Research

Get Involved in Diabetes Research

advertisement

Looking to make a difference in the world of type 1 diabetes? Consider signing up for a clinical trial! Getting involved in studies helps improve diabetes care for all. Some studies are simply online surveys, where others are testing out new diabetes devices or medications.

Listed below are studies that are currently recruiting participants, with links where you can contact the study coordinator or center. You can also check out clinicaltrials.gov and search for “type 1 diabetes” to find all active clinical trials in the U.S. 

Do you have a study you want us to share? Use our Study Upload form.

Current Studies

  • NEW: Effectiveness of a Co-Designed Pilot Support Group for Students with Type 1 Diabetes in a Post-Secondary

    Education SettingAre you a young adult between the ages of 18-25?

    • Have you been diagnosed with type 1 diabetes?
    • Do you attend a college and/or university in Ontario?
    • Are you and a peer (also aged 18-25 attending a college/university in Ontario) able to
      attend an online peer support group?

    If you answer yes to all 4 of these questions, then we want to recruit YOU to participate in an
    online peer support group for young adults with T1D and their peers.

    Study Description:
    If you volunteer to participate in this study, you will be asked to complete three parts during our sessions:

    1. Participate in a 4-session online mental health-based peer support group that will focus
      on providing opportunities for diabetes education, advocacy, as well as bolstering
      effective social support and coping skills in young adults with T1D and their peers.
    2. Answer interview questions about your expectations for the peer support group prior to
      the first support group session, as well as your satisfaction with the support group after
      the final peer support group session.
    3. Complete two sets of questionnaires after the interviews. On these questionnaires, you
      will be asked to provide information about: (a) your demographics, (b) diabetes-related
      social support received on campus, (c) potential barriers to T1D management on campus,
      (d) potential strategies to help in managing T1D on campus, (e) your level of diabetes
      distress, and (f) your perception on the feasibility and acceptability of the support group.

    Study duration:
    Interviews and questionnaires are expected to take approximately 30 minutes each. The four
    online group sessions are expected to last approximately 1 hour each.

    Eligible and interested in participating? Click the following link to be taken to the study signup form: https://uwindsor.ca1.qualtrics.com/jfe/form/SV_e5rKAcXwTNQzWIu

    Please share this sign-up form link with the peer who you would like to participate in the
    study with you: https://uwindsor.ca1.qualtrics.com/jfe/form/SV_e5IhdoAvEjSQlWS

  • NEW: Survey for Mothers of Children with any Stage of Type 1 DiabetesThe goal of this survey is to learn about events during pregnancy, labor, birth or in your child’s early life as potential risk factors for any stage of type 1 diabetes. The survey is for mothers aged 18 years or older (can be biological mom, an adoptive mother or step mother etc) with a child who is 18 years or younger and:
    • lives with type 1 diabetes or
    • has two or more autoantibodies for type 1 diabetes or
    • is in good health

    The online survey takes about 15 to 30 minutes to complete. Learn more at

    https://chronicillnesstraumastudies.com/t1dsurvey/

  • NEW: Harvard Medical School is developing a curriculum for medical schools on integrating youth mental healthcare into pediatric practices.Part of the curriculum will be highlighting the experiences of youth (and their families) who have chronic conditions, like Diabetes, but who also have co-occurring mental health challenges such as depression, anxiety, etc. The goal of this curriculum is to help pediatric medical students better treat the whole patient by integrating physical and mental healthcare.Lead researcher is Elena Rue. She is hoping to talk with as many families as possible to help us better understand their experiences and tailor the curriculum to the lived experiences of patients. If you're interested in talking with her, she can be reached at [email protected].
  • NEW: Academic Accommodations for College Students with Type 1 Diabetes Study
    Please consider participating in a research project for college students with type 1 diabetes being conducted by a team at Marquette University!The purpose of this project is to better understand the experiences of college students with type 1 diabetes in asking for and utilizing academic accommodations. To participate you should have a type 1 diabetes diagnosis for at least a year, be enrolled in a college or university in the United States, and be at least 18 years of age. The study involves completing an online questionnaire (https://tinyurl.com/etrnku2t) that should take 10-15 minutes. After completing the survey, you can enter your email address to receive a $5 Amazon gift card. Please share this information with others who may be eligible to participate.To participate participants should have a type 1 diabetes diagnosis for at least a year, be enrolled in a college or university in the United States, and be at least 18 years of age.
  • NEW: Researchers at Vanderbilt University are conducting a study on digital storytelling for teens with Type 1 Diabetes. The study will explore how creating personal stories about living with diabetes can help with managing stress, feeling supported, and improving self-care. Find out if you're eligible or contact the team at [email protected].
  • NEW: The University of Minnesota is conducting a study for adults with diabetes and their support person or follower using a behavioral and digital health intervention to see if it helps reduce diabetes distress and improve glycemia. More information.
  • NEW: Medtronic is looking for study participants aged 2-6 years with type 1 diabetes to evaluate the safety of the MiniMed 780G insulin pump with the DS5 CGM. There are multiple locations for the study, and you can find more information here.
  • We would like to offer you an opportunity to participate in the Post-market Data Collection Program for the MiniMed™ 780G system that will help us continually improve the product of future innovations. To participate in this program, we will ask for the following:
    1. Complete survey data:
      • Complete an initial survey about your system and check your eligibility to participate. After this first survey, we will ask you to complete a short survey twice a month for one year to collect information on your MiniMed™ 780G system experience.
      • You will be compensated for your time spent in completing each survey and for completing a year of participation in the program.
    2. Share device data:
      Provide permission to share your CareLink™ data to gather information about your system’s performance.
      If you are interested in participating or would like to learn more, please use this link. Have your Customer Account Number readily available if you decide to participate.
  • The ISPAD-JENIOUS group has a project developed in collaboration with #dedoc° and INNODIA that aims to investigate the perspectives of parents or caregivers of children and youth with T1D regarding the use of new disease-modifying drugs. They are seeking parents or caregivers of children and adolescents with type 1 diabetes to complete a short survey by using this link. More information and the survey translated into other languages are available here. 
  • 'Time in Tight Range' Survey. Stanford is seeking adult participants living with type 1 diabetes to complete an anonymous survey about your views on a new metric for assessing diabetes outcomes. For more information and to participate, click this link. Participation should take around 15 minutes. For more information, contact the study investigator Molly Tanenbaum, PhD -  [email protected].
  • If you are a woman/birthing person with diabetes, you're invited to participate in an online research study to help learn more about your emotional and health behavior needs and diabetes-related self-management strategies. The study is for anyone who is currently pregnant, planning pregnancy or recently had a baby. For more information and to check eligibility.
  • PREME T1D project – Parents’ peRspectives on disEase-Modifying thErapy in t1D – complete a survey developed in collaboration with #dedoc° and INNODIA, directed to parents/caregivers of children and youth living with T1D aiming to understand their perspectives regarding the use of new disease-modifying drugs.
  • ISPAD JENIOUS special interest group members would like to determine the perceptions of healthcare professionals' regarding the health care team's role in screening psychological concerns and barriers and facilitators to implementing psychosocial screening in practice. Learn more.
  • Researchers at the University of the Sunshine Coast and elsewhere, worldwide, would like to determine the perceptions of healthcare professionals’ regarding the health care team’s role in screening psychological concerns; and [b] barriers and facilitators to implementing psychosocial screening in practice. If you are a healthcare professional currently providing care to patients with diabetes aged <18 years (in any country worldwide), we invite you to participate in an online survey, which will take around 15 minutes to complete. Learn more.
  • If you (or someone you know) have been diagnosed with type 1 diabetes within the last 6 months and are between the ages of 12 to 29, please consider taking part in the DIAGNODE-3 diabetes trial. This study is testing a precision medicine treatment to see if it is able to preserve the body's own insulin-producing capacity by halting or delaying the autoimmune attack on the beta cells. Read more about it and find your nearest clinic at www.diagnode-3.com
  • T1D Transition of Care Program & Research Study at UCSF is looking for young adults aged 18-30 with T1D looking for community and support around growing up with diabetes. Participate in virtual peer groups and complete surveys. Email [email protected] for questions.
  • The Diabetes Wellness Teen Study at Stanford University is investigating risk factors that predict future onset of eating disorders in adolescents with type 1 diabetes. If you are between the ages of 11-17, have type 1 diabetes, and use a continuous glucose monitor, you may be eligible to participate. You could earn up to $125. All activities are completely virtual! Fill out the interest form here and click here to learn more!
  • Are you a young adult who attends/attended college and/or university between the ages of 18-25 with T1D? If you answer yes to all 3 of these questions, then we want to recruit you to learn more about your perceptions as a young adult who is managing type 1 diabetes on a college/university campus. View the pdf to learn more.
  • TrialNet researchers are testing two different treatments – abrocitinib and ritlecitinib – to see if either or both can preserve insulin production in people (ages 12-35) newly diagnosed with type 1 diabetes (Stage 3 T1D). To learn more and sign up for the JAK Inhibitors Newly Diagnosed Study, visit: trialnet.org/jakpot.
  • The Designate Study aims to see how the experimental study drug, siplizumab, can block or weaken the cells that attack beta cells in the pancreas. This would allow the beta cells to continue to function and produce insulin. The study is for those 18 - 45 years of age, diagnosed with T1D in the last 18 months. Compensation is provided. If interested contact Hali at 303-724-7526 or check out: www.designate-study.org.
  • Indiana University is studying a drug known as difluoromethylornithine (DFMO) that may reduce stress in cells that make insulin and preserve your body’s own insulin production. To learn more and to see if you qualify, click here.
  • Are you an adult 60 years or older with Type 1 Diabetes who uses a CGM? University of Utah College of Nursing is conducting a study for adults and their partners who are able to view CGM data on their phone. If you're interested please contact Bruno Gonzalez [email protected]
  • If you have a child aged 2 - 5 years with Type 1 diabetes who is not on an insulin pump, they may be eligible for a new study. This study will explore how Artificial Intelligence (AI) can help doctors choose pump settings in a system that uses automated insulin delivery. The study is sponsored by NIH. For more information go to: www.jaeb.org/pedapai
  • The T1D RELAY This study is testing rituximab-pvvr and abatacept in people (ages 8-45) who were newly diagnosed with type 1 diabetes (T1D) to learn if using both immune therapies, one after the other, maintains the body’s ability to make insulin. By adding abatacept after rituximab-pvvr, researchers predict more people will experience prolonged beta cell function during and possibly after treatment. Learn more and enroll here.
  • An international research team would like to determine the perceptions of adolescents, young adults, their adult carers, and healthcare professionals around the transition from paediatric to adult diabetes healthcare services. We intend to use study findings to help formulate international consensus guidelines on transition between paediatric and adult-based diabetes healthcare services (by the International Society for Pediatric and Adolescent Diabetes, the American Diabetes Association, and the European Association for the Study of Diabetes). As a person with diabetes (or adult carer), we invite you to participate in an online survey, which will take around 15 minutes to complete. Learn more.
  • Researchers at Texas Children's Hospital are looking for Teenagers with diabetes aged 14-17 to make videos that empower younger children living with type 1 diabetes. They encourage you to get creative and have fun with this project! The sign-up link is here.
  • The National Institute of Diabetes and Digestive Kidney Diseases is sponsoring a pilot study in people with T1DM who are over 60 years old and use a CGM device. Learn more here.
  • Coin 2 dose is a study for Teenagers with diabetes between the ages of 11-17 years old who have had T1D for at least 6 months. The study is looking to help improve bolusing in teenagers. For more information, there is a video at this link.
  • Stanford University is looking for people with diabetes who have been hospitalized or gone to an emergency department in the last year. They have a survey about experiences with diabetes technology in the hospital setting.
  • Study for adults with T1D ages 18-45 seeing if a new medically designed probiotic will improve beta cell function, gastrointestinal health, immune function, and c-peptide levels in study participants. The study is at the University of Florida Campus in Gainesville, Florida and involves 4 in-person visits over a year. Must be willing to consume study probiotic capsule daily for 24 weeks. Contact Miriam Cintron, study coordinator, [email protected] for more information.
  • Researchers at the University of Texas are looking for Young Adults between the ages of 18-25 with Diabetes or other qualifying health conditions to participate in a research study investigating what influences readiness to transition to adult care. This will be a one-time online survey. For more information please contact at this email: [email protected] or this phone number: 512-593-2360.
  • Survey for parents of children with chronic health conditions at Baylor University. Parent and siblings participate in zoom sessions and complete questionnaires. For more information and interest to participate, please contact: Tatum Zeleznik at [email protected] 
  • A 2nd year PhD student at Rosalind Franklin University of Medicine and Science is conducting a study that seeks to understand more about the relationships young adults (age 18-29) with type 1 diabetes have with their medical providers, and how these relationships impact their diabetes management. If you are between the ages of 18-29, have type 1 diabetes, have seen your endocrinologist in the last year, and can read English please consider participating! Learn more about the study and take the survey.
  • Are you the parent of an emerging adult (aged 15-25) with type 1 diabetes? The purpose of this study is to identify desired types and mechanisms of support for parents during their emerging adult’s transition to adulthood with T1D. Click here to access the confidential online screening questionnaire. Participants who complete both the survey and the focus group will be entered into a drawing to win a $100 Amazon.com e-gift card!
  • The purpose of the VX-880 Islet Cell Infusion study sponsored by Vertex Pharmaceuticals is to evaluate the safety, tolerability, and effectiveness of an investigational islet cell infusion called VX-880. The goal of this infusion is to provide replacement cells for the ones that have been lost or don’t work properly in people with diabetes. Participants may be compensated financially for study-related time and reimbursed for travel. Learn more and see if you qualify.
  • The MAS-1 Study is working to prove that MAS-1 vaccine is safe and promotes anti-inflammatory pathways while decreasing auto-inflammatory actions in the body. This study is looking for patients diagnosed with T1D within previous 2 years who are 18-45 years old. Learn more. For questions, contact Hali Broncucia at [email protected].
  • Little is known about how families manage diabetes when multiple family members have type 1 diabetes. Such families may have strategies they share that make living with T1D easier. The University of Utah is conducting a multi T1 study - get more information here!

Do you have a research study that we can promote? Use our Contact Us form to let us know.

advertisement