De Vere Staverton Estate
De Vere Staverton Estate
Friends for Life UK 2019
The Children With Diabetes Friends For Life Conference is for individuals and families living with type 1 diabetes. The weekend is sure to be filled with fun and laughter, some tears and frustrations, education, exciting challenges and cutting edge information. Join our group of world-renowned clinicians, researchers, consultants and guest speakers who live with T1 diabetes. Attend educational sessions, participate in group discussions, attend the sponsors and exhibitors stands, share your story and help to support and motivate others who are on the same journey as you. Watch the children of all ages become "Fiffles" and see their excited faces as their bonds develop. From toddlers to grandparents, from those new to the T1 world to those more experienced, from laypeople to the medical professionals, we will all join together and make new and lifelong friendships. This is a conference you will never forget and one you will want to come back to again and again and again.
Registering for the Conference
Every conference participant needs to register for the conference
Pricing information is online on our Registration Page. Note that pricing information is on a per person basis.
Registering for the conference is a separate process from making hotel reservations – please make sure that you do both. *
*Registering for the hotel only registers you for a hotel room and registering for the conference only registers you for the conference itself.
Conference Programme (one per family)
Focus Groups on Friday hosted by our Platinum Sponsors
Friday night Opening Keynote and reception thereafter in Exhibition Hall
4 sessions for adults/young adults with a choice of speakers on Saturday and Sunday
Full Youth programme for Elementary, Tweens and Teens on Saturday and Sunday, with visits from our T1 heroes
Teens off-site activities outing on Sunday
Childcare for the Under 5s with visits from our T-1 heroes on Saturday and Sunday
All snacks between sessions
Lunch both days
Family Party on Saturday night
Cancellation Policy: Cancellations prior to September 13, 2019 will be refunded minus a £10 per person processing fee. After September 13, 2019, no refunds are available.
The weekend programme is designed to offer a variety of educational sessions all day Saturday and Sunday. Following sessions, late afternoon and into the evening, there will be free time. During some sessions, there will be a choice of speakers. The programme will end late afternoon on Sunday.
Friends for Life UK 2019 is being held at De Vere Staverton Estate, Daventry. Hotel accommodation is not included in the conference registration. Please contact De Vere Staverton Estate on 01327 220676 to make your reservations and quote "CHIL221019" to get the Conference rate.
- Double Room for Single Occupancy - £110pn
- Double Room for Double Occupancy - £120pn
- Family Room Triple Occupancy - £140pn
- Family Room for 2 Adults and 2 Children - £150pn
Should I Attend?
CWD has invited some of the top experts in the diabetes industry to share their ideas with you. In addition to the scheduled presentations, the conference faculty will be available during meals and breaks for more personalised discussion. Our faculty are very approachable - don't be shy about asking questions! This is a time to discuss anything on your mind relating to diabetes management. It's a great opportunity to network, share ideas, and interact with CWD's most wonderful and caring professionals!
"How can you not feel good about managing diabetes when you’re in that environment, soaking in the newest research, getting the chance to see cutting-edge technology up close, and connecting with new friends and old who just get it?"
Is this just for children and their families?
But Friends for Life is not just for children. Friends for Life brings together all kinds of people impacted by diabetes, providing support and education for children, adults, caregivers, spouses, and friends. There's no limit to our community, or the inspiration you'll find there.
Thinking about attending? There's something for everyone, from the newly diagnosed family to the folks who have been living with diabetes for decades.
Families & Individuals
with type 1 diabetes including toddlers, tweens, teens, and young adults, including siblings
and their significant others, children, and friends
Grandparents and Other Caregivers
who are supporting their family members with type 1 diabetes
who, even though they don't have diabetes, they still live with diabetes
Health Care Professionals
who work with type 1 diabetes (CEUs are not offered)
" Sometimes, when days are kind of rough, I’ll put on a green bracelet to remind myself that I am not alone. "
FRIDAY, 25 OCTOBER - 8.30 AM – 9.00 PM
Registration Opens at 8.30am
Exhibition Hall Opens at 12 noon
Platinum Sponsors Focus Groups
Opening Keynote, Youth Icebreakers & Childcare 7.30pm
SATURDAY, 25 OCTOBER - 9.15 AM - 4.15 PM
Sessions commence at 9.15am and finish at 4.15pm
Programme to follow
SUNDAY, 27 OCTOBER - 9.15 AM - 4.15 PM
Sessions commence at 9.15am and finish at 4.15pm
Programme to follow
Faculty, Experts & Youth Staff
CWD has invited some of the top experts in the diabetes community to share their experience and wisdom with you. In addition to the scheduled presentations, the conference faculty will be available during meals and breaks for more personalised discussion. Our faculty are very approachable - don't be shy about asking questions! This is a time to discuss anything on your mind relating to diabetes management. It's a great opportunity to network, share ideas, and interact with CWD's most wonderful and caring professionals!
Diagnosed with type 1 diabetes at the age of eight, Gavin Griffiths openly shares that his biggest struggles came in returning to school and emotionally adapting to life with a life-long autoimmune disease. Nobody welcomes it! However, after getting back into sports, Gavin found himself more settled and playing semi-professional football, and then into ultra-endurance running. In 2018 Gavin completed his 100th challenge to support those with type 1 diabetes by running 25 marathons around the U.K and Ireland in the space of 1 month – and this helped kick start the ‘League of DiAthletes,’ an international entity which connects a team of type 1 advocates from around the world with a global alliance of diabetes organisations to produce more engaging forms of type 1 diabetes education, designed from the patient’s perspective.
Ashley Head is husband to Shayne and dad to Jake (30) and Phoebe (24, Dx T1D 2001). He is Director of an International Event Logistics company, owner of Lewes FC, the first sem-pro soccer club to fund it’s men’s and women’s teams equally and organises an off-road marathon – The Moyleman – in Lewes, East Sussex. He has volunteered at Friends For Life in the USA since 2009 and was part of the team to help CWD set up the first FFL UK at Beaumont House. Ash takes care of the Sponsor/ Exhibit space at the conferences and works on the move-in and move-out crew. Ash is a trustee of T1 Today UK.
Aileen Hillis is mum to Marc (dx 2006). They both attended the first Friends for Life UK conference in Windsor in 2009. Aileen co-founded iPAG in 2008, a voluntary group supporting equal access to insulin pumps and diabetes technology. She is a patient representative on her local health board (Glasgow), she campaigns and raises awareness of type 1 diabetes, and supports and encourages families through Facebook groups, her website, and other avenues.
Jackie Jacombs first became involved in the CWD USA parent’s mailing list shortly after her daughter Sasha was diagnosed with diabetes in 1999. There were no equivalent supporting mailing lists or websites in the UK. Jackie asked CWD Founder, Jeff Hitchcock, if he would set up a mailing list for UK families. This was the start of a strong on-line community of families in the UK. They now have a committed Facebook group which replaced the UK mailing list. The UK Children with Diabetes Advocacy Group was formed in 2007 to advocate for better care, especially in schools and better access to new technology. There are annual family weekends away for families to meet each other and parents who live near each other, arrange to meet up with their children in the holidays. Various parents of the Facebook group continue to work and support the work of JDRF, Diabetes UK, DRWF and INPUT whenever possible. Jackie’s daughter Sasha, is now 25 years old, studying Biological Sciences and hopes to work in research. Sasha’s identical twin, working in law, does not have type 1, but both twins have really enjoyed helping out at the CWD UK conferences in the past.
Judith Kennon, BSc, Dip Nursing, RAN, has been a Diabetes Specialist Nurse for 6 years. Having graduated from Glasgow Caledonian University in 2010, Judith started her career in medical receiving at Victoria Infirmary Hospital, Glasgow. Here Judith learned about the acute side of diabetes and its complications. From here, Judith moved to a diabetes ward at Gartnavel General Hospital, where she gained further experience in diabetes and successfully applied for her current role as a Diabetes Nurse Specialist. Specialist interests include transition care, psychological impact of diabetes, health literacy, and health inequalities. Judith is the proud mother of Dylan (2) and her personal hobbies and interests include music, walking, dancing, and all things Disney!
Brian Kennon, MD, FRCP, was appointed as an adult consultant diabetologist in 2004. He works at the Queen Elizabeth University Hospital, Glasgow, and his sub-speciality interests include transitional care, diabetes foot disease and technology enabled care. He is also interested in developing person-centred care models and a societal approach to wellbeing. As national lead for diabetes in Scotland, he has been involved in the implementation of the Diabetes Improvement Plan with the aim of improving the care of persons with diabetes across Scotland. Brian is the proud father of a two year old son and personal interests include football, walking and cycling.
Scott Kyllo lives in British Columbia, Canada. He has two adult children, Alyssa and Chad. Their path along the diabetes road started in 1996 when his son, Chad, then age two, was diagnosed with type 1 diabetes when they were residing in Bahrain in the Middle East. The World Wide Web had just arrived in Bahrain and it brought to the Kyllo’s the safety of the Children with Diabetes family. Two years later, when life was becoming somewhat comfortable and routine, Alyssa, then age 7, was also diagnosed with type 1 diabetes. Chad was also diagnosed with celiac disease in 2001. The family attended their first Friends For Life conference in 2002. Getting to meet the CWDers in person was like Christmas in July! Scott is a Chief Information Officer by day and an Aircraft Engineer by night maintaining a Piper Cherokee and a Mooney. These skills and his “MacGyver” qualities keep him running at the Friends For Life conferences as its Information Technology and Audio/Visual support person. He is a strong advocate of Friends For Life conferences and believes anyone with a connection to diabetes should attend at least one… although warns that the conferences are much like potato chips—it’s hard to stop at just one!
Anna Long, MBiol, PhD, completed an undergraduate Master in Biology at the University of Bath (2006). Her type 1 diabetes research career began as a research technician measuring markers of diabetes in the blood (islet autoantibodies). Anna received her PhD from the University of Bristol in 2012. After this she was awarded a Fulbright scholarship by Diabetes UK. This enabled her to spend two years in Seattle, USA, studying the immune system of people ‘at risk’ of diabetes. In 2018, Anna was awarded an RD Lawrence Fellowship, jointly funded by Diabetes UK and the JDRF. With this funding she is investigating why some people develop type 1 diabetes as adults when others are diagnosed when they are children. Her project is rooted in the Bart’s Oxford (BOX) study which researches type 1 diabetes through studying the families of people with diabetes.
John Pemberton, BSc Sports Science, PGDip Dietetics, Diabetes Educator, is passionate about empowering and educating children and young people and their families to self-manage and take control of diabetes. He has had type 1 diabetes since 2008 and has played both cricket and football at a high level. He is passionate about being active, and takes every opportunity to get to the gym, walk the Grand Canyon, and tackle the Three Peaks. His work at Birmingham Children’s Hospital (UK) involves delivering personalised education to; the newly diagnosed, those initiating pump therapy, new starters on CGM, and those wanting to improve their lifestyle. He run a sports specific clinic for those who play at a high level. His current interests is the effective use of CGM using a “Sugar Surfing” approach. His main focus is to bring the current evidence base into clinical practice as soon as possible, by creating tools that make it easy. Recently, this has been the implementation of a new system KISS, for giving extra insulin for high fat and protein meals.
Dr Timothy Tree is a Reader in Immunobiology at King’s College London. His research focuses on understanding the processes involved in destroying insulin producing cells which leads to the development of type 1 diabetes. His work tries to understand why some people develop T1D and others do not and use this knowledge to identify and test new therapies aimed at stopping or reversing this destructive process. This research has contributed to several exciting new clinical trials being performed in the UK and beyond. In addition to a 20-year professional interest in diabetes, Tim also has a great personal interest in the condition. His father lived with type 1 diabetes for over 25 years and he was diagnosed with type 1 diabetes at the age of 11. He now has three lovely (but boisterous) boys of his own and aims for a world where type 1 diabetes no longer touches young lives.
Jill Weissberg-Benchell, PhD, CDE is a pediatric psychologist and a certified diabetes educator with over 25 years of research experience and clinical work with children, adolescents and families with diabetes and their families. Her academic appointment is as a Professor of Psychiatry at Northwestern University’s Feinberg School of Medicine. She has published numerous research articles and offered workshops and lectures addressing issues such as improving self-management behaviors, family adaptation and coping, building adolescent resilience, the use of technology (CGM, Pumps and the Artificial Pancreas), and transitioning from pediatric to adult care. She is a co-author of two books, one that focuses on transitioning from pediatric to adult care, and another that focuses on working with adolescents with type 1 diabetes.