote her life to, so she became a nurse and a diabetes educator. Marissa has worked in a diabetes clinic, as a pump trainer, and most recently is working as a Clinical Research Manager at Stanford University on the artificial pancreas team as well as on other research studies. It has always been her goal to help the diabetes community to have a better quality of life overall while living with diabetes. Working with Children with Diabetes, diabetes camps, and in the diabetes field have allowed her to achieve this goal. Marissa also has two children, Connor and Everly, who also enjoy coming to Friends for Life to share their experiences growing up with a mom with type 1 diabetes. Her husband Adam is also a nurse and their family enjoys game nights, camping, hiking, and traveling.